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Journal ArticleDOI

The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review

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TLDR
There is need for more methodologically sound studies that incorporate head-to-head comparisons of health care providers and significant others as proxy raters and employ well-validated quality-of-life measures and employ a longitudinal design in order to examine the effect of changes in patients' health status over time on the ability of proxies to provide valid quality- of-life assessments.
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This article is published in Journal of Clinical Epidemiology.The article was published on 1992-07-01. It has received 1039 citations till now. The article focuses on the topics: Health care & Proxy (statistics).

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Citations
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Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines.

TL;DR: These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores.
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PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

TL;DR: The PedsQL distinguished between healthy children and pediatric patients with acute or chronic health conditions, was related to indicators of morbidity and illness burden, and displayed a factor-derived solution largely consistent with the a priori conceptually-derived scales.
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Integrating response shift into health-related quality of life research: a theoretical model

TL;DR: A theoretical model is proposed to clarify and predict changes in QOL as a result of the interaction of a catalyst, referring to changes in the respondent's health status, and a dynamic feedback loop aimed at maintaining or improving the perception of QOL.
Journal Article

Evaluating patient-based outcome measures for use in clinical trials.

TL;DR: This research highlights the need to understand more fully the rationale behind the continued use of these devices, as well as the barriers to their adoption.
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Can parents rate their child's health-related quality of life? Results of a systematic review.

TL;DR: Agreement is better between parents and chronically sick children compared with parents and their healthy children, but no effects were found for age or gender and there remain strong arguments for obtaining information from both parents and children whenever possible.
References
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Book

Statistical Power Analysis for the Behavioral Sciences

TL;DR: The concepts of power analysis are discussed in this paper, where Chi-square Tests for Goodness of Fit and Contingency Tables, t-Test for Means, and Sign Test are used.
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“Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician

TL;DR: A simplified, scored form of the cognitive mental status examination, the “Mini-Mental State” (MMS) which includes eleven questions, requires only 5-10 min to administer, and is therefore practical to use serially and routinely.

A practical method for grading the cognitive state of patients for the clinician

TL;DR: The Mini-Mental State (MMS) as mentioned in this paper is a simplified version of the standard WAIS with eleven questions and requires only 5-10 min to administer, and is therefore practical to use serially and routinely.
Journal ArticleDOI

The measurement of observer agreement for categorical data

TL;DR: A general statistical methodology for the analysis of multivariate categorical data arising from observer reliability studies is presented and tests for interobserver bias are presented in terms of first-order marginal homogeneity and measures of interob server agreement are developed as generalized kappa-type statistics.
Journal ArticleDOI

The CES-D Scale: A Self-Report Depression Scale for Research in the General Population

TL;DR: The CES-D scale as discussed by the authors is a short self-report scale designed to measure depressive symptomatology in the general population, which has been used in household interview surveys and in psychiatric settings.
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