Psychometric properties of the strengths and difficulties questionnaire (sdq) parent version in a transylvanian minority group. confirmatory factor analysis

Living with a long-term medical condition is associated with heightened risk for mental health and psychosocial difficulties, but further research is required on this risk for children and adolesce...

/pdf/the-psychosocial-impact-of-rare-diseases-among-children-and-3phlri1chj.pdf

The psychosocial impact of rare diseases among children and adolescents attending mainstream schools in Western Australia

BackgroundChildhood onset diabetes has broad cognitive and social effects that are likely to impact on the school experience. In turn, educational outcomes are associated with measures of diabetes related health.
ObjectivesThis study models school outcome measures for children with diabetes in comparison to their non-diabetic peers.
MethodsWe use education and diabetes data linked and stored in SAIL databank. We have eight academic cohorts of Welsh administrative education data linked to the register of all children diagnosed with Type 1 diabetes in Wales before the age of 15 (The Brecon Cohort). We model the associations for diabetes with both school absence (sessions missed per year) and educational attainment (using high stakes testing at the end of compulsory schooling), adjusting for individual, school and clinic characteristics and clustering.
Data LinkageWe discuss our approaches to the challenges of linking the education and diabetes register and outline our proposed solution to the governance challenges of linking diabetes related audit data.

/pdf/school-performance-in-children-with-type-1-diabetes-47tz7r85ds.pdf

School performance in children with type 1 diabetes

Extreme demand avoidance (EDA) is increasingly described as part of the autism spectrum and is sometimes diagnosed as Pathological Demand Avoidance (PDA). Yet little is known, about the educational...

https://www.tandfonline.com/doi/pdf/10.1080/13603116.2021.1916108

The educational experiences of autistic children with and without extreme demand avoidance behaviours

Schools have an important role to play in supporting the psychosocial and physical health of students with Type 1 diabetes (T1D). Good school-based support for students with T1D is related to better diabetes management and quality of life. However, support for students with T1D appears inconsistent across schools in Western Australia. Strategic capacity-building for schools, including attention to policy and practice, is needed to support students with chronic and other health conditions. This project aimed to investigate how schools provide support for the psychosocial wellbeing and disease management of students with T1D. Ten schools, identified by a hospital-to-school transition team as being supportive of students with T1D, participated in this generic qualitative study. Semi-structured interviews were conducted with school staff, students with T1D and their parents at each school. Inductive and deductive thematic analysis identified three overarching themes to encapsulate the various ways schools provided support: (a) school characteristics; (b) interpersonal support; and (c) organisational support, and eleven sub-themes outlined this support. Based on these findings, a conceptual model of support is presented. This can be used as a foundation for a professional learning tool to enhance the capacity of schools to support the wellbeing of students with T1D.

/pdf/lessons-from-schools-with-high-levels-of-support-for-2wkh49rc53.pdf

Lessons from schools with high levels of support for students with Type 1 diabetes: A qualitative study

Leanne Fried, Rena Vithiatharan Telethon Kids Institute and The University of Western Australia Elizabeth Davis, Tim Jones Telethon Kids Institute, The University of Western Australia, and Princess Margaret Hospital for Children, Western Australia Kirsten Hancock, Kevin Runions, Donna Cross Telethon Kids Institute and The University of Western Australia Donald Payne Telethon Kids Institute, The University of Western Australia, and Princess Margaret Hospital for Children, Western Australia Caleb Jones, Arthur Wright, Debbie Pieterse, Joy Knowles, Julie Clarke School of Special Educational Needs: Medical & Mental Health Ashleigh Lin Telethon Kids Institute and The University of Western Australia

/pdf/the-school-experiences-of-children-and-adolescents-with-type-1qs55jcdkn.pdf

Arthur Wright

Papers

The school experiences of children and adolescents with type 1 diabetes in Western Australia