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Information privacy

About: Information privacy is a research topic. Over the lifetime, 25412 publications have been published within this topic receiving 579611 citations. The topic is also known as: data privacy & data protection.


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TL;DR: The problem of genome data privacy is at the crossroads of computer science, medicine, and public policy as discussed by the authors, and the state-of-the-art regarding privacy attacks on genomic data and strategies for mitigating such attacks, as well as contextualizing these attacks from the perspective of medicine and public policies.
Abstract: Genome sequencing technology has advanced at a rapid pace and it is now possible to generate highly-detailed genotypes inexpensively. The collection and analysis of such data has the potential to support various applications, including personalized medical services. While the benefits of the genomics revolution are trumpeted by the biomedical community, the increased availability of such data has major implications for personal privacy; notably because the genome has certain essential features, which include (but are not limited to) (i) an association with traits and certain diseases, (ii) identification capability (e.g., forensics), and (iii) revelation of family relationships. Moreover, direct-to-consumer DNA testing increases the likelihood that genome data will be made available in less regulated environments, such as the Internet and for-profit companies. The problem of genome data privacy thus resides at the crossroads of computer science, medicine, and public policy. While the computer scientists have addressed data privacy for various data types, there has been less attention dedicated to genomic data. Thus, the goal of this paper is to provide a systematization of knowledge for the computer science community. In doing so, we address some of the (sometimes erroneous) beliefs of this field and we report on a survey we conducted about genome data privacy with biomedical specialists. Then, after characterizing the genome privacy problem, we review the state-of-the-art regarding privacy attacks on genomic data and strategies for mitigating such attacks, as well as contextualizing these attacks from the perspective of medicine and public policy. This paper concludes with an enumeration of the challenges for genome data privacy and presents a framework to systematize the analysis of threats and the design of countermeasures as the field moves forward.

151 citations

Journal ArticleDOI
TL;DR: This work proposes a lightweight blockchain architecture for the healthcare data management that reduces the computational and communication overhead compared to the Bitcoin network by dividing the network participants into clusters and maintaining one copy of the ledger per cluster.
Abstract: Healthcare data management has been gaining a lot of attention in recent years because of its high potential to provide more accurate and cost-efficient patient care. The traditional client-server and cloud-based healthcare data management systems suffer from the issues of single point of failure, data privacy, centralized data stewardship, and system vulnerability. The replication mechanism, and privacy and security features of blockchain have a promising future in the healthcare domain as they can solve some of the inherent issues of the health management system. However, most of the recent research works on blockchain in the healthcare domain have primarily focused on the permission-less Bitcoin network that suffers from drawbacks such as high energy consumption, limited scalability, and low transaction throughput. Consequently, there is a need for a scalable, fault-tolerant, secure, traceable and private blockchain to suit the requirements of the healthcare domain. We propose a lightweight blockchain architecture for the healthcare data management that reduces the computational and communication overhead compared to the Bitcoin network by dividing the network participants into clusters and maintaining one copy of the ledger per cluster. Our architecture introduces the use of canal, that allows secure and confidential transactions within a group of network participants. Furthermore, we propose a solution to avoid forking which is prevalent in the Bitcoin network. We demonstrate the effectiveness of our proposed architecture in providing security and privacy compared to the Bitcoin network by analyzing different threats and attacks. We also discuss how our proposed architecture addresses the identified threats. Our experimental results demonstrate that our proposed architecture generates 11 times lower network traffic compared to the Bitcoin network as the number of blocks increases. Our ledger update is 1.13 times faster. Our architecture shows a speedup of 67% in ledger update and 10 times lower network traffic when the number of nodes increases.

151 citations

Journal ArticleDOI
TL;DR: Results show that the proposed DTRPP mechanism protects the data privacy effectively and has better performance on the average delay, the delivery rate and the loading rate when compared to traditional mechanisms.
Abstract: Malicious network nodes often incur problems to network and data privacy by distributing forged public keys. To address this issue, this paper proposes a dynamic trust relationships aware data privacy protection (DTRPP) mechanism for mobile crowd-sensing. In this mechanism, combining key distribution with trust management, the trust value of a public key is evaluated according to both the number of supporter and the trust degree of the public key. The trust value is estimated from the accuracy of the public key provided by the encountering nodes. DTRPP achieves the dynamic management of nodes and estimates the trust degree of the public key. In addition, by classifying traffic data into different types and selecting a proper relay node to forward the data according to data types, it is more effective to use the network resource with the trust degree and centrality of the relays. With extensive evaluations, results show that the proposed mechanism protects the data privacy effectively and has better performance on the average delay, the delivery rate and the loading rate when compared to traditional mechanisms.

151 citations

Journal ArticleDOI
TL;DR: The authors conducted an exploratory investigation of consumer and direct marketers' attitudes in one Canadian city towards information privacy issues and found that both managers and consumers are concerned about the intended uses for consumer information, they tend to focus on different aspects of information privacy.

151 citations

ReportDOI
01 Jul 1998
TL;DR: In this paper, the authors explore the implications of changes in the health care delivery system for privacy and confidentiality, relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.
Abstract: Few developments are likely to affect human beings more profoundly in the long run than the discoveries resulting from advances in modern genetics. Although the developments in genetic technology promise to provide many additional benefits, their application to genetic screening poses ethical, social, and legal questions, many of which are rooted in issues of privacy and confidentiality. The ethical, practical, and legal ramifications of these and related questions are explored in depth. The broad range of topics includes: the privacy and confidentiality of genetic information; the challenges to privacy and confidentiality that may be projected to result from the emerging genetic technologies; the role of informed consent in protecting the confidentiality of genetic information in the clinical setting; the potential uses of genetic information by third parties; the implications of changes in the health care delivery system for privacy and confidentiality; relevant national and international developments in public policies, professional standards, and laws; recommendations; and the identification of research needs.

150 citations


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Performance
Metrics
No. of papers in the topic in previous years
YearPapers
2023562
20221,226
20211,535
20201,634
20191,255
20181,277