Author
Jakob Lynge Sandegaard
Bio: Jakob Lynge Sandegaard is an academic researcher from National Board of Health. The author has an hindex of 1, co-authored 1 publications receiving 2754 citations.
Papers
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TL;DR: Although the NPR is overall a sound data source, both the content and the definitions of single variables have changed over time and researchers using the data should carefully consider potential fallacies in the data before drawing conclusions.
Abstract: Introduction: The Danish National Patient Register (NPR) was established in 1977, and it is considered to be the finest of its kind internationally. Content: At the onset the register included information on inpatient in somatic wards. The content of the register has gradually been expanded, and since 2007 the register has included information on all patients in Danish hospitals. Validity and coverage: Although the NPR is overall a sound data source, both the content and the definitions of single variables have changed over time. Changes in the organisation and provision of health services may affect both the type and the completeness of registrations. Conclusion: The NPR is a unique data source. Researchers using the data should carefully consider potential fallacies in the data before drawing conclusions.
3,275 citations
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TL;DR: The Danish National Patient Registry is a valuable tool for epidemiological research, however, both its strengths and limitations must be considered when interpreting research results, and continuous validation of its clinical data is essential.
Abstract: Background
The Danish National Patient Registry (DNPR) is one of the world’s oldest nationwide hospital registries and is used extensively for research. Many studies have validated algorithms for identifying health events in the DNPR, but the reports are fragmented and no overview exists.
2,818 citations
TL;DR: The PCRR is a valuable tool in national health planning and in epidemiological research and systematic studies validating the clinical diagnoses do not exist.
Abstract: Introduction: The Psychiatric Central Research Register (PCRR) has continued since 1970 with electronic registration of patients treated at psychiatric departments in Denmark. Content: The register contains dates of onset and end of any treatment; all diagnoses; type of referral; place of treatment; municipality of residence; mode of admission. Validity and coverage: Systematic studies validating the clinical diagnoses do not exist. However, several studies have validated specific diagnoses. The nationwide registration of severe mental disorders is almost complete. However, most cases with mild to moderate mental disorders are diagnosed and treated by general practitioners or specialists in psychiatry working in private practice and are thus not registered in the PCRR. Conclusion: The PCRR is a valuable tool in national health planning and in epidemiological research.
1,218 citations
TL;DR: In 2008 the Cancer Registry finished a process of modernisation where reporting became electronic through integration with the patient administrative systems and manual coding was partly replaced by an automatic coding logic.
Abstract: Introduction: The Danish Cancer Registry was founded in 1942. Content: The Cancer Registry contains data on the incidence of cancer in the Danish population since 1943. Validity and coverage: Validity of the Cancer Registry is secured by the application of manual quality control routines in the daily production of the Cancer Registry, the application of the automated cancer logic, and the use of multiple notifications from different data sources, which also secures a high degree of completeness. Conclusion: In 2008 the Cancer Registry finished a process of modernisation where reporting became electronic through integration with the patient administrative systems and manual coding was partly replaced by an automatic coding logic.
1,078 citations
TL;DR: In this article, the authors present a systematic review of validation studies that compare data to external information, focusing on the validity of the Finnish Hospital Discharge Register (FHDR) in the case of vascular disease, mental disorders or injuries.
Abstract: Aims: The Finnish Hospital Discharge Register (FHDR) is one of the oldest individual level hospital discharge registers and has been intensively used for research purposes. The aim of this study was to gather information concerning the quality of FHDR into one place in terms of a systematic review of validation studies that compare data to external information. Methods: Several reference databases were searched for validity articles published until January 2012. For each included study, focus of validation, register years examined, number of compared observations, external source(s) of data, summary of validation results, and conclusions concerning the validity of FHDR were extracted. Results: In total, 32 different studies comparing FHDR data to external information were identified. Most of the studies examined validity in the case of vascular disease, mental disorders or injuries. More than 95% of discharges could be identified from the register. Positive predictive value (PPV) for common diagnoses was ...
924 citations
TL;DR: The hypothesis that remote ischaemic conditioning during evolving ST-elevation myocardial infarction, and done before primary percutaneous coronary intervention, increasesMyocardial salvage, and has a favourable safety profile is tested.
924 citations