The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt
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TLDR
It is suggested that provision of inadequate education, healthcare and stigma constitute the main issues for mothers, and ASD impacted negatively on the social life, emotional wellbeing and sacrifices of mothers of children with ASD.Abstract:
The aim of this study was to gain insight into the experiences of mothers caring for children with autism spectrum disorders (ASD) in relation to the early life, resources and to address the consequences of raising a child with ASD in Egypt. Semi-structured interviews were conducted with 14 mothers of children with ASD in Egypt, the children were aged 5–14 years old (mean: 7.3 years). Data were thematically analysed. Results revealed that life with ASD was daunting for the Egyptian mothers. Findings suggested that provision of inadequate education, healthcare and stigma constitute the main issues for mothers. Furthermore, ASD impacted negatively on the social life, emotional wellbeing and sacrifices of mothers of children with ASD. The findings provided valuable insight into the life of mothers, revealing what life really is like for mothers caring for a child with ASD in one of the low-medium-income countries. Understanding the mothers’ experiences of caring for children with ASD is crucial in providing support and developing the services that are urgently needed in Egypt.read more
Citations
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Journal ArticleDOI
Mothers' Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study.
TL;DR: In this article, the authors investigated the lived experiences of mothers of children with ASD in Greece and found that the sense of burden, distress, and vulnerability experienced by the mothers were identified.
Journal ArticleDOI
Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder.
Xianmei Lei,Jiří Kantor +1 more
TL;DR: Wang et al. as discussed by the authors conducted a cross-sectional survey of Chinese families that have children with ASD to examine the relationship between social support and family functioning and found that social support was positively related to family cohesion and adaptability.
Journal ArticleDOI
Parents' experiences of affiliate stigma when caring for a child with autism spectrum disorder (ASD): A meta-synthesis of qualitative studies
Noor Shuhada Salleh,Khatijah Lim Abdullah,Khatijah Lim Abdullah,Tang Li Yoong,Subhashini Jayanath,Maruzairi Husain +5 more
TL;DR: This meta-synthesis encompasses the experiences of affiliate stigma among parents of children with ASD and asserted that healthcare professionals, especially those in pediatric settings, and society need to have a greater awareness of the stigma and challenges that these parents encounter.
Journal ArticleDOI
Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study
TL;DR: Perceptions and experiences of stigma among parents of children with DD in Ethiopia are explored and the contributing and protective factors for internalised stigma based on the perspectives of the parents themselves are examined to inform anti-stigma intervention priorities.
Journal ArticleDOI
Parenting a Child With Autism Spectrum Disorder: Perspective of Jordanian Mothers.
Khulood K. Shattnawi,Saeed Wafa’a M. Bani,Ahlam Al-Natour,Mohammed M. Al-Hammouri,Manar AlAzzam,Rachel Joseph +5 more
TL;DR: Jordanian mothers caring for children with ASD face several challenges, including physical, psychological, financial, and social challenges, in addition to limited specialized services, which are essential to support them, provide appropriate services and resources, and develop policies and guidelines for culturally competent quality services.
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