Journal ArticleDOI
"Live It to Understand It": The Experiences of Mothers of Children With Autism Spectrum Disorder
David Nicholas,Lonnie Zwaigenbaum,Stanley Ing,Radha MacCulloch,Wendy Roberts,Patricia McKeever,Carly A. McMorris +6 more
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TLDR
Analysis yielded themes that depicted the following: redefining child and family aspirations, forging a shifted identity, and the need to “live it” to understand mothering a young person with ASD.Abstract:
Mothers of children with an autism spectrum disorder (ASD) variably experience challenges in their caregiving role. This ethnographic study examined the caregiving experiences of mothers of a young person with ASD (aged ≤25 years). Semistructured interviews were conducted with 85 mothers across three Canadian regions. A follow-up subsample of 10 mothers took part in participant observation sessions in the home and/or other environments within the community. Analysis yielded themes that depicted the following: redefining child and family aspirations, forging a shifted identity, and the need to "live it" to understand mothering a young person with ASD. Supports and services were perceived to be required but often insufficient to meet the needs. Findings identify a range of challenges, lessons learned, and a reconfigured sense of mothering. An emerging model of mothering a child with ASD is presented. Implications for practice, policy, and research are offered.read more
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Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder
Sarah Gregor,Nicole Bruni,Petar Grkinic,Lindsey Schwartz,Aimee McDonald,Patricia Thille,Sharon Gabison,Barbara E. Gibson,Patrick Jachyra,Patrick Jachyra +9 more
TL;DR: A family-centred, multidisciplinary collaborative approach that includes health care practitioners such as physical therapists can potentially be used to facilitate physical activity participation to help parents balance family life, schooling, and therapies with PA.
Journal ArticleDOI
Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders : Comparing Single Versus Coupled Households
TL;DR: It was found that single mothers were 1.05 times more likely to report lower levels of environmental QoL and to use acceptance coping style, but this association did not persist after adjusting for total number of children, household income and employment status.
Journal ArticleDOI
The complexities and synergies of engagement: an ethnographic study of engagement in outpatient pediatric rehabilitation sessions
Gillian King,Gillian King,Lisa A. Chiarello,Roger Ideishi,Jenny Ziviani,Michelle Phoenix,Michelle Phoenix,Matthew J. W. McLarnon,Madhu Pinto,Laura Thompson,Eric Smart +10 more
TL;DR: Investigation of client (youth/caregiver) and service provider engagement in outpatient pediatric rehabilitation therapy sessions found engagement ties two pivotal elements – positive expectations and positive affect – to positive relationships, collaboration, and therapy progress.
Journal ArticleDOI
Challenges in Primary Care Regarding Children and Adolescents With Chronic Conditions in Brazil.
Elenice Maria Cecchetti Vaz,Neusa Collet,Emília Gallindo Cursino,Franklin Dellano Soares Forte,Nathanielly Cristina Carvalho de Brito Santos,Gabriel Pereira Reichert,Vanessa Medeiros da Nóbrega,Altamira Pereira da Silva Reichert +7 more
TL;DR: A scarcity of specialists for referrals and a lack of professional training for dealing with this specific group of patients mean that the health needs of this population must be addressed and the operational structure of the health care network must be strengthened.
Journal ArticleDOI
Parents’ Perceptions of Access to Services for Their Adult Children Diagnosed With Autism Spectrum Disorder:
TL;DR: Based on parent perceptions, services were inconsistently accessible, difficult to obtain, and inadequate across multiple types of services needed for adults with ASD.
References
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Book
The long interview
TL;DR: The Four-Step Method of Inquiry Quality Control The Writing-Up Process Managing Qualitative Research Conclusion as discussed by the authors The four-step method of inquiry quality control is used in this paper.
Book
Doing Naturalistic Inquiry: A Guide to Methods
TL;DR: A Posture Toward Research The Need for a New Paradigm The Process of Inquiry Some Basic Considerations Getting Started on the Study Designing a Naturalistic Inquiry Gathering Data Data Data Analysis Quality Criteria for a naturalistic Study Preparing the Report
Book
Participant Observation: A Methodology for Human Studies
TL;DR: The Methodology of Participant Observation The Process of Defining a Problem Gaining Entree to a Setting Participating in Everyday Life Developing and Sustaining Field Relationships Observing and Gathering Information Notes, Records, and Files Analyzing and Theorizing Leaving the Field and Communicating Results
Journal ArticleDOI
The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder.
TL;DR: Comparisons between families of children of ASD and families with other disabilities also generated a large effect size however, this result should be interpreted with caution as it may be associated with the specific experience of parenting a child with DS.
Journal ArticleDOI
Depression in mothers and fathers of children with intellectual disability
Malin B. Olsson,C. P. Hwang +1 more
TL;DR: Parental depression was assessed using the Beck Depression Inventory (BDI) in 216 families with children with autism and/or intellectual disability (ID), and in 214 control families and single mothers of children with disabilities were found to be more vulnerable to severe depression.