Vicki Tsianakas

Bio: Vicki Tsianakas is an academic researcher from King's College London. The author has contributed to research in topics: Randomized controlled trial & Prenatal care. The author has an hindex of 14, co-authored 23 publications receiving 1093 citations. Previous affiliations of Vicki Tsianakas include Florence Nightingale School of Nursing and Midwifery & La Trobe University.

Experience-based Co design and Healthcare Improvement: Realising Participatory Design in the Public Sector

Abstract: ABSTRACT Over the last decade, growing attention has been paid to the potential value of design theory and practice in improving public services. Experience-based Co-design (EBCD) is a participatory research approach that draws upon design tools and ways of thinking in order to bring healthcare staff and patients together to improve the quality of care. The co-design process that is integral to EBCD is powerful but also challenging, as it requires both staff and patients to renegotiate their roles and expectations as part of a reconfiguration of the relationships of power between citizens and public services. In this paper, we reflect upon the implementation and adaptation of EBCD in a variety of projects and on the challenges of co-design work within healthcare settings. Our discussion aims to contribute to the growing field of service design and to encourage further research into how co-design processes shape—and are shaped by—the power relations that characterize contemporary public services.

Experience-based Co-design and Healthcare Improvement: Realizing Participatory Design in the Public Sector

Abstract: Over the last decade, growing attention has been paid to the potential value of design theory and practice in improving public services. Experience-based Co-design (EBCD) is a participatory researc...

Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services

Abstract: Purpose The aim of this paper was to briefly describe how the experience-based co-design (EBCD) approach was used to identify and implement improvements in the experiences of breast and lung cancer patients before (1) comparing the issues identified as shaping patient experiences in the different tumour groups and (2) exploring participants' reflections on the value and key characteristics of this approach to improving patient experiences.

Using Experience-based Co-design (EBCD) to improve the quality of healthcare: mapping where we are now and establishing future directions

Abstract: PREFACE It is now almost 10 years since what has become the Experience-based Co-design (EBCD) approach to improving patient experience was first planned and piloted in a head & neck cancer service at Luton & Dunstable NHS hospital in England. A decade on and the roots of over 80 projects in seven different countries can be traced back to the hard work and commitment of the coming together of a small group of staff, patients and carers involved in that original work. Over time, naturally and quite rightly, the original 'blueprint' for EBCD has been adapted and tailored to better suit different types of healthcare services as well as a wide range of local and national contexts. As part of this evolution, the free-to-access online EBCD tookit has recently been revised and extended. Changes were made based on the feedback of practitioners who have been directly involved in applying the approach in their own services, and further case studies have also been added to highlight the flexibility of the approach. An updated reading list has been included for those interested in digging a little deeper (see Annex 1). The end of 2013 also sees the convergence of several different strands of work relating to EBCD:  the launch of the revised toolkit itself and a new LinkedIn group 1 (currently over 100 members) for those interested in learning more and sharing their own reflections with others;  the successful piloting of a new 'accelerated' version of the approach-using existing nationally collected patient interviews-which was developed in response to practitioners' wishes for a quicker path to identifying co-design improvement priorities and implementation of solutions;  the inclusion of an introduction to the approach in a new online programme offered by the NHS Leadership Academy which will be delivered to around 4000 health and social care staff in England in the next 3 years;  the recent decision by NHS England to fund a new 'train the trainers' course in EBCD which will be hosted and facilitated by the Point of Care Foundation in London; 2  the emergence of more rigorous and robust studies of the effectiveness of EBCD, ranging from PhD theses, through feasibility trials of co-designed interventions and onto large-scale cluster randomised controlled trials evaluating impact on patient outcomes. This report therefore provides something of a stock-take of the 'state of the art' of EBCD, summarising the findings from …

Using patients' experiences to identify priorities for quality improvement in breast cancer care: patient narratives, surveys or both?

Abstract: Patients’ experiences have become central to assessing the performance of healthcare systems worldwide and are increasingly being used to inform quality improvement processes. This paper explores the relative value of surveys and detailed patient narratives in identifying priorities for improving breast cancer services as part of a quality improvement process.

Achieving research impact through co-creation in community-based health services: Literature review and case study

Abstract: © 2016 Milbank Memorial Fund. Policy Points: Co-creation - collaborative knowledge generation by academics working alongside other stakeholders - is an increasingly popular approach to aligning research and service development. It has potential for "moving beyond the ivory towers" to deliver significant societal impact via dynamic, locally adaptive community-academic partnerships. Principles of successful co-creation include a systems perspective, a creative approach to research focused on improving human experience, and careful attention to governance and process. If these principles are not followed, co-creation efforts may fail. Context Co-creation - collaborative knowledge generation by academics working alongside other stakeholders - reflects a "Mode 2" relationship (knowledge production rather than knowledge translation) between universities and society. Co-creation is widely believed to increase research impact. Methods We undertook a narrative review of different models of co-creation relevant to community-based health services. We contrasted their diverse disciplinary roots and highlighted their common philosophical assumptions, principles of success, and explanations for failures. We applied these to an empirical case study of a community-based research-service partnership led by the Centre of Research Excellence in Quality and Safety in Integrated Primary-Secondary Care at the University of Queensland, Australia. Findings Co-creation emerged independently in several fields, including business studies ("value co-creation"), design science ("experience-based co-design"), computer science ("technology co-design"), and community development ("participatory research"). These diverse models share some common features, which were also evident in the case study. Key success principles included (1) a systems perspective (assuming emergence, local adaptation, and nonlinearity); (2) the framing of research as a creative enterprise with human experience at its core; and (3) an emphasis on process (the framing of the program, the nature of relationships, and governance and facilitation arrangements, especially the style of leadership and how conflict is managed). In both the literature review and the case study, co-creation "failures" could often be tracked back to abandoning (or never adopting) these principles. All co-creation models made strong claims for significant and sustainable societal impacts as a result of the adaptive and developmental research process; these were illustrated in the case study. Conclusions Co-creation models have high potential for societal impact but depend critically on key success principles. To capture the nonlinear chains of causation in the co-creation pathway, impact metrics must reflect the dynamic nature and complex interdependencies of health research systems and address processes as well as outcomes.

Patients and staff as codesigners of healthcare services

Abstract: Glenn Robert and colleagues describe an approach that aims to ensure that healthcare organisations realise the full potential of patients—the biggest resource they have for improving the quality of care

Experience-based Co design and Healthcare Improvement: Realising Participatory Design in the Public Sector

Abstract: ABSTRACT Over the last decade, growing attention has been paid to the potential value of design theory and practice in improving public services. Experience-based Co-design (EBCD) is a participatory research approach that draws upon design tools and ways of thinking in order to bring healthcare staff and patients together to improve the quality of care. The co-design process that is integral to EBCD is powerful but also challenging, as it requires both staff and patients to renegotiate their roles and expectations as part of a reconfiguration of the relationships of power between citizens and public services. In this paper, we reflect upon the implementation and adaptation of EBCD in a variety of projects and on the challenges of co-design work within healthcare settings. Our discussion aims to contribute to the growing field of service design and to encourage further research into how co-design processes shape—and are shaped by—the power relations that characterize contemporary public services.

Experience-based Co-design and Healthcare Improvement: Realizing Participatory Design in the Public Sector

Abstract: Over the last decade, growing attention has been paid to the potential value of design theory and practice in improving public services. Experience-based Co-design (EBCD) is a participatory researc...