Who talks? The social psychology of illness support groups.
TL;DR: Support seeking was highest for diseases viewed as stigmatizing and was lowest for less embarrassing but equally devastating disorders, such as heart disease, and implications for social comparison theory and its applications in health care are discussed.
Abstract: More Americans try to change their health behaviors through self-help than through all other forms of professionally designed programs. Mutual support groups, involving little or no cost to participants, have a powerful effect on mental and physical health, yet little is known about patterns of support group participation in health care. What kinds of illness experiences prompt patients to seek each other's company? In an effort to observe social comparison processes with real-world relevance, support group participation was measured for 20 disease categories in 4 metropolitan areas (New York, Chicago, Los Angeles, and Dallas) and on 2 on-line forums. Support seeking was highest for diseases viewed as stigmatizing (e.g., AIDS, alcoholism, breast and prostate cancer) and was lowest for less embarrassing but equally devastating disorders, such as heart disease. The authors discuss implications for social comparison theory and its applications in health care.
Citations
More filters
11 Feb 2012
TL;DR: The results demonstrated that the more emotional support members were exposed to, the lower the risk of dropout, and informational support did not have the same strong effects on commitment.
Abstract: Today many people with serious diseases use online support groups to seek social support. For these groups to be sustained and effective, member retention and commitment is important. Our study examined how different types and amounts of social support in an online cancer support group are associated with participants' length of membership. We first built machine learning models to automatically identify the extent to which messages contained emotional and informational support. Agreement with human judges was high (r > 0.76). We then used these models to measure the support exchanged in 1.5 million messages. Finally, we applied quantitative event history analysis to assess how exposure to emotional and informational support predicted group members' length of subsequent participation. The results demonstrated that the more emotional support members were exposed to, the lower the risk of dropout. In contrast, informational support did not have the same strong effects on commitment. We speculate that emotional support enhanced members' relationships with one another or the group as a whole, whereas informational support satisfied members' short-term information needs.
280 citations
Cites background from "Who talks? The social psychology of..."
...A large fraction of these online support groups deal with cancer [11]....
[...]
Proceedings Article•
15 Jul 2010TL;DR: It is concluded that user comments pose a significant natural language processing challenge, but do contain useful extractable information which merits further exploration and is evaluated on a manually annotated set of user comments with promising performance.
Abstract: Adverse reactions to drugs are among the most common causes of death in industrialized nations. Expensive clinical trials are not sufficient to uncover all of the adverse reactions a drug may cause, necessitating systems for post-marketing surveillance, or pharmacovigilance. These systems have typically relied on voluntary reporting by health care professionals. However, self-reported patient data has become an increasingly important resource, with efforts such as MedWatch from the FDA allowing reports directly from the consumer. In this paper, we propose mining the relationships between drugs and adverse reactions as reported by the patients themselves in user comments to health-related websites. We evaluate our system on a manually annotated set of user comments, with promising performance. We also report encouraging correlations between the frequency of adverse drug reactions found by our system in unlabeled data and the frequency of documented adverse drug reactions. We conclude that user comments pose a significant natural language processing challenge, but do contain useful extractable information which merits further exploration.
275 citations
Cites background from "Who talks? The social psychology of..."
...For many reasons, patients often share health experiences with each other rather than in a clini- cal research study or with their physician (Davison et al., 2000)....
[...]
...periences with each other rather than in a clinical research study or with their physician (Davison et al., 2000)....
[...]
TL;DR: The resilience of the medical profession as it adapts and transforms in response to three recent challenges to the profession that exemplify the tension between self-interest and collective altruism to act in the best interest of patients are shown.
Abstract: A pressing concern in contemporary health policy is whether the medical profession's mandate to take care of clients has been undermined by the influx of money into health care. We examine the medical profession's transformation over the past decades. First, we review how sociologists have viewed the medical profession over the past half-century as one stakeholder among other stakeholders vying for market share and power in the health care field. We then examine three recent challenges to the profession that exemplify the tension between self-interest and collective altruism to act in the best interest of patients: (1) the rise of patient consumerism, (2) the advent of evidence-based medicine, and (3) the increasing power of the pharmaceutical industry. We show the resilience of the medical profession as it adapts and transforms in response to these challenges. We conclude with implications to help inform policy makers' assessments of how the medical profession will react to policy initiatives.
250 citations
Cites background from "Who talks? The social psychology of..."
...Online selfhelp communities thrive, providing patients with spaces where people with similar conditions are able to help define symptoms, discuss treatment options, evaluate experiences, provide support, and empower patients in patient-doctor interactions (Barker 2008; Davison et al. 2000)....
[...]
TL;DR: The authors suggest that three types of group interactions including sharing personal experience, expression of gratitude, and offering congratulations can facilitate social support exchanges among group members.
237 citations
TL;DR: This paper introduced the concept of social constraints on disclosure, put it in a theoretical framework, and examined how it can affect adjustment to major life stressors using the exemplar of cancer.
Abstract: This article introduces the concept of social constraints on disclosure, puts it in a theoretical framework, and examines how it can affect adjustment to major life stressors using the exemplar of cancer. Cancer is a leading cause of death and disability worldwide. It is often life threatening, disfiguring, and unpredictable; hence, it can undermine people's basic and often positive beliefs and expectations about themselves, their future, and social relationships. For many people with cancer, it is important to come to terms psychologically with the illness – to make sense of or somehow accept the reality of it. People often do this by thinking about different aspects of the disease and its implications for their life, but also through socially processing, or talking about, their cancer-related thoughts, feelings, and concerns with others. When people experience social constraints on their disclosure of cancer-related thoughts and feelings, it can adversely affect how they think and talk about their illness, their coping behaviors, and psychological adjustment. In addition to discussing mechanisms and consequences of social constraints on disclosure, we discuss some of its determinants and future research directions.
236 citations
Cites background from "Who talks? The social psychology of..."
...It is quite common for people to want to disclose thoughts and feelings related to cancer ( Davison, Pennebaker, & Dickerson, 2000 )....
[...]
References
More filters
TL;DR: In this article, the authors pointed out that there is a strong functional tie between opinions and abilities in humans and that the ability evaluation of an individual can be expressed as a comparison of the performance of a particular ability with other abilities.
Abstract: Hypothesis I: There exists, in the human organism, a drive to evaluate his opinions and his abilities. While opinions and abilities may, at first glance, seem to be quite different things, there is a close functional tie between them. They act together in the manner in which they affect behavior. A person’s cognition (his opinions and beliefs) about the situation in which he exists and his appraisals of what he is capable of doing (his evaluation of his abilities) will together have bearing on his behavior. The holding of incorrect opinions and/or inaccurate appraisals of one’s abilities can be punishing or even fatal in many situations. It is necessary, before we proceed, to clarify the distinction between opinions and evaluations of abilities since at first glance it may seem that one’s evaluation of one’s own ability is an opinion about it. Abilities are of course manifested only through performance which is assumed to depend upon the particular ability. The clarity of the manifestation or performance can vary from instances where there is no clear ordering criterion of the ability to instances where the performance which reflects the ability can be clearly ordered. In the former case, the evaluation of the ability does function like other opinions which are not directly testable in “objective reality’. For example, a person’s evaluation of his ability to write poetry will depend to a large extent on the opinions which others have of his ability to write poetry. In cases where the criterion is unambiguous and can be clearly ordered, this furnishes an objective reality for the evaluation of one’s ability so that it depends less on the opinions of other persons and depends more on actual comparison of one’s performance with the performance of others. Thus, if a person evaluates his running ability, he will do so by comparing his time to run some distance with the times that other persons have taken. In the following pages, when we talk about evaluating an ability, we shall mean specifically the evaluation of that ability in situations where the performance is unambiguous and is known. Most situations in real life will, of course, present situations which are a mixture of opinion and ability evaluation. In a previous article (7) the author posited the existence of a drive to determine whether or not one’s opinions were “correct”. We are here stating that this same drive also produces behavior in people oriented toward obtaining an accurate appraisal of their abilities. The behavioral implication of the existence of such a drive is that we would expect to observe behaviour on the part of persons which enables them to ascertain whether or not their opinions are correct and also behavior which enables them accurately to evaluate their abilities. It is consequently
16,927 citations
Book•
01 Jan 1878
TL;DR: The Red River of the North basin of the Philippines was considered a part of the Louisiana Purchase by the United States Department of Commerce in the 1939 Census Atlas of the United Philippines as discussed by the authors.
Abstract: 1 Includes drainage basin of Red River of the North, not a part of any accession, but in the past sometimes considered a part of the Louisiana Purchase. i Includes Baker, Canton, Enderbury, Rowland, Jarvis, Johnston, and Midway Islands; and also certain other outlying islands (21 square miles). 3 Commonwealth of the Philippines, Commission of the Census; 1939 Census, Census Atlas of the Philippines. Source: Department of Commerce, Bureau of the Census.
10,650 citations
Book•
01 Jan 1970TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Abstract: This book first appeared in 1970 and has gone into two further editions, one in 1975 and this one in 1985. Yalom is also the author of Existential Psychotherapy (1980), In-patient Group Psychotherapy (1983), the co-author with Lieberman of Encounter Groups: First Facts (1973) and with Elkin of Every Day Gets a Little Closer: A Twice-Told Therapy (1974) (which recounts the course of therapy from the patient's and the therapist's viewpoint). The present book is the central work of the set and seems to me the most substantial. It is also one of the most readable of his works because of its straightforward style and the liberal use of clinical examples.
4,235 citations
"Who talks? The social psychology of..." refers background in this paper
...In a similar vein, Yalom (1995) has asserted that self-help groups offer a unique venue for growth, social experimentation, and change....
[...]
TL;DR: Greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness.
Abstract: The Internet could change the lives of average citizens as much as did the telephone in the early part of the 20th century and television in the 1950s and 1960s. Researchers and social critics are debating whether the Internet is improving or harming participation in community life and social relationships. This research examined the social and psychological impact of the Internet on 169 people in 73 households during their first 1 to 2 years on-line. We used longitudinal data to examine the effects of the Internet on social involvement and psychological well-being. In this sample, the Internet was used extensively for communication. Nonetheless, greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness. These findings have implications for research, for public policy and for the design of technology.
4,091 citations
3,765 citations