Journal ArticleDOI
Peer Support Needs of Adolescents with Cancer in Pediatrics: A Canadian Mixed Methods Study.
Danielle R Weidman,Philippe Desmarais,Katye Stevens,Christopher A Klinger,Heather Colquhoun,Jacqueline L. Bender,Jacqueline L. Bender,Abha A. Gupta +7 more
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TLDR
In this paper, a mixed methods study aimed to characterize peer support needs of adolescents with cancer during or shortly after treatment, and found that participants felt incompletely understood by existing supports, lacked connection with other adolescents, and craved experiential information.Abstract:
Adolescents with cancer (AWC) in pediatrics may not have adequate opportunities for peer support. This mixed methods study aimed to characterize peer support needs of AWC during or shortly after treatment. Ten AWC with median age 16.5 (range 14-18) years completed a survey and semistructured interview. Three themes were apparent: cancer journey difficulties, current support system, and peer support perspectives. Participants felt incompletely understood by existing supports, lacked connection with other AWC, and craved experiential information. Peer support interventions should be flexible, facilitate various interactions, and include social media. The next step is to implement and evaluate an intervention.read more
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Peer Support Perspectives of Parents of Adolescents with Cancer in Pediatrics.
Danielle R. Weidman,Sandy Che Eun S. Lee,Philippe Desmarais,Katye Stevens,Christopher A Klinger,Heather Colquhoun,Jacqueline L. Bender,Abha A. Gupta +7 more
TL;DR: Interventions should focus on peer support for AWC, while also incorporatingpeer support for parents, and four themes were identified: cancer journey challenges; emotions, reactions, and coping; personal support preferences; and AWC's support needs.
References
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Virginia Braun,Victoria Clarke +1 more
TL;DR: Thematic analysis is a poorly demarcated, rarely acknowledged, yet widely used qualitative analytic method within psychology as mentioned in this paper, and it offers an accessible and theoretically flexible approach to analysing qualitative data.
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Michelle O’Reilly,Nicola Parker +1 more
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TL;DR: This article offers one theoretical perspective of peer support and attempts to define the elements that, when reinforced through education and training, provide a new cultural context for healing and recovery.
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Psychological, Social, and Behavioral Issues for Young Adults With Cancer*
TL;DR: Psychosocial and behavioral interventions for young adult cancer patients and survivors often involve assisting these individuals in retaining or returning to function in significant social roles, such as spouse, parent, student, worker, or friend.
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Brief assessment of adult cancer patients' perceived needs: development and validation of the 34‐item Supportive Care Needs Survey (SCNS‐SF34)
TL;DR: The SCNS-SF34 is a valid instrument for measuring cancer patients' perceived needs across a range of domains, and could be utilized as part of routine cancer care.