Sobre a morte e o morrer
01 Sep 2013-Ciencia & Saude Coletiva (ABRASCO - Associação Brasileira de Saúde Coletiva)-Vol. 18, Iss: 9, pp 2781-2782
About: This article is published in Ciencia & Saude Coletiva.The article was published on 2013-09-01 and is currently open access. It has received 206 citations till now.
Citations
More filters
TL;DR: It was observed that the diagnosis of a chronic illness generates a multiplicity of feelings, moving through narratives of complications and death events shared between generations, influencing their habits, health care practices and quality of life.
Abstract: Diabetes mellitus is one of the most serious chronic illnesses in the world due to its prevalence, economic and social effects, and negative impact on the quality of life of the affected people. The diagnosis implies changes in life habits especially related to feeding, physical activity, and constant self-care, requiring greater personal autonomy. This study aims to understand how individuals living with diabetes deal with the recognition of the chronic condition in their health care practices. This is a participatory research with a qualitative approach focusing on reflexivity. Sixteen people with diabetes mellitus were intentionally chosen, and qualified to participate in the study. The selected methodology allowed the constitution of life stories and focused on the multiple ways human beings deal with their illnesses. The participants attended eight closed group meetings, with an specific methodology which benefited them to retrieve their own history as well as the multiple experiences to deal with the disease, here called Strategic Health Promotion Group (SHPG). The data produced and the dialogue between researcher and researched subjects were related to three major thematic perspectives: I) recognizing diabetes II) living with diabetes III) exercising personal autonomy. This work contains the meanings attributed to the Perspective I from which the following three categories emerged: The impact of the diagnosis, the denial of the illness, and the acceptance of the illness. It was observed that the diagnosis of a chronic illness generates a multiplicity of feelings, moving through narratives of complications and death events shared between generations. The participants expressed feelings related to denial or acceptance of the chronic condition which required an active adaptation exercising. From the current diagnosis, it was observed that new signs were added to the person’s existence, influencing their habits, health care practices and quality of life. The emotional aspects of subjects diagnosed with diabetes mellitus strongly influence the acceptance or denial of the illness, interfering in their personal adherence to treatment. As a chronic condition, involving life-longing care practices, which intervenes in therapeutic participation, it is indispensable to respect and to encourage the personal autonomy of the subjects.
55 citations
Cites methods from "Sobre a morte e o morrer"
...In the context of acceptance, denial, and the impact of diagnosis, we can describe the stages of mourning explained by Elisabeth Kubler-Ross [20] in her book “On Death and Dying”: denial, anger, bargaining, depression and acceptance....
[...]
01 Jan 2013
TL;DR: This paper is an exploratory and descriptive field research with a qualitative approach, aimed at describing the changes in the daily life of stomized people and identify their ways of coping with their illness.
Abstract: This paper is an exploratory and descriptive field research with a qualitative approach, aimed at describing the changes in the daily life of stomized people and identify their ways of coping with their illness. The sample consisted of individuals with a permanent intestinal stoma for at least two years and who were enrolled in the Multidisciplinary Assistance Program for Stomized Patients (PAMPO in Portuguese). Semistructured interviews were used, to collect data, which were recorded and later transcribed verbatim, producing a text for content analysis, as proposed by Laurence Bardin. Most colostomized individuals made changes in their way of life after the stoma creation, such as physical, psychological, and social changes caused by the loss of sphincter control and changes in body image, which led to the need to adopt strategies to adapt to new circumstances. Some people adapted well to these changes, while others had difficulties in dealing with such changes, resulting in psychological and physiological imbalances. Therefore, the adjustment or not to the problem stressors, in this case the creation of the stoma, influence the quality of life of stomized individuals. It is commonly observed that shortly after undergoing a surgical process, patients become enormously involved with taking great care of themselves, which they did not feel confident enough to do before. This is due to the aid offered by nursing care. It is also important to note that it is the nurse’s role to intervene exclusively in the perioperative period, aimed at achieving the best possible adaptation for stomized individuals, encouraging the patient to face the chronic and permanent intestinal stoma, which demands continuous and long-term care from both the healthcare group and the interdisciplinary team.
31 citations
01 Jan 2013
TL;DR: In this paper, an exploratory and descriptive field research with a qualitative approach, aimed at describing the changes in the daily life of stomized people and identifying their ways of coping with their illness.
Abstract: This paper is an exploratory and descriptive field research with a qualitative approach, aimed at describing the changes in the daily life of stomized people and identify their ways of coping with their illness. The sample consisted of individuals with a permanent intestinal stoma for at least two years and who were enrolled in the Multidisciplinary Assistance Program for Stomized Patients (PAMPO in Portuguese). Semistructured interviews were used, to collect data, which were recorded and later transcribed verbatim, producing a text for content analysis, as proposed by Laurence Bardin. Most colostomized individuals made changes in their way of life after the stoma creation, such as physical, psychological, and social changes caused by the loss of sphincter control and changes in body image, which led to the need to adopt strategies to adapt to new circumstances. Some people adapted well to these changes, while others had difficulties in dealing with such changes, resulting in psychological and physiological imbalances. Therefore, the adjustment or not to the problem stressors, in this case the creation of the stoma, influence the quality of life of stomized individuals. It is commonly observed that shortly after undergoing a surgical process, patients become enormously involved with taking great care of themselves, which they did not feel confident enough to do before. This is due to the aid offered by nursing care. It is also important to note that it is the nurse’s role to intervene exclusively in the perioperative period, aimed at achieving the best possible adaptation for stomized individuals, encouraging the patient to face the chronic and permanent intestinal stoma, which demands continuous and long-term care from both the healthcare group and the interdisciplinary team.
28 citations
29 Mar 2016
TL;DR: In this paper, the authors present the results of a study of the narratives of six people who were involved in the routine of the palliative care unit at the Hospital de Apoio de Brasilia, with the aim of contributing to the study of complex problems faced by Palliative Care in daily practice.
Abstract: Palliative care, spirituality and narrative bioethics in a Specialized Health Care Unit Through narrative bioethics, this article presents the results of a study of the narratives of six people di rectly involved in the routine of the palliative care unit at the Hospital de Apoio de Brasilia, with the aim of contributing to the study of the complex problems faced by palliative care in daily practice. Focusing on the relationship between spirituality and bioethics, interviews with professionals, patients and families were conducted, seeking answers to the question of the meaning of life and its relationship to suffering. It was con cluded that narrative bioethics applied to palliative care can provide important input to clarify issues related to the understanding of the spiritual realm by providing analytical frameworks that take into account human beings which express, feel, say and make sense of what is said.
25 citations
16 Sep 2013
TL;DR: In this article, a qualitative study was conducted to assess the psychological inter-vention in situations of perinatal grief and found that intensive psychological work of mourning suffered by families still receives little support from social institutions, and health psychology can play a key role along with these families to prevent future trauma, to avoid pathological mourning and remedial pregnancies.
Abstract: This study was based on qualitative methodology in order to know the meaning of perinatal loss to the bereaved families and assess the psychological inter- vention in situations of perinatal grief. Five families participated in this study who ex- perienced perinatal deaths, a maternity of Brasilia. The psychological record of the psychology of maternity and post-assessment interview death were used as instru- ments. From the analysis of Bardin (1977), which emerged five categories, namely: history of pregnancy, parents before her son's death, desire to repair, to bid farewell to the baby, and evaluation of the psychology service in the situation of mourning. The results showed that intensive psychological work of mourning suffered by families still receives little support from social institutions, and health psychology can play a key role along with these families in order to prevent future trauma, to avoid pathological mourning and remedial pregnancies.
25 citations
References
More filters
TL;DR: Oncologists, oncology trainees, and medical students who have been taught the protocol have reported increased confidence in their ability to disclose unfavorable medical information to patients.
Abstract: We describe a protocol for disclosing unfavorable information—“breaking bad news”—to cancer patients about their illness. Straightforward and practical, the protocol meets the requirements defined by published research on this topic. The protocol (SPIKES) consists of six steps. The goal is to enable the clinician to fulfill the four most important objectives of the interview disclosing bad news: gathering information from the patient, transmitting the medical information, providing support to the patient, and eliciting the patient’s collaboration in developing a strategy or treatment plan for the future. Oncologists, oncology trainees, and medical students who have been taught the protocol have reported increased confidence in their ability to disclose unfavorable medical information to patients. Directions for continuing assessment of the protocol are suggested. The Oncologist 2000;5:302-311
2,181 citations