Who talks? The social psychology of illness support groups.
TL;DR: Support seeking was highest for diseases viewed as stigmatizing and was lowest for less embarrassing but equally devastating disorders, such as heart disease, and implications for social comparison theory and its applications in health care are discussed.
Abstract: More Americans try to change their health behaviors through self-help than through all other forms of professionally designed programs. Mutual support groups, involving little or no cost to participants, have a powerful effect on mental and physical health, yet little is known about patterns of support group participation in health care. What kinds of illness experiences prompt patients to seek each other's company? In an effort to observe social comparison processes with real-world relevance, support group participation was measured for 20 disease categories in 4 metropolitan areas (New York, Chicago, Los Angeles, and Dallas) and on 2 on-line forums. Support seeking was highest for diseases viewed as stigmatizing (e.g., AIDS, alcoholism, breast and prostate cancer) and was lowest for less embarrassing but equally devastating disorders, such as heart disease. The authors discuss implications for social comparison theory and its applications in health care.
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TL;DR: The results of this study suggest that it might be important to assess individual differences as well as social environmental factors in the treatment of distress among prostate cancer survivors.
Abstract: Objectives
The aim of our study was to identify individual factors that may predict which subset of prostate cancer patients is more likely to experience emotional distress.
Design and methods
Prostate cancer survivors identified through the Icelandic Cancer Registry (N=184), completed questionnaires measuring emotional distress, dispositional emotional expressivity and social constraints.
Results
A significant positive relationship was observed between perceived social constraints and distress (e.g. anxiety, depression, and intrusive thoughts), but only among prostate cancer survivors with higher levels of dispositional emotional expressivity.
Conclusions
The results of our study suggest that it might be important to assess individual differences as well as social environmental factors in the treatment of distress among prostate cancer survivors.
24 citations
TL;DR: The findings highlight how the online support group provided an important peer support environment for members to connect with others, exchange information and support and engender discussion on political and social issues unique to living with often-rare neuromuscular disorders.
Abstract: Purpose: People affected by neuromuscular disorders can experience adverse psychosocial consequences and difficulties accessing information and support. Online support groups provide new opportunities for peer support. The aim of this study was to understand how contributors used the message board function of a newly-available neuromuscular disorders online support group.
Methods: Message postings (n=1,951) from the first five months of the message board of a newly-formed online support group for neuromuscular disorders hosted by a charitable organisation were analysed using inductive thematic analysis.
Results: Members created a sense of community through disclosing personal information, connecting with people with similar illness experiences or interests, welcoming others, and sharing aspirations for the development of a resourceful community. Experiences, emotional reactions and support were shared in relation to: delayed diagnosis; symptom interpretation; illness management and progression; the isolating impact of rare disorders; and the influence of social and political factors on illness experiences.
Conclusions: This study provided a novel insight into individuals’ experiences of accessing a newly-available online support group for rare conditions hosted by a charitable organisation. The findings highlight how the online support group provided an important peer support environment for members to connect with others, exchange information and support, and engender discussion on political and social issues unique to living with often-rare neuromuscular disorders. Online support groups may therefore provide an important and easily accessible support outlet for people with neuromuscular disorders as well as a platform for empowering members to raise awareness about the impact of living with these conditions. Further research is needed to examine member motivations for using such groups and any effects of participation in greater detail.
23 citations
Cites background from "Who talks? The social psychology of..."
...Online support groups have a number of advantages in terms of accessing support, including: the availability of information and support at any time [28,29]; the accessibility of support from home (which may be advantageous for those with limited mobility) [30]; and the lack of geographical boundaries to meeting a diverse support network [29]....
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TL;DR: The production of both homogeneity within the group and a shared narrative served to absolve parents of guilt, helped parents to signify their experience within a blaming social context, and preserved their identities as “good parents.”
Abstract: Mutual aid groups have become a common form of help in the mental health field. Although self-help groups are associated with a range of health and social benefits, they remain poorly understood in terms of the dynamics of their interactions. Adopting an ethnographic-discursive approach, we conducted a 6-month observation of the meetings of a self-help group of parents with children diagnosed with attention deficit/hyperactivity disorder (ADHD) to analyze the discursive dynamics of the interactions that characterized the group. Using a set of discursive strategies and practices, the parents promoted a homogeneity of viewpoints and experiences within the group and constructed a shared and consensual narrative to endorse a specific understanding of ADHD. The production of both homogeneity within the group and a shared narrative served to absolve parents of guilt, helped parents to signify their experience within a blaming social context, and preserved their identities as "good parents."
23 citations
Cites background from "Who talks? The social psychology of..."
...Thus, aside from some studies in which researchers used observation (King, Stewart, King, & Law, 2000; Middleton, 1996; Mohr, 2004), little is known about the patterns and interactional processes that characterize support group participation (Davison et al., 2000)....
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TL;DR: Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol and their experience was described in positive terms with unanticipated benefits and outcomes described.
Abstract: Purpose. The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS).Method. Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective.Results. Participants experienced ownership, active participation and empowerment. Participants’ fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports.Conclusion. Participants’ experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.
23 citations
Cites background from "Who talks? The social psychology of..."
...[63] contended that mutual support or peer support groups are increasingly recognised as an effective forum for providing psychosocial support....
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TL;DR: This paper examined an advice sub-forum on a popular set of forums designated for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) people negotiating the coming out process.
Abstract: Research suggests that gay men and lesbians, as a product of being raised by heterosexuals in a heterosexist culture, are often shielded from information to help them cope with their stigmatized identity in their early years. Unsurprisingly, this community of individuals has been found to use the Internet more heavily than their heterosexual counterparts. This study examined an advice sub-forum on a popular set of forums designated for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) people negotiating the coming out process. Employing online disinhibition as a framework, and drawing from an identity management standpoint, a thematic analysis uncovered seven unique ways that LGBTQ people create community and craft identities in a computer-mediated context.
22 citations
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TL;DR: In this article, the authors pointed out that there is a strong functional tie between opinions and abilities in humans and that the ability evaluation of an individual can be expressed as a comparison of the performance of a particular ability with other abilities.
Abstract: Hypothesis I: There exists, in the human organism, a drive to evaluate his opinions and his abilities. While opinions and abilities may, at first glance, seem to be quite different things, there is a close functional tie between them. They act together in the manner in which they affect behavior. A person’s cognition (his opinions and beliefs) about the situation in which he exists and his appraisals of what he is capable of doing (his evaluation of his abilities) will together have bearing on his behavior. The holding of incorrect opinions and/or inaccurate appraisals of one’s abilities can be punishing or even fatal in many situations. It is necessary, before we proceed, to clarify the distinction between opinions and evaluations of abilities since at first glance it may seem that one’s evaluation of one’s own ability is an opinion about it. Abilities are of course manifested only through performance which is assumed to depend upon the particular ability. The clarity of the manifestation or performance can vary from instances where there is no clear ordering criterion of the ability to instances where the performance which reflects the ability can be clearly ordered. In the former case, the evaluation of the ability does function like other opinions which are not directly testable in “objective reality’. For example, a person’s evaluation of his ability to write poetry will depend to a large extent on the opinions which others have of his ability to write poetry. In cases where the criterion is unambiguous and can be clearly ordered, this furnishes an objective reality for the evaluation of one’s ability so that it depends less on the opinions of other persons and depends more on actual comparison of one’s performance with the performance of others. Thus, if a person evaluates his running ability, he will do so by comparing his time to run some distance with the times that other persons have taken. In the following pages, when we talk about evaluating an ability, we shall mean specifically the evaluation of that ability in situations where the performance is unambiguous and is known. Most situations in real life will, of course, present situations which are a mixture of opinion and ability evaluation. In a previous article (7) the author posited the existence of a drive to determine whether or not one’s opinions were “correct”. We are here stating that this same drive also produces behavior in people oriented toward obtaining an accurate appraisal of their abilities. The behavioral implication of the existence of such a drive is that we would expect to observe behaviour on the part of persons which enables them to ascertain whether or not their opinions are correct and also behavior which enables them accurately to evaluate their abilities. It is consequently
16,927 citations
Book•
01 Jan 1878
TL;DR: The Red River of the North basin of the Philippines was considered a part of the Louisiana Purchase by the United States Department of Commerce in the 1939 Census Atlas of the United Philippines as discussed by the authors.
Abstract: 1 Includes drainage basin of Red River of the North, not a part of any accession, but in the past sometimes considered a part of the Louisiana Purchase. i Includes Baker, Canton, Enderbury, Rowland, Jarvis, Johnston, and Midway Islands; and also certain other outlying islands (21 square miles). 3 Commonwealth of the Philippines, Commission of the Census; 1939 Census, Census Atlas of the Philippines. Source: Department of Commerce, Bureau of the Census.
10,650 citations
Book•
01 Jan 1970TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Abstract: This book first appeared in 1970 and has gone into two further editions, one in 1975 and this one in 1985. Yalom is also the author of Existential Psychotherapy (1980), In-patient Group Psychotherapy (1983), the co-author with Lieberman of Encounter Groups: First Facts (1973) and with Elkin of Every Day Gets a Little Closer: A Twice-Told Therapy (1974) (which recounts the course of therapy from the patient's and the therapist's viewpoint). The present book is the central work of the set and seems to me the most substantial. It is also one of the most readable of his works because of its straightforward style and the liberal use of clinical examples.
4,235 citations
"Who talks? The social psychology of..." refers background in this paper
...In a similar vein, Yalom (1995) has asserted that self-help groups offer a unique venue for growth, social experimentation, and change....
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TL;DR: Greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness.
Abstract: The Internet could change the lives of average citizens as much as did the telephone in the early part of the 20th century and television in the 1950s and 1960s. Researchers and social critics are debating whether the Internet is improving or harming participation in community life and social relationships. This research examined the social and psychological impact of the Internet on 169 people in 73 households during their first 1 to 2 years on-line. We used longitudinal data to examine the effects of the Internet on social involvement and psychological well-being. In this sample, the Internet was used extensively for communication. Nonetheless, greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness. These findings have implications for research, for public policy and for the design of technology.
4,091 citations
3,765 citations