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Open accessJournal ArticleDOI: 10.1080/20473869.2019.1603730

Spirituality as a coping method for mothers of children with developmental disabilities

04 Mar 2021-International journal of developmental disabilities (Taylor & Francis)-Vol. 67, Iss: 2, pp 112-120
Abstract: Mothers of children with developmental disabilities suffer from tremendous stress and anxiety. These mothers may use religion and spirituality as coping mechanisms to help them adjust to changes em...

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Topics: Coping (psychology) (67%), Anxiety (54%)
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Journal ArticleDOI: 10.1016/J.RIDD.2020.103849
Abstract: Background Everyday occupations refer to activities that people do associated with their roles, to bring meaning and purpose to life. The occupations of non-Asian mothers of children with disabilities have been well-documented but less is known about the occupations of East Asian mothers. Aims This scoping review described the everyday occupations of East Asian mothers who have children with disabilities. Methods A well-documented five-stage framework was utilised, guided by PRISMAScR. A search was conducted across five data bases for peer-reviewed research between 2008–2020, which informed the occupations of mothers living in China, Hong Kong, Taiwan, Japan, Korea and Vietnam. Results Thirty-two articles met criteria, of which twenty-nine were qualitative studies and three were mixed-methods studies. 415 mothers were represented. The themes were: doing, roles, volitional components and processes, cultural values and practices, environmental enablers, barriers and transformation, which provided rich description of various aspects of occupations of East Asian mothers, who have children with disabilities. Conclusions The everyday occupations of East Asian mothers who have children with disabilities were shaped by their cultural values. This review provided insights into mothers’ activity choices and valued roles, which highlighted for practitioners in disability services, the importance of cultural awareness and sensitivity when supporting East Asian mothers and their families.

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Topics: Cultural competence (51%)

3 Citations


Journal ArticleDOI: 10.1007/S11136-021-02994-Z
Abstract: Family Quality of Life (FQOL) is an important outcome for families of children with disabilities and is influenced by context and culture. Minimal research explores FQOL in African contexts. This scoping review identifies factors contributing to FQOL for families of children with disabilities in African contexts. We were guided by Arksey and O’Malley’s scoping review framework, searching for research papers from the following electronic databases: CINAHL, Embase, Medline, Global Health, and PsycINFO. Using pre-determined eligibility criteria, two authors independently reviewed articles for inclusion via Covidence, a reference manager that facilitates blind reviewing. Two other authors independently extracted data from studies using a data-charting form based on Zuna and colleagues’ FQOL framework. Reviewers met regularly for discussion to reach consensus. Fifty-three articles met the inclusion criteria, and findings demonstrated a broad variety of factors contributing to FQOL within the FQOL framework related to family unit factors, individual member factors, and external support factors. We found that poverty, stigma, and spirituality were particularly prominent factors affecting FQOL negatively and positively in African contexts. Whilst there are universal factors that contribute to FQOL, recognising the influence of context-specific factors (i.e. poverty, stigma, spirituality) is important in order to provide effective, culturally relevant support that enhances FQOL for families of children with disabilities in African contexts.

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1 Citations



Open accessJournal ArticleDOI: 10.21608/JSH.2021.189460
Abstract: الملخص: هدف البحث إلى تحديد مستويات الإجهاد الوالدي لدى أمهات ذوي الإعاقة العقلية، وذوي اضطراب طيف التوحد، وذوي الشلل الدماغي في مرحلتي الطفولة والمراهقة، والتعرف على استراتيجيات التکيف المختلفة المستخدمة لمواجهة الإجهاد الوالدي في ضوء بعض المتغيرات الديموجرافية، وذلک من خلال دراسة وصفية مقارنة على عينة من (150) من أمهات الأطفال ذوي الإعاقة، وأعتمد البحث على مقياس الإجهاد الوالدي ( إعداد بيري وجونز ، 1995)، الصورة المختصرة لبطارية التکيف مع الإجهاد( إعداد کارفر، 1997)، وخرج البحث بالعديد من النتائج والتي من أهمها وجود علاقة ارتباطية ذات دلالة احصائية بين مستويات الإجهاد الوالدي واستراتيجيات التکيف لدى أمهات ذوي الإعاقة، وجود فروق ذات دلالة احصائية بين متوسطات درجات الإجهاد الوالدي لدى أمهات ذوي الإعاقة تبعا لنوع الإعاقة لصالح أمهات ذوي الشلل الدماغي، وجود فروق ذات دلالة احصائية بين متوسطات درجات استراتيجيات التکيف لدى أمهات ذوي الإعاقة تبعا لنوع الإعاقة، وجود فروق ذات دلالة احصائية بين متوسطي درجات الإجهاد الوالدي لدى أمهات ذوي الإعاقة تبعا للمرحلة العمرية للإبن لصالح مرحلة المراهقة. ووجود فروق ذات دلالة إحصائية بين متوسطي درجات التکيف نحو المشکلة لدى أمهات ذوي الإعاقة لصالح مرحلة الطفولة، وبين متوسطي درجات التکيف الديني لصالح مرحلة المراهقة، ووجود فروق ذات دلالة إحصائية بين متوسطات درجات الإجهاد الوالدي لدى أمهات ذوي الإعاقة تبعا لمستوى تعليم الأمهات لصالح الأمهات ذوات التعليم المنخفض ، ووجود فروق في استخدام استراتيجيات التکيف نحو المشکلة لصالح الأمهات ذوات المستوى التعليمي المرتفع، وفي استخدام استراتيجيات التکيف الديني، والتکيف بالفکاهة لصالح الأمهات ذوات المستوى التعليمي المنخفض، وکشف البحث عن امکانية التنبؤ بالإجهاد الوالدي لدى أمهات ذوي الإعاقة بمعلومية درجاتهم على استراتيجيات التکيف، وأوصى البحث بضرورة تطوير برامج الدعم النفسي الفردية المقدمة لأسر ذوي الإعاقة، ودعم الکفاءة الذاتية للأمهات. Abstract: The current research aims to determine the stress levels of mothers of people with mental disabilities, people with autism spectrum disorder, and those with cerebral palsy with mental disability, in the stages of childhood and adolescence , identify the different coping strategies used to confront parental stress In view of some demographic. The study belongs to comparative descriptive type of studies and applies the Parental Stress Scale (Perry & Jones, 1995), Brief-COPE Inventory (Carver, 1997), and included (150) mothers of children and adolescents with disabilities. The study reached several conclusions; the most important of them was presence of statistically significant correlation between parental stress levels and coping strategies of mothers, Presence of statistically significant differences between the averages of parental stress scores for mothers according to the type of disability, presence of statistically significant differences between the averages the degrees of coping strategies of mothers according to the type of disability, presence of statistically significant differences between the mean degrees of parental stress and use of coping strategies among mothers according to the age of the son, presence of statistically significant differences between the mean degrees of parental stress and use of coping strategies among mothers according to the education level of mothers, It is possible to predict parental stress among mothers given their scores on coping strategies. The research recommended the necessity to develop individual psychological support programs provided to families of people with disabilities, and to support the self-efficacy of mothers.

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Journal ArticleDOI: 10.1016/J.RASD.2021.101847
U. Cevik Guner1, U. Günay2, M. Demir Acar1Institutions (2)
Abstract: Background The use of CAMs is increasing in the pediatric population with chronic diseases. Culture may affect parents' choice of CAM. This study was conducted to determine the prevalence of using complementary and alternative medicines (CAMs) in children with Autism Spectrum Disorder (ASD) in Turkey and to evaluate their parents’ these practices and opinions on them. Method This exploratory and descriptive study was conducted between January and May 2019 with parents of 109 ASD children living in a province in Turkey. The data were collected using a “Socio-demographic information form” and a “Self-report form about CAM usage.” Numbers, percentages, and chi-square analysis were used to analyze the data. Results It was found that 67.0 % of 109 children with autism used CAMs. It was determined that a total of 12 CAMs were used, and the most popular CAM therapy was spiritual relaxation techniques (prayers) (69.8 %), followed by probiotic supplements (49.3 %), vitamin supplements (38.4 %), equine-assisted therapy (34.2 %), music therapy (31.5 %), gluten-free diets(27.4 %). It was reported that CAM therapies had positive effects on children’s communication, behavior, learning, and health. Conclusions The study found that more than half of the Turkish parents with children with autism used CAM therapies. Healthcare providers should be aware of the high prevalence of using CAMs in children with ASD and inform parents about CAMs through regular and continuous training programs based on evidence-based practices.

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Topics: Autism (55%), Autism spectrum disorder (51%)
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Journal ArticleDOI: 10.1191/1478088706QP063OA
Virginia Braun1, Victoria Clarke2Institutions (2)
Abstract: Thematic analysis is a poorly demarcated, rarely acknowledged, yet widely used qualitative analytic method within psychology. In this paper, we argue that it offers an accessible and theoretically flexible approach to analysing qualitative data. We outline what thematic analysis is, locating it in relation to other qualitative analytic methods that search for themes or patterns, and in relation to different epistemological and ontological positions. We then provide clear guidelines to those wanting to start thematic analysis, or conduct it in a more deliberate and rigorous way, and consider potential pitfalls in conducting thematic analysis. Finally, we outline the disadvantages and advantages of thematic analysis. We conclude by advocating thematic analysis as a useful and flexible method for qualitative research in and beyond psychology.

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77,018 Citations


Open accessBook
01 Jan 1989-
Abstract: IN THIS SECTION: 1.) BRIEF 2.) COMPREHENSIVE BRIEF TABLE OF CONTENTS: Chapter 1: Introduction Chapter 2: Designing Qualitative Research Chapter 3: Ethical Issues Chapter 4: A Dramaturgical Look at Interviewing Chapter 5: Focus Group Interviewing Chapter 6: Ethnographic Field Strategies Chapter 7: Action Research Chapter 8: Unobtrusive Measures in Research Chapter 9: Social Historical Research and Oral Traditions Chapter 10: Case Studies Chapter 11: An Introduction to Content Analysis Chapter 12: Writing Research Papers: Sorting the Noodles from the Soup COMPREHENSIVE TABLE OF CONTENTS: Chapter 1: Introduction Quantitative Versus Qualitative Schools of Thought Use of Triangulation in Research Methodology Qualitative Strategies: Defining an Orientation From a Symbolic Interactionist Perspective Why Use Qualitative Methods? A Plan of Presentation Chapter 2: Designing Qualitative Research Theory and Concepts Ideas and Theory Reviewing the Literature Evaluating Web Sites Content versus Use Theory, Reality, and the Social World Framing Research Problems Operationalization and Conceptualization Designing Projects Data Collection and Organization Data Storage, Retrieval, and Analysis Dissemination Trying It Out Chapter 3: Ethical Issues Research Ethics in Historical Perspective From Guidelines to Law: Regulations on the Research Process Institutional Review Boards (IRBs) Ethical Codes Some Common Ethical Concerns in Behavioral Research New Areas for Ethical Concern: Cyberspace Informed Consent and Implied Consent Confidentiality and Anonymity Securing the Data Objectivity and Careful Research Design Trying It Out Chapter 4: A Dramaturgical Look at Interviewing Dramaturgy and Interviewing Types of Interviews The Data Collection Instrument Guideline Development Communicating Effectively A Few Common Problems in Question Formulation Pretesting the Schedule Long Versus Short Interviews Telephone Interviews Computer Assisted Interviewing Conducting an Interview: A Natural or an Unnatural Communication? The Dramaturgical Interview The Interviewer's Repertoire Know Your Audience Analyzing Data Obtained from the Dramaturgical Interview Trying It Out Chapter 5: Focus Group Interviewing What are Focus Groups? Working With a Group The Evolution of Focus Group Interviews Facilitating Focus Group Dynamics: How Focus Groups Work The Moderator's Guide Basic Ingredients in Focus Groups Analyzing Focus Group Data Confidentiality and Focus Group Interviews Recent Trends in Focus Groups: Online Focus Groups Trying It Out Chapter 6: Ethnographic Field Strategies Accessing a Field Setting: Getting In Reflectivity and Ethnography Critical Ethnography Becoming Invisible Other Dangers During Ethnographic Research Watching, Listening, and Learning How to Learn: What to Watch and Listen For Computers and Ethnography OnLine Ethnography Analyzing Ethnographic Data Other Analysis Strategies: Typologies, Sociograms, and Metaphors Disengaging: Getting Out Trying It Out Chapter 7: Action Research The Basics of Action Research Identifying the Research Question(s) Gathering the Information to Answer the Question(s) Analyzing and Interpreting the Information Sharing the Results with the Participants When to Use and When Not to Use Action Research The Action Researcher's Role Types of Action Research Photovoice and Action Research Action Research: A Reiteration Trying It Out Chapter 8: Unobtrusive Measures in Research Archival Strategies Physical Erosion and accretion: Human Traces as Data Sources Trying It Out Chapter 9: Social Historical Research and Oral Traditions What Is Historical Research? Life Histories and Social History What Are the Sources of Data for Historical Researchers? Doing Historiography: Tracing Written History as Data What Are Oral Histories? Trying It Out Chapter 10: Case Studies The Nature of Case Studies Theory and Case Studies The Individual Case Study Intrinsic, Instrumental, and Collective Case Studies Case Study Design Types Designing Case Studies The Scientific Benefit of Case Studies Case Studies of Organizations Case Studies of Communities Trying It Out Chapter 11: An Introduction to Content Analysis What is Content Analysis? Analysis of Qualitative Data Content Analysis as a Technique Content Analysis: Quantitative or Qualitative? Communication Components What to Count: Levels and Units of Analysis Category Development: Building Grounded Theory Discourse Analysis and Content Analysis Open Coding Coding Frames Stages in the Content Analysis Process Strengths and Weaknesses of the Content Analysis Process Computers and Qualitative Analysis Qualitative Research at the Speed of Light Trying It Out Chapter 12: Writing Research Papers: Sorting the Noodles from the Soup Plagiarism: What It Is, Why It's Bad, and How to Avoid It Identifying the Purpose of the Writing: Arranging the Noodles Delineating a Supportive Structure: Visual Signals for the Reader Terms and Conditions Presenting Research Material A Word About the Content of Papers and Articles Write It, Rewrite It, Then Write It Again! A Few Writing Hints A Final Note

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Topics: Qualitative research (58%), Grounded theory (57%), Research question (57%) ... read more

14,354 Citations


Open accessBook
09 Jun 1995-
Abstract: The Purpose of Qualitative Research Qualitative Approaches An Overview Principles of Conceptualizing a Qualitative Project Principles of Doing Research Principles of Data Collection Principles of Data Analysis Qualitative Approaches Reporting Qualitative Research

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Topics: Qualitative research (59%), Health care (53%)

2,572 Citations


Abstract: We contrasted parents who had a child with a developmental disability, a serious mental health problem, and a normative comparison group with respect to parental attainment and well-being at mid-life. Data are from the Wisconsin Longitudinal Study, collected when the respondents were 18, 36, and 53 or 54, on average. Although similar at age 18, group patterns of attainment and well-being diverged thereafter. Parents of a child with a developmental disability had lower rates of employment, larger families, and lower rates of social participation but were similar to parents without a child with a disability in educational and marital status, physical health, and psychological well-being. Parents whose child had a serious mental health problem had normative patterns of educational and occupational attainment and marriage, but elevated levels of physical symptoms, depression, and alcohol symptoms at mid-life.

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Topics: Mental health (55%), Life course approach (53%), Marital status (52%) ... read more

405 Citations


Journal ArticleDOI: 10.1016/J.SOCSCIMED.2006.10.022
Vivian Khamis1Institutions (1)
Abstract: This study was designed to identify predictors of parental stress and psychological distress among parents of children with mental retardation in the United Arab Emirates. It examined the relative contributions of child characteristics, parents' sociodemographics, and family environment to parental stress and psychological distress. Participants were parents of 225 mentally retarded children, of whom 113 were fathers and 112 were mothers. Measures of parental stress (QRS-F), psychiatric symptom index (PSI) and family environment scale (FES) were administered in an interview format. Hierarchical multiple regression was used to predict parental stress and psychological distress. The results indicate that the model containing all three predictor blocks, child characteristics, parents' sociodemographics, and family environment, accounted for 36.3% and 22.5% of parental stress and parents' psychiatric symptomatology variance, respectively. The age of the child was significantly associated with parents' feelings of distress and psychiatric symptom status, and parental stress was less when the child was older. Parents reported more psychiatric symptomatology when the child showed a high level of dysfunction. Fathers' work appeared to be a significant predictor of parental stress, indicating that for fathers who were not working the level of stress was higher than fathers who were working. Lower socioeconomic level was associated with greater symptom rates of cognitive disturbance, depression, anxiety, and despair among parents. Among the family environment variables, only the personal growth dimension stood out as a predictor of parental stress. An orientation toward recreational and religious pursuits, high independence, and intellectual and recreational orientations were associated with lower levels of parental stress. On the other hand, parents in achievement-oriented families showed elevated levels of parental stress. Implications for prevention, and intervention as well as parent training and system-oriented counseling programs are discussed.

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Topics: Distress (56%), Family Environment Scale (56%), Parent training (56%)

137 Citations