Groupes fratries comme dispositifs d’accompagnement des frères et sœurs d’enfants porteurs de handicap et/ou maladie : une revue de la littérature

Abstract: La transition entre la pediatrie et la medecine pour adultes est une periode charniere pour les adolescents et jeunes adultes porteurs d’une maladie chronique : elle comporte un fort risque de rupture du parcours de soins et de degradation de l’etat de sante a court et long termes. Pour accompagner ce passage, plusieurs plateformes de transition ont ete creees ces dernieres annees en France, dans des hopitaux pediatriques ou dans les hopitaux pour adultes. Leur objectif commun est d’etre un lieu ressource offrant un accueil physique des jeunes et de leurs parents autour des questions liees a cette transition, ainsi qu’un acces aux informations utiles a leurs besoins de sante globale. Elles travaillent en partenariat etroit avec les services de soins et les associations de patients. Une forte heterogeneite de fonctionnement et d’offre de soins est observee dans ces structures encore recentes, qu’il convient de multiplier et de perenniser. Le principal defi a relever dans les prochaines annees est de renforcer les partenariats entre pediatrie et hopitaux pour adultes afin de baliser au mieux le parcours de soin des jeunes porteurs d’une maladie chronique.

Abstract: Background Siblings of children with autistic spectrum disorder (ASD) express more problem behaviours and experience more difficulties in their relationships than do children in families where all ...

Abstract: Siblings of children with developmental disabilities were assessed twice, 2 years apart (N = 75 at Time 1, N = 56 at Time 2). Behavioral adjustment of the siblings and their brother or sister with developmental disability was assessed. Comparisons of adjustment for siblings of children with autism, Down syndrome, and mixed etiology mental retardation failed to identify group differences. Regression analysis showed that the behavior problems of the child with developmental disability at Time 1, but not the change in their behavior over time, predicted sibling adjustment over 2 years. There was no evidence that this putative temporal relationship operated bidirectionally: sibling adjustment did not appear to be related to the behavior problems of the children with developmental disabilities over time.

Abstract: Aim: Chronic illness or disability in children can have a deleterious effect on the psychosocial health of well siblings. This systematic review synthesised evidence from studies evaluating sibling-oriented care aimed at improving behavioural and emotional outcomes in well siblings of children with chronic illness or disability. Methods: Twenty electronic databases were searched. Study selection, data extraction and assessment of methodological quality were performed by two independent reviewers. Results: Five controlled and nine uncontrolled studies were included. In higher-quality controlled trials, benefits of sibling-oriented care included reduced anxiety, improved mood and behavioural adjustment; however, these findings were not consistently demonstrated across studies. Study differences made it difficult to determine which sibling care features were most salient. Conclusions: Study findings highlight the potential for enhancing emotional and behavioural outcomes in well siblings. Future evaluations need to clearly identify the intended purpose of the care (what improvements are intended) and which types of siblings are most likely to benefit. This approach may yield more consistent and clinically important results.

Abstract: Both the population of siblings of youth with developmental disabilities (DDs) and the popularity of clinical services designed for these youth are on the rise. However, the research base for such services has yet to be evaluated. A systematic review of studies on intervention and support for siblings of youth with DDs was conducted in order to evaluate the current state of the literature and provide recommendations for research and practice. Sixteen articles were selected and reviewed in terms of their experimental design, participant characteristics, measurement, intervention or support group protocol, outcomes, and dissemination of findings. Results indicate substantial variability in both methodology and outcomes across sibling-focused intervention and support group studies, which put the overall effects and utility of these services into question. Recommendations for future research are outlined, with a focus on advancing a more systematic and careful approach to asking and effectively answering questions about siblings, their families, and meaningful services for both.

Abstract: Research studies have shown the importance of early intervention services for young children with autism spectrum disorders (ASD) and their families. However, most attention has been given to the effectiveness of treatments solely for children with ASDs. Because the family centered practice has been emphasized and supported by many researchers and legislation, involving family members other than children with ASDs and their parents in the assessing, planning, and implementing interventions is seen as crucial. The purpose of this article is to review what sibling relationships look like for a typically developing sibling of a child with an ASD and what resources are available for parents and specialists to support siblings of children with ASDs.