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Journal ArticleDOI

Children with autism: quality of life and parental concerns.

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TLDR
Parental concerns over learning difficulty, being bullied, stress-coping, and achievement were overwhelming in the autism group relative to the comparison groups.
Abstract
Past research has shown that children with autism and their families have compromised quality of life (QOL) in several domains. This study examined QOL and parental concerns in children with autism during early childhood, childhood, and adolescence compared to children with Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder (ADD/ADHD) and to typical controls from a US national sample. Families with children diagnosed with autism reported more profound QOL effects than families of children with ADD/ADHD or unaffected controls. Children with autism were significantly less likely to attend religious services, more likely to miss school, and less likely to participate in organized activities. Parental concerns over learning difficulty, being bullied, stress-coping, and achievement were overwhelming in the autism group relative to the comparison groups.

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Citations
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Journal ArticleDOI

Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation

TL;DR: It cannot be assumed that even significant improvements in the diagnosed child will ameliorate the parent and family distress already present, especially as the time and expense of intervention can add further family disruption.

The economic burden of childhood autism spectrum disorders

TL;DR: The economic burden associated with ASD is substantial and can be measured across multiple sectors of the authors' society, particularly for school systems.
Journal ArticleDOI

Economic Burden of Childhood Autism Spectrum Disorders

TL;DR: In this paper, the authors estimate the associations between autism spectrum disorder (ASD) diagnoses and service use, caregiver time, and cost outcomes using national data from the Medical Expenditure Panel Survey linked to the National Health Interview Survey and a study-specific survey to estimate the annual utilization and costs for health care, school, ASD-related therapy, family-coordinated services, as well as caregiver times in children aged 3 to 17 years, with and without parent-reported ASD.
Journal ArticleDOI

Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders

TL;DR: The number of children in the family was associated with greater stress, and reduced relational quality and daily uplifts, and policymakers and practitioners should develop supports for providing respite for families raising children with ASD.
Journal ArticleDOI

Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD).

TL;DR: Researchers found that parents of children with ASD reported significantly more parenting stress symptoms, more depression symptoms, and more frequent use of Active Avoidance coping, than parents of typically developing children.
References
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Journal ArticleDOI

Adult outcome for children with autism

TL;DR: Although outcome for adults with autism has improved over recent years, many remain highly dependent on others for support and more fine-grained research is needed into the childhood variables that are associated with good or poor outcome.
Journal Article

Epidemiology of autistic disorder and other pervasive developmental disorders.

TL;DR: Data from many of these surveys indicate correlates of autistic disorder and other PDDs with IQ, gender, and other medical disorders, particularly changes in case definition and case identification over time.
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Preschool children with attention-deficit/hyperactivity disorder: impairments in behavioral, social, and school functioning.

TL;DR: Preschool-age children with ADHD are at significant risk for behavioral, social, familial, and academic difficulties relative to their normal counterparts.
Journal ArticleDOI

Behavior Problems and Parenting Stress in Families of Three-Year-Old Children With and Without Developmental Delays

TL;DR: Regression analyses revealed that the extent of child behavior problems was a much stronger contributor to parenting stress than was the child's cognitive delay.
Journal ArticleDOI

Conceptualization, Measurement, and Application of Quality of Life for Persons With Intellectual Disabilities: Report of an International Panel of Experts

TL;DR: The article reflects current thought about the conceptualization, measurement, and application of this increasingly important and widely used concept in the field of intellectual disabilities and sets the stage for its continuing development.
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