Who talks? The social psychology of illness support groups.
TL;DR: Support seeking was highest for diseases viewed as stigmatizing and was lowest for less embarrassing but equally devastating disorders, such as heart disease, and implications for social comparison theory and its applications in health care are discussed.
Abstract: More Americans try to change their health behaviors through self-help than through all other forms of professionally designed programs. Mutual support groups, involving little or no cost to participants, have a powerful effect on mental and physical health, yet little is known about patterns of support group participation in health care. What kinds of illness experiences prompt patients to seek each other's company? In an effort to observe social comparison processes with real-world relevance, support group participation was measured for 20 disease categories in 4 metropolitan areas (New York, Chicago, Los Angeles, and Dallas) and on 2 on-line forums. Support seeking was highest for diseases viewed as stigmatizing (e.g., AIDS, alcoholism, breast and prostate cancer) and was lowest for less embarrassing but equally devastating disorders, such as heart disease. The authors discuss implications for social comparison theory and its applications in health care.
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TL;DR: Results suggest that a training program for scleroderma support group facilitators should address a broad range of topics, including managing difficult group interactions, promotion and maintaining the group, and balancing personal and support group needs.
Abstract: Purpose: Peer-facilitated support groups are an important resource for people with scleroderma, but little is known about challenges faced by support group facilitators. The objective was to identify training and support needs of scleroderma support group facilitators to inform the development of an educational training program. Methods: A 32-item survey assessed confidence of support group facilitators to execute tasks necessary for successfully facilitating support groups. Survey items were grouped into seven themes using content analysis. Results: Eighty North American scleroderma support group facilitators completed the survey. Facilitators were generally confident in their ability to complete tasks related to: (1) Organizing, Structuring, and Facilitating the group; (2) Addressing Individual Member Needs and Diversity of the Group; (3) Helping Members Cope with Grief and Loss; and (4) Attaining and Responding to Member Feedback. They were less confident in their ability to perform tasks related to (1) Managing Difficult Group Dynamics; (2) Promoting and Sustaining the Group; and (3) Balancing Personal and Group Needs. Conclusion: Results suggest that a training program for scleroderma support group facilitators should address a broad range of topics, including managing difficult group interactions, promotion and maintaining the group, and balancing personal and support group needs. Implications for Rehabilitation Many patients with the rare autoimmune connective tissue disease scleroderma depend on peer-facilitated support groups for disease-related education and peer support, but the lack of training for facilitators is a barrier to forming and sustaining groups. Rehabilitation professionals can support the formation and management of local support groups by providing education and support to peer group facilitators or by referring them to national scleroderma organizations who are developing training resources. Training for support group facilitators should focus on areas where facilitators were least confident in their abilities, including managing difficult group dynamics, promoting and sustaining the group, and balancing personal and group needs.
7 citations
Cites background from "Who talks? The social psychology of..."
...challenges can empower one another through social contact and support [9]....
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TL;DR: Caregivers may think chronic illness is only of concern during the acute crisis stage surrounding diagnosis, but people continue to incur losses over the ensuing years.
Abstract: (2009). MODELS OF UNDERSTANDING CHRONIC ILLNESS: IMPLICATIONS FOR PASTORAL THEOLOGY AND CARE. Journal of Pastoral Theology: Vol. 19, No. 1, pp. 22-37.
7 citations
TL;DR: Results indicate that health providers who want to reach breast cancer patients with limited English skills need to take into account this low use of Internet resources and web-based information.
Abstract: This study describes information seeking behaviors and patient characteristics associated with Internet use by 72 Chinese-American breast cancer survivors diagnosed in the past 5 years and living in Houston, Texas. Face-to-face interviews showed that only 56% used the Internet for health information; only 9% used e-mail or visited a website to communicate with a doctor's office or get online provider advice. Results indicate that health providers who want to reach breast cancer patients with limited English skills need to take into account this low use of Internet resources and web-based information. Particularly important is the need to develop and make available culturally effective and appropriate health information in the native languages of the patients to promote greater health literacy.
6 citations
Cites background from "Who talks? The social psychology of..."
...Considering the growing number of Chinese-American breast cancer survivors [4-6], it is obvious that the need for information and support in cancer care is continually growing....
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...Asian-American breast cancer patients with limited English proficiency may misunderstand the instructions of their physicians, be unable to comprehend current patient education, and have misconceptions related to health [4-11]....
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Dissertation•
01 Jan 2016
TL;DR: In this article, a comparison of the pathogenic and salutogenic paradigms is made, and a critique of salutogenesis is given, based on mothers' experiences of their children's struggles with substance abuse.
Abstract: ...............................................................................................................ii Declaration............................................................................................................iii Acknowledgements.................................................................................................iv CHAPTER ONE – INTRODUCTION...........................................................................1 1.1. Research aim..........................................................................................2 1.2 Research question.....................................................................................2 1.3 Rationale................................................................................................2 1.4 Clarification of key concepts........................................................................4 1.5. Overview of the chapters............................................................................6 CHAPTER TWO – LITERATURE REVIEW..................................................................8 2.1 The pathology paradigm: Mothers as causative agents...........................................9 2.2 An alternative perspective: Mothers’ experiences of their children’s struggles with substance abuse.......................................................................................15 2.3 The Salutogenic Paradigm..........................................................................17 2.3.1 A comparison of the pathogenic and Salutogenic paradigms......................18 2.3.2 Measuring health on a continuum......................................................19 2.3.3 Stressors, tension and stress............................................................20 2.3.4 Tension management and generalised resistance resources (GRRs)..............22 2.4 Sense of Coherence...................................................................................24 2.4.1 Comprehensibility........................................................................25 2.4.2 Manageability............................................................................26 2.4.3 Meaningfulness...........................................................................29 2.4.4 Relations between the three components of Sense of Coherence..................31 2.5 Relevant Salutogenic literature ....................................................................33 2.6 Resilience, thriving and hardiness .................................................................35 2.7 A critique of salutogenesis..........................................................................37 2.8 Conclusion............................................................................................39
6 citations
TL;DR: Individuals who have been diagnosed with depression and who participated in an online depression support group believe that they are less vulnerable to the influence of DTC advertisements than the typical person with a history of depression.
Abstract: Background: This study examines the evidence for a third- person effect (TPE) in the reactions of individuals affected by depression to direct-to-consumer (DTC) advertisements for antidepressants. TPE predicts that people will perceive the self to be less vulnerable to such advertisements than others. Previous research has identified such an effect, but did so in general population surveys. Past Previous research has also found a link between depression and diminished self-serving biases; whether this would be the case for TPE is unknown. Methods: An online questionnaire was administered to 148 participants in an Internet depression support group to investigate their perceptions of the influence of direct-to-consumer (DTC) advertisements for antidepressants. Results: Consistent with expectations derived from third-person effect TPE research, participants, although relatively neutral in their attitudes toward such advertisements, nevertheless perceived other individuals with depression as more influenced than themselves. Positive attitudes towards DTC advertisements and depressive symptoms at the time of the survey were each negatively associated with this third-person perception (TPE). Conclusions: Individuals who have been diagnosed with depression and who participated in an online depression support group believe that they are less vulnerable to the influence of DTC advertisements than the typical person with a history of depression. This is moderated by attitudes towards DTC advertisements as well as by depressive symptoms, each of which is associated with a weakened TPE. Depression and Anxiety, 2011. © 2010 Wiley-Liss, Inc.
6 citations
Cites background from "Who talks? The social psychology of..."
...[22] Depression support groups have been reported to be among the most common types of support groups for serious illnesses online.[23] Research on depression and TPE intersect in two key areas....
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References
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TL;DR: In this article, the authors pointed out that there is a strong functional tie between opinions and abilities in humans and that the ability evaluation of an individual can be expressed as a comparison of the performance of a particular ability with other abilities.
Abstract: Hypothesis I: There exists, in the human organism, a drive to evaluate his opinions and his abilities. While opinions and abilities may, at first glance, seem to be quite different things, there is a close functional tie between them. They act together in the manner in which they affect behavior. A person’s cognition (his opinions and beliefs) about the situation in which he exists and his appraisals of what he is capable of doing (his evaluation of his abilities) will together have bearing on his behavior. The holding of incorrect opinions and/or inaccurate appraisals of one’s abilities can be punishing or even fatal in many situations. It is necessary, before we proceed, to clarify the distinction between opinions and evaluations of abilities since at first glance it may seem that one’s evaluation of one’s own ability is an opinion about it. Abilities are of course manifested only through performance which is assumed to depend upon the particular ability. The clarity of the manifestation or performance can vary from instances where there is no clear ordering criterion of the ability to instances where the performance which reflects the ability can be clearly ordered. In the former case, the evaluation of the ability does function like other opinions which are not directly testable in “objective reality’. For example, a person’s evaluation of his ability to write poetry will depend to a large extent on the opinions which others have of his ability to write poetry. In cases where the criterion is unambiguous and can be clearly ordered, this furnishes an objective reality for the evaluation of one’s ability so that it depends less on the opinions of other persons and depends more on actual comparison of one’s performance with the performance of others. Thus, if a person evaluates his running ability, he will do so by comparing his time to run some distance with the times that other persons have taken. In the following pages, when we talk about evaluating an ability, we shall mean specifically the evaluation of that ability in situations where the performance is unambiguous and is known. Most situations in real life will, of course, present situations which are a mixture of opinion and ability evaluation. In a previous article (7) the author posited the existence of a drive to determine whether or not one’s opinions were “correct”. We are here stating that this same drive also produces behavior in people oriented toward obtaining an accurate appraisal of their abilities. The behavioral implication of the existence of such a drive is that we would expect to observe behaviour on the part of persons which enables them to ascertain whether or not their opinions are correct and also behavior which enables them accurately to evaluate their abilities. It is consequently
16,927 citations
Book•
01 Jan 1878
TL;DR: The Red River of the North basin of the Philippines was considered a part of the Louisiana Purchase by the United States Department of Commerce in the 1939 Census Atlas of the United Philippines as discussed by the authors.
Abstract: 1 Includes drainage basin of Red River of the North, not a part of any accession, but in the past sometimes considered a part of the Louisiana Purchase. i Includes Baker, Canton, Enderbury, Rowland, Jarvis, Johnston, and Midway Islands; and also certain other outlying islands (21 square miles). 3 Commonwealth of the Philippines, Commission of the Census; 1939 Census, Census Atlas of the Philippines. Source: Department of Commerce, Bureau of the Census.
10,650 citations
Book•
01 Jan 1970TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Abstract: This book first appeared in 1970 and has gone into two further editions, one in 1975 and this one in 1985. Yalom is also the author of Existential Psychotherapy (1980), In-patient Group Psychotherapy (1983), the co-author with Lieberman of Encounter Groups: First Facts (1973) and with Elkin of Every Day Gets a Little Closer: A Twice-Told Therapy (1974) (which recounts the course of therapy from the patient's and the therapist's viewpoint). The present book is the central work of the set and seems to me the most substantial. It is also one of the most readable of his works because of its straightforward style and the liberal use of clinical examples.
4,235 citations
"Who talks? The social psychology of..." refers background in this paper
...In a similar vein, Yalom (1995) has asserted that self-help groups offer a unique venue for growth, social experimentation, and change....
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TL;DR: Greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness.
Abstract: The Internet could change the lives of average citizens as much as did the telephone in the early part of the 20th century and television in the 1950s and 1960s. Researchers and social critics are debating whether the Internet is improving or harming participation in community life and social relationships. This research examined the social and psychological impact of the Internet on 169 people in 73 households during their first 1 to 2 years on-line. We used longitudinal data to examine the effects of the Internet on social involvement and psychological well-being. In this sample, the Internet was used extensively for communication. Nonetheless, greater use of the Internet was associated with declines in participants' communication with family members in the household, declines in the size of their social circle, and increases in their depression and loneliness. These findings have implications for research, for public policy and for the design of technology.
4,091 citations
3,765 citations