This new edition of Ann Bowling's well-known and highly respected text has been thoroughly revised and updated to reflect key methodological developments in health research. It is a comprehensive, easy to read, guide to the range of methods used to study and evaluate health and health services. It describes the concepts and methods used by the main disciplines involved in health research, including: demography, epidemiology, health economics, psychology and sociology.The research methods described cover the assessment of health needs, morbidity and mortality trends and rates, costing health services, sampling for survey research, cross-sectional and longitudinal survey design, experimental methods and techniques of group assignment, questionnaire design, interviewing techniques, coding and analysis of quantitative data, methods and analysis of qualitative observational studies, and types of unstructured interviewing. With new material on topics such as cluster randomization, utility analyses, patients' preferences, and perception of risk, the text is aimed at students and researchers of health and health services. It has also been designed for health professionals and policy makers who have responsibility for applying research findings in practice, and who need to know how to judge the value of that research.

Research Methods in Health. Investigating health and health services

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Nothing About Us Without Us: Disability Oppression and Empowerment

In this paper, we describe the value and philosophy of lifeworld-led care. Our purpose is to give a philosophically coherent foundation for lifeworld-led care and its core value as a humanising force that moderates technological progress. We begin by indicating the timeliness of these concerns within the current context of citizen-oriented, participative approaches to healthcare. We believe that this context is in need of a deepening philosophy if it is not to succumb to the discourses of mere consumerism. We thus revisit the potential of Husserl’s notion of the lifeworld and how lifeworld-led care could provide important ideas and values that are central to the humanisation of healthcare practice. This framework provides a synthesis of the main arguments of the paper and is finally expressed in a model of lifeworld-led care that includes its core value, core perspectives, relevant indicative methodologies and main benefits. The model is offered as a potentially broad-based approach for integrating many existing practices and trends. In the spirit of Husserl’s interest in both commonality and variation, we highlight the central, less contestable foundations of lifeworld-led care, without constraining the possible varieties of confluent practices.

Lifeworld-led healthcare: revisiting a humanising philosophy that integrates emerging trends.

New support role for nursing Health Education England (HEE) is seeking views on a proposal to introduce a nursing associate role to support registered nurses in patient care delivery. HEE wants opinions on whether this new role should be established at all, the potential contributions to patient care across a variety of settings, what the role parameters should be, what education and training will be required, and how the role should be regulated. To respond to the consultation, which closes on March 11, go to tinyurl.com/nursing-associate

Mental Capacity Act

Stakeholder engagement in construction projects can be conceptualized in different ways. It can be seen from a strategic management perspective aimed at capturing knowledge, increasing ownership of the project by users, reducing conflict, encouraging innovation and facilitating spin‐off partnerships. From an ethical perspective, meaningful stakeholder engagement can be seen to enhance inclusive decision making, promote equity, enhance local decision making and build social capital. The benefits from both of these perspectives are vital for sustainability; however, stakeholder engagement can also be seen from the perspective of an opportunity for social learning—a social process where diverse stakeholders share a common forum, learn about each other's values, reflect upon their own values and create a shared vision and shared objectives. Dialogue is also useful in increasing awareness, changing attitudes and affecting behaviours. Existing practices view stakeholder engagement: mostly from a management pers...

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Conceptualizing stakeholder engagement in the context of sustainability and its assessment

https://research.birmingham.ac.uk/portal/files/54809571/Newbigging_Ridley_2018_Epistemic_struggles.pdf

Epistemic struggles: The role of advocacy in promoting epistemic justice and rights in mental health.

In the UK, the ‘fitness to practice’ criteria that allow regulatory bodies to use health standards to restrict entry to the human professions have resulted in some disabled people being excluded from this workforce. Disclosure of disability is therefore a risky process for those aiming to practice or train in nursing, social work and teaching. This research, commissioned to inform the Disability Rights Commission's Formal Investigation into fitness standards in the professions, was undertaken in 2006–07 and explored experiences of disability disclosure amongst professionals. Interviews with 60 practitioners and students, most of whom had unseen disabilities, revealed considerable variations in the extent of disclosure. Disclosure was perceived as having the potential to exclude participants from their chosen profession. Two overlapping models of disability disclosure emerged from data analysis. The study concludes that abolishing health standards for the professions would increase disability disclosure an...

Disclosing disability in the context of professional regulation: a qualitative UK study

A Literature Review This report is dedicated to the memory of David Brandon. David's life's work was about user empowerment and involvement. David was working on this review shortly before he died in November 2001. We hope that the material here will encourage many other people to put into effect the values that David believed were so important. 3 Executive summary Background Scottish Human Services commissioned this literature review as part of its work for the Scottish Executive funded Partners in Change project. Together with the toolkit Building Strong Foundations, it forms a resource for helping to build an NHS that " listens better to patients and responds more effectively to their needs " (Our National Health, 2000). The review is of literature published primarily in the UK during the past 5 years, examining theories and involvement initiatives across the health and illness spectrum, and reflecting on the effectiveness of different approaches. It was carried out by Scottish Health Feedback over three months between January to March 2002. The main focus has been on literature documenting the experience of health services attempting to involve patients and the public more, identifying where possible what has worked and any barriers. It had three main aims: • To provide evidence to persuade sceptics in health and other services that partnership projects and other involvement initiatives are indeed worthwhile and productive enterprises with positive and concrete outcomes. • To seek out empirical evidence of " how to do it " and " what works " wherever this existed. • To provide a firm foundation for improving and generating more involvement initiatives in the future. The review sought to cover the literature in respect of three main interfaces with health services: 1. In respect of individuals own direct care; 2. Involvement in monitoring and improving the quality of services. 3. Involvement in strategic planning and developments. The review discovered that 'involvement' is not an homogenous term and has a variety of meanings attached to it. There were two broad approaches identified from the literature-consumerist and democratic approaches. However, involvement was about more than consumerism, and in some sense, this notion contradicted the growing desire to make health services more 'person-centred'. It is often helpful to distinguish between involving people as individual users/patients and carers, and involving them as groups, for example, users'/patients' groups or as citizens. Further, a distinction is made in the literature between …

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User and Public Involvement in Health Services: a Literature Review

/pdf/disclosing-disability-disabled-students-and-practitioners-in-59id070w86.pdf

Disclosing Disability: Disabled students and practitioners in social work, nursing and teaching

Compulsory psychiatric treatment is highly contested, and little research has focused specifically on direct experiences. The Mental Health (Care & Treatment) (Scotland) Act, 2003 introduced new roles and provisions including community treatment orders, and was designed to increase participation, ensure treatment was beneficial and was the 'least restrictive' alternative. This article draws on findings from semi-structured interviews with 49 individuals, who had experienced compulsion under this new legislation during 2007-2008, that were part of a broader cohort study. Interviews with service users were conducted at two stages with 80% agreeing to be interviewed twice. The sample included people on a variety of compulsory orders from four Health Board areas, some of whom had been detained for the first time, while others reported 'revolving door' experiences. Peer researchers who were mental health service users carried out the interviews in partnership with professional researchers. The findings suggest that legislation had a limited impact on participation in the process of compulsion. Consensus was that although service users felt there was increased opportunity for their voices to be heard, this was not matched by having increased influence over professional decision-making, especially in relation to drug treatments. According to people's direct experiences, the passing of the legislation in itself had done little to change the dominant psychiatric paradigm. While providing a foundation for improving the process of compulsion, the findings suggest that as well as legislative reform, fundamental shifts in practice are needed both in terms of the nature of therapeutic relationships, and in embracing more holistic and recovery perspectives.

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Subjective experiences of compulsory treatment from a qualitative study of early implementation of the Mental Health (Care & Treatment) (Scotland) Act 2003

Julie Ridley

Papers

Epistemic struggles: The role of advocacy in promoting epistemic justice and rights in mental health.

Disclosing disability in the context of professional regulation: a qualitative UK study

User and Public Involvement in Health Services: a Literature Review

Disclosing Disability: Disabled students and practitioners in social work, nursing and teaching

Subjective experiences of compulsory treatment from a qualitative study of early implementation of the Mental Health (Care & Treatment) (Scotland) Act 2003