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Journal ArticleDOI

Who talks? The social psychology of illness support groups.

01 Jan 2000-American Psychologist (American Psychological Association)-Vol. 55, Iss: 2, pp 205-217
TL;DR: Support seeking was highest for diseases viewed as stigmatizing and was lowest for less embarrassing but equally devastating disorders, such as heart disease, and implications for social comparison theory and its applications in health care are discussed.
Abstract: More Americans try to change their health behaviors through self-help than through all other forms of professionally designed programs. Mutual support groups, involving little or no cost to participants, have a powerful effect on mental and physical health, yet little is known about patterns of support group participation in health care. What kinds of illness experiences prompt patients to seek each other's company? In an effort to observe social comparison processes with real-world relevance, support group participation was measured for 20 disease categories in 4 metropolitan areas (New York, Chicago, Los Angeles, and Dallas) and on 2 on-line forums. Support seeking was highest for diseases viewed as stigmatizing (e.g., AIDS, alcoholism, breast and prostate cancer) and was lowest for less embarrassing but equally devastating disorders, such as heart disease. The authors discuss implications for social comparison theory and its applications in health care.
Citations
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01 Jan 2008
TL;DR: This paper exposes lacks in existing studies in the field of online social support, and describes the proposition of an interdisciplinary methodology (called MISS), involving psychology, sociology, computer science and conversational analysis.
Abstract: This paper deals with methodological issues about the study and the design of computer-mediated solutions for online social support. First, we expose lacks in existing studies in the field of online social support. We have identified limits on three dimensions: methodological, conceptual and instrumental. Based on this critical analysis, we then describe our proposition of an interdisciplinary methodology (called MISS), involving psychology, sociology, computer science and conversational analysis. The role of each of these disciplines is described and discussed. As an illustration, we present the first results of the analysis of a corpus taken from a forum.

16 citations


Cites background from "Who talks? The social psychology of..."

  • ...On one hand, many benefits are underlined: the media accessibility [6, 11, 12], the availability of the participants [13], the suppression of geographical distances and frontiers, the asynchrony (which permits to choose one’s own tempo), the desinhibition effect of the anonymity [2, 13], etc....

    [...]

Journal Article
TL;DR: This cross-sectional study suggests that support groups for CFS are viewed as helpful by participants on a number of illness related issues, and active members reported greater symptom severity and less illness improvement than inactive members or dropouts.
Abstract: OBJECTIVE: To examine the benefits and problems of a chronic fatigue syndrome (CFS) and fibromyalgia (FM) support organization as reported by its participants. METHODS: Active members (n = 32) and inactive members or dropouts (n = 135) of a regional support organization for people with CFS and FM completed a 26 item questionnaire by telephone interview or by self-completion and postal return. RESULTS: The most frequently endorsed benefits of membership were illness legitimization (67.8%), finding out helpful new information (66.4%), and feeling understood by others (62.2%). Lower frequency endorsements were given to: helped to find (35.0%) or deal with (38.5%) doctors, and helped to improve my illness (36.4%). The most frequently reported reasons for dropping out were inconvenient location (37.8%) or time (37.0%), too much negative talk or complaining (33.3%), too sick to attend (28.8%), and illness or coping improvement (29.6% each). The active-member group showed significantly higher (p

15 citations

Book ChapterDOI
01 Jan 2016
TL;DR: The possibility of detecting violent extremism by identifying signs of warning behaviours in written text – what the authors call linguistic markers – using computers, or more specifically, natural language processing is discussed.
Abstract: The ability to disseminate information instantaneously over vast geographical regions makes the Internet a key facilitator in the radicalisation process and preparations for terrorist attacks. This can be both an asset and a challenge for security agencies. One of the main challenges for security agencies is the sheer amount of information available on the Internet. It is impossible for human analysts to read through everything that is written online. In this chapter we will discuss the possibility of detecting violent extremism by identifying signs of warning behaviours in written text – what we call linguistic markers – using computers, or more specifically, natural language processing.

15 citations

Journal Article
TL;DR: The number of internet discussion forums for health problems increased in recent years as discussed by the authors, however, the study about characteristics and typology of internet for health issues was not conducted in this article.
Abstract: The number of internet discussion forums for health problems increased in recent years. However, the study about characteristics and typology of internet for...

15 citations

Journal ArticleDOI
TL;DR: The results show optimal social support and tie strength are positively related to engagement, however, only optimalsocial support explains variance in engagement independent of tie strength and homophily.
Abstract: This study examines the factors of online engagement, and the relationship between online engagement and health expectations in a Stage IV breast cancer Facebook group. Members of the Facebook group completed a survey that assessed tie strength, homophily, and health expectations. A content analysis measured optimal social support, and Facebook analytics measured engagement. The results show optimal social support and tie strength are positively related to engagement. However, only optimal social support explains variance in engagement independent of tie strength and homophily. Additionally, the more engaged members are, the more positive their health expectations. The results emphasize the value of optimal social support and engagement in online support groups for individuals with Stage IV breast cancer.

15 citations

References
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Journal ArticleDOI
TL;DR: In this article, the authors pointed out that there is a strong functional tie between opinions and abilities in humans and that the ability evaluation of an individual can be expressed as a comparison of the performance of a particular ability with other abilities.
Abstract: Hypothesis I: There exists, in the human organism, a drive to evaluate his opinions and his abilities. While opinions and abilities may, at first glance, seem to be quite different things, there is a close functional tie between them. They act together in the manner in which they affect behavior. A person’s cognition (his opinions and beliefs) about the situation in which he exists and his appraisals of what he is capable of doing (his evaluation of his abilities) will together have bearing on his behavior. The holding of incorrect opinions and/or inaccurate appraisals of one’s abilities can be punishing or even fatal in many situations. It is necessary, before we proceed, to clarify the distinction between opinions and evaluations of abilities since at first glance it may seem that one’s evaluation of one’s own ability is an opinion about it. Abilities are of course manifested only through performance which is assumed to depend upon the particular ability. The clarity of the manifestation or performance can vary from instances where there is no clear ordering criterion of the ability to instances where the performance which reflects the ability can be clearly ordered. In the former case, the evaluation of the ability does function like other opinions which are not directly testable in “objective reality’. For example, a person’s evaluation of his ability to write poetry will depend to a large extent on the opinions which others have of his ability to write poetry. In cases where the criterion is unambiguous and can be clearly ordered, this furnishes an objective reality for the evaluation of one’s ability so that it depends less on the opinions of other persons and depends more on actual comparison of one’s performance with the performance of others. Thus, if a person evaluates his running ability, he will do so by comparing his time to run some distance with the times that other persons have taken. In the following pages, when we talk about evaluating an ability, we shall mean specifically the evaluation of that ability in situations where the performance is unambiguous and is known. Most situations in real life will, of course, present situations which are a mixture of opinion and ability evaluation. In a previous article (7) the author posited the existence of a drive to determine whether or not one’s opinions were “correct”. We are here stating that this same drive also produces behavior in people oriented toward obtaining an accurate appraisal of their abilities. The behavioral implication of the existence of such a drive is that we would expect to observe behaviour on the part of persons which enables them to ascertain whether or not their opinions are correct and also behavior which enables them accurately to evaluate their abilities. It is consequently

16,927 citations

Book
01 Jan 1878
TL;DR: The Red River of the North basin of the Philippines was considered a part of the Louisiana Purchase by the United States Department of Commerce in the 1939 Census Atlas of the United Philippines as discussed by the authors.
Abstract: 1 Includes drainage basin of Red River of the North, not a part of any accession, but in the past sometimes considered a part of the Louisiana Purchase. i Includes Baker, Canton, Enderbury, Rowland, Jarvis, Johnston, and Midway Islands; and also certain other outlying islands (21 square miles). 3 Commonwealth of the Philippines, Commission of the Census; 1939 Census, Census Atlas of the Philippines. Source: Department of Commerce, Bureau of the Census.

10,650 citations

Book
01 Jan 1970
TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Abstract: This book first appeared in 1970 and has gone into two further editions, one in 1975 and this one in 1985. Yalom is also the author of Existential Psychotherapy (1980), In-patient Group Psychotherapy (1983), the co-author with Lieberman of Encounter Groups: First Facts (1973) and with Elkin of Every Day Gets a Little Closer: A Twice-Told Therapy (1974) (which recounts the course of therapy from the patient's and the therapist's viewpoint). The present book is the central work of the set and seems to me the most substantial. It is also one of the most readable of his works because of its straightforward style and the liberal use of clinical examples.

4,235 citations


"Who talks? The social psychology of..." refers background in this paper

  • ...In a similar vein, Yalom (1995) has asserted that self-help groups offer a unique venue for growth, social experimentation, and change....

    [...]

Journal ArticleDOI
TL;DR: Greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness.
Abstract: The Internet could change the lives of average citizens as much as did the telephone in the early part of the 20th century and television in the 1950s and 1960s. Researchers and social critics are debating whether the Internet is improving or harming participation in community life and social relationships. This research examined the social and psychological impact of the Internet on 169 people in 73 households during their first 1 to 2 years on-line. We used longitudinal data to examine the effects of the Internet on social involvement and psychological well-being. In this sample, the Internet was used extensively for communication. Nonetheless, greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness. These findings have implications for research, for public policy and for the design of technology.

4,091 citations