Showing papers in "Journal of Pediatric Nursing in 2015"
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TL;DR: Nurses under 40 years of age, with 6-10 years of experience and/or working in a medical-surgical unit had significantly lower compassion satisfaction and higher levels of burnout.
147 citations
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TL;DR: The key attributes of engagement, collaboration and empowerment are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.
135 citations
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TL;DR: The feasibility of a 5-minute mindfulness meditation for PICU nurses before each work-shift to investigate change in nursing stress, burnout, self-compassion, mindfulness, and job satisfaction was explored as mentioned in this paper.
120 citations
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TL;DR: A need for hospitals to prevent compassion fatigue in healthcare providers is demonstrated, as stress exposure significantly predicted lower compassion satisfaction and more burnout.
114 citations
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TL;DR: Three of the five studies found that the transition intervention was associated with increased rates of transfer while the other two showed no statistically significant effects, indicating that evaluation of transfer appears to be hindered by methodological challenges.
107 citations
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TL;DR: The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure that provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.
104 citations
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TL;DR: The most distressing situations include requests for aggressive treatments not in child's best interest, poor team communication and lack of provider continuity.
92 citations
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TL;DR: This review gives an overview about the existing research concerning siblings' perspective within the familial experiences of childhood chronic illness and identified a map of dimensions of experiences-well-elaborated as well as fragmentary.
88 citations
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TL;DR: Findings from qualitative studies on children's experience of feeling different when living with the long term conditions; diabetes, epilepsy and asthma revealed three common themes; participation in everyday life-restrictions and adjustments; treatment regimens-constraining and enabling; and communication-disclosure, stigma and support.
83 citations
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University of North Carolina at Chapel Hill1, Wake Forest University2, East Carolina University3, Ohio State University4, Nationwide Children's Hospital5, Carolinas Medical Center6, Panamerican University7, Boston Children's Hospital8, East Tennessee State University James H. Quillen College of Medicine9
TL;DR: The strong validity of the STARx Questionnaire, in tandem with its strong reliability, indicated adequate psychometric properties for this generic self-report measure, which should contribute to it being a viable measure of health care transition for both research and clinical purposes.
73 citations
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TL;DR: Future efforts in managed care will benefit from starting the transition process much earlier (ages 12-14), expanding the role of nurse care managers and participating pediatric and adult-focused clinicians in transition, and offering payment incentives to clinicians to implement the Six Core Elements of Health Care Transition.
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TL;DR: Nurses across five level I or II pediatric trauma centers completed a survey of knowledge, opinions, self-rated competence, and current practice with regard to trauma-informed nursing care, finding the majority considered themselves moderately competent in a range of relevant skills.
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TL;DR: A phenomenological study of 16 mothers of children with Alagille syndrome explored their lived experience in using online health communications to manage their chronic sorrow, suggesting mothers need emotional support and help accessing appropriate online resources.
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TL;DR: Qualitative descriptive analysis of questionnaire free-text comments from children, adolescents and carers participating in DEPICTED identified the emotional impact of living with T1D and how health professionals' communication skills in clinic influence the patient/carer experience.
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TL;DR: This model advances understanding of the moving processes in adolescents transitioning; additionally, hypotheses are presented that may be used for developing interventions to promote success in self-management.
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TL;DR: For young people and their parents/carers to experience timely and effective transition, eight factors and their associated indicators of best practice were developed from the primary and secondary data and refined through an iterative process.
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TL;DR: How the empirical literature on the transition to adulthood for young people with medical complexity can inform nursing and advanced practice nursing is explored to demonstrate a need for an increased focus on the process of transition and transfer for this complex population.
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TL;DR: Empirical-based data are lacking pertaining to the role of providers involved in this specialty area of practice and evidence is hampered by the limitations of the lack of rigorous research designs and methodology.
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TL;DR: Parents, health providers, and community agencies are potentially well-poised to assist transitioning YASHCN and efforts to encourage development of strong advocacy skills will facilitate better transitions.
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TL;DR: This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs.
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TL;DR: The majority of intervention programs demonstrated improvement in child BMI, however intervention programs did not reach families of diverse race/ethnicity, were provided by highly trained professionals, and demonstrated high attrition, thus limiting generalizability.
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TL;DR: How family functioning may contribute to trace a child's illness trajectory is explored and clinical interventions should involve the whole family and take into account their role in the construction of illness trajectories.
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TL;DR: This longitudinal mixed methods study evaluates the implementation and the outcomes of independent split-visit consultations and individual transition plans by 22 hospital teams participating in the Dutch Action Program 'On Your Own Feet Ahead!'
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TL;DR: African American, public or no insurers, previous admission and complex chronic comorbidity were identified as risk factors associated with pediatric asthma readmission, however, more interdisciplinary and well-designed investigations are warranted to further explicate the spectrum of environmental and psychosocial correlates.
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TL;DR: Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement.
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TL;DR: The use of preoperative clown intervention may alleviate postoperative problems, not only for children, but also for their parents.
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TL;DR: Despite the small sample size, the "Movin' Out" Transitioning Protocol appears to be useful in guiding the transition process of adolescents/young adults with HIV infection to adult care.
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TL;DR: A systematic review of 31 research articles focusing on transitional care for adolescents or emerging adults with diabetes or prediabetes was completed and major findings include differences in pediatric versus adult care delivery and the importance of structured transitional programs using established recommendations of leading national organizations.
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TL;DR: The final modes of the hierarchical regression explained 29-48% of the variance in aspects of family management and more family support should be provided for those with low family income, children with renal and genetic disorders and rheumatic diseases and those living in rural areas.
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TL;DR: A structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care in the transfer from pediatric to adult care.