Outcomes from the Body & Soul Clinical Trials Project: A university-church partnership to improve African American enrollment in a clinical trial registry
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TLDR
A culturally tailored education program about CTs can increase enrollment of African Americans in a university-based clinical trials registry and improve minority CT enrollment over time.About:
This article is published in Patient Education and Counseling.The article was published on 2015-02-01 and is currently open access. It has received 19 citations till now.read more
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Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review.
TL;DR: In this article, the authors provide an update since a systematic review in 2012, on the current status of the empirical research, with a particular focus on the elements of CBPR methods used to improve the rate of accrual of members of racial and ethnic minority communities for clinical trials.
Journal ArticleDOI
Exploring Willingness to Participate in Clinical Trials by Ethnicity
TL;DR: Results indicate that African-American and Hispanic-American participants have more negative attitudes about clinical trials, more distrust toward doctors, more interest in complementary and alternative medicine, and less willingness to participate in clinical trials than white/non-Hispanics, although specific factors affecting willingness to participation vary.
Journal ArticleDOI
Factors associated with biomedical research participation within community-based samples across 3 National Cancer Institute-designated cancer centers.
Nadine J. Barrett,Elisa M. Rodriguez,Ronaldo Iachan,Terry Hyslop,Kearston L. Ingraham,Gem M. Le,Kelly Martin,Rodney C. Haring,Natalie A. Rivadeneira,Deborah O. Erwin,Laura J. Fish,Deirdre Middleton,Robert A. Hiatt,Steven R. Patierno,Urmimala Sarkar,Elizabeth A. Gage-Bouchard +15 more
TL;DR: This study examined factors associated with an invitation to participate in biomedical research, intent to participateIn biomedical research in the future, and participation in biomedicalResearch and biospecimen donation among a diverse, multilingual, community‐based sample across 3 distinct geographic areas.
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Culturally tailored interventions for ethnic minorities: A scoping review.
Jee Young Joo,Megan F. Liu +1 more
TL;DR: The strengths and weakness of culturally tailored interventions for ethnic minorities’ care in the United States are identified and recently published studies are reviewed to improve understanding of these interventions for future research and practice.
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Trust in national health information sources in the United States: comparing predictors and levels of trust across three health domains.
TL;DR: Data from two cycles of the National Cancer Institute's Health Information National Trends Survey collected in 2015 and 2017 were merged and analyzed and found that those higher in information seeking confidence were more likely to report high trust across all models.
References
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Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review.
Jean G. Ford,Mollie W. Howerton,Gabriel Y. Lai,Tiffany L. Gary,Shari Bolen,M. Chris Gibbons,Jon C. Tilburt,Charles Baffi,Teerath Peter Tanpitukpongse,Renee F Wilson,Neil R. Powe,Eric B Bass +11 more
TL;DR: The results indicated that underrepresented populations face numerous barriers to participation in cancer‐related trials, and the available evidence had limitations in quality regarding representativeness, justification of study methods, the reliability and validity of data‐collection methods, potential for bias, and data analysis.
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Attitudes about Racism, Medical Mistrust, and Satisfaction with Care among African American and White Cardiac Patients
TL;DR: Multivariate analysis found that the perception of racism and mistrust of the medical care system led to less satisfaction with care and when perceived racism and medical mistrust were controlled, race was no longer a significant predictor of satisfaction.
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Are racial and ethnic minorities less willing to participate in health research
David Wendler,Raynard Kington,Jennifer H. Madans,Gretchen Van Wye,Heidi Christ-Schmidt,Laura A. Pratt,Otis W. Brawley,Cary P. Gross,Ezekiel J. Emanuel +8 more
TL;DR: These findings, based on the research enrollment decisions of over 70,000 individuals, the vast majority from the US, suggest that racial and ethnic minorities in the US are as willing as non-Hispanic whites to participate in health research.
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Why ethnic minority groups are under‐represented in clinical trials: a review of the literature
TL;DR: A narrative review of the available literature, based mainly on US studies, aims to make sense of the issues around under-representation by providing a theoretical reconciliation and offers a number of strategies for improving ethnic minority accrual rates in clinical trials.