The Danish National Patient Registry: a review of content, data quality, and research potential.
Citations
770 citations
671 citations
Cites background from "The Danish National Patient Registr..."
...Subsequent reimbursements increase in steps of 50%, 75%, and 85%, until out-of-pocket expenditures are capped at about $600.(11)...
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...As of 2018, the first $150 is paid in full by the patient (except for children, whose parents immediately receive a 60% reimbursement).(11) Subsequent reimbursements increase in steps of 50%, 75%, and 85%, until out-of-pocket expenditures are capped at about $600....
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527 citations
Cites background or methods or result from "The Danish National Patient Registr..."
...Existing validation studies for cardiovascular diagnoses in the DNPR have been limited to relatively few diagnoses.(6) We therefore conducted a validation study to examine the positive predictive value (PPV) of diagnoses in the DNPR for all major cardiovascular diseases....
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...Comparing our results with previous Danish validation studies, it is apparent that the PPVs have improved over time for many cardiovascular diagnoses in the DNPR.(6) This may be explained by increased awareness of correct coding, implementation of clear guidelines and definitions of individual diseases, and improved availability of diagnostic modalities....
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...This may be explained by increased awareness of correct coding, implementation of clear guidelines and definitions of individual diseases, and improved availability of diagnostic modalities.(6) Thus, the PPV of coding has improved for myocardial infarction (PPV=100% during 1996–2009,(12) 98% during 1998–2007,(13) 92% during Table 1 Positive predictive values of venous thromboembolism diagnoses in the Danish National Patient Registry, by diagnostic modalities during admission...
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...The Danish National Health Service provides free universal tax-supported healthcare, guaranteeing unfettered access to general practitioners and hospitals.(6)...
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...The diagnoses from the discharge summary and/or medical records were then compared with the diagnoses in the DNPR. Events coded in the DNPR as recurrent were considered correct if they were truly new events (for myocardial infarction and venous thromboembolism) and for heart failure if the readmission was due to a heart failure exacerbation....
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387 citations
Cites background or methods from "The Danish National Patient Registr..."
...In 1997, the electronic registration of births replaced paper forms and data has since been recorded in a slightly revised form to the Danish National Patient Registry (NPR) and fed directly into the MBR....
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...All conditions relevant for the pregnancy are reported to the NPR at the first antenatal contact....
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...All psychiatric, outpatient, and emergency department contacts were added in 1995 [5]....
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...All subsequent health events reported by diagnoses and surgical interventions can be found in the NPR....
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...The MBR is used extensively, both alone [20,21] and in combination with other registers such as the NPR [22–24], the National Prescription Registry [25], the Integrated Database for Labour Market Research [26], and the Danish Register of Causes of Death [27]....
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287 citations
References
3,871 citations
3,275 citations
"The Danish National Patient Registr..." refers background in this paper
...However, the reporting from private hospitals and clinics is generally considered incomplete.(17,41) DNPR content Type of data The content of the DNPR is structured, with each variable having a finite number of possible values....
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...Although it has been mandatory for private health care providers to report all activities since 2003, and the Danish Health and Medicines Authority runs information campaigns to promote registration,(38) registration from private hospitals and clinics remains incomplete.(17,41) Private hospitals offer services paid by taxes due to the rules of “free hospital choice” or as part of an agreement with a region, as well as services paid privately either by insurance companies or private parties....
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2,893 citations
"The Danish National Patient Registr..." refers methods in this paper
...We used Wilson’s score methods to calculate CIs with one decimal point precision.(165) When lack of absolute numbers precluded recalculations, we presented the results as reported in the original reference....
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2,644 citations
"The Danish National Patient Registr..." refers methods in this paper
...Keywords: epidemiological methods, medical record linkage, registries, research design, validation studies Introduction As the role of routine computerized health data in epidemiological research is growing,(1) there is a need to examine their strengths and limitations.(2,3) Typical shortcomings of such data include limited linkage possibilities, incomplete temporal or geographic coverage, restriction to selected patient groups, and lack of systematic follow-up....
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2,301 citations
"The Danish National Patient Registr..." refers background or methods in this paper
...Denmark had 5,580,516 inhabitants in 2012, excluding inhabitants of Greenland and the Faroe Islands.20 Although these areas are part of the Kingdom of Denmark, they are not covered by the DNPR....
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...Third, virtually complete follow-up of all patients (with no unrecorded dropouts) is possible because the Danish Civil Registration System records vital status and migrations on a daily basis.(20) Still, the cohort represented in the DNPR is only unselected for diseases that always require hospital treatment....
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...Sometimes, ABC extensions are added to specific diagnostic codes, eg, atrial fibrillation (I489B) and flutter (I489A), making the Danish version of the ICD-10 more detailed than the international ICD-10 but less detailed than the clinical modification of the ICD-10 (ICD-10-CM), which is not used in Denmark.46 Surgeries were coded according to the three consecutive editions of the Danish Classification of Surgical Procedures and Therapies, from 1977 to 1995.47 Since 1996, surgical procedures have been coded according to the Danish version of the Nordic Medico-Statistical Committee Classification of Surgical Procedures.48...
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...The three-digit ICD-8 codes were used in a modified Danish version (with two supplementary digits), which explains in part why ICD-9 coding was never introduced in Denmark....
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...The Danish National Health Service provides tax- supported health care for the entire Danish population.10,21 Redistributionist taxation finances ∼85% of overall health care costs, including access to general practitioners (GPs), hospitals, outpatient specialty clinics, and partial reimbursement of prescribed medications.21 Of note, outpatient specialty clinics include contacts from hospital-based (ambulatory) specialty clinics but not from private practice specialists or GPs. Patients’ out-of-pocket expenditures cover the remaining costs of medication and dental care.21 Except in emergencies, GPs (including on-call GPs) provide referrals to hospitals and specialists.21 Approximately 4,100 GPs and 4,600 dentists, as well as physiotherapists, chiropractors, and home nurses, work in the primary health care sector.21 The Danish Civil Registration System is a key tool for epidemiological research in Denmark.20,22 This nationwide reg- istry of administrative information was established on April 2, 1968.20 It assigns a unique ten-digit Civil Personal Register (CPR) number to all persons residing in Denmark, allowing for technically easy, cost-effective, and exact individual-level record linkage of all Danish registries.20 The Danish Civil Registration System, which tracks and continuously updates information on migrations and vital status, permits long-term follow-up with accurate censoring at emigration or death.20...
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