자연주의적 탐구조사(Naturalistic Inquiry)

http://science.sciencemag.org/content/sci/201/4359/899.2.full.pdf

Phenomenology of perception.

Truth and method

This new edition of Ann Bowling's well-known and highly respected text has been thoroughly revised and updated to reflect key methodological developments in health research. It is a comprehensive, easy to read, guide to the range of methods used to study and evaluate health and health services. It describes the concepts and methods used by the main disciplines involved in health research, including: demography, epidemiology, health economics, psychology and sociology.The research methods described cover the assessment of health needs, morbidity and mortality trends and rates, costing health services, sampling for survey research, cross-sectional and longitudinal survey design, experimental methods and techniques of group assignment, questionnaire design, interviewing techniques, coding and analysis of quantitative data, methods and analysis of qualitative observational studies, and types of unstructured interviewing. With new material on topics such as cluster randomization, utility analyses, patients' preferences, and perception of risk, the text is aimed at students and researchers of health and health services. It has also been designed for health professionals and policy makers who have responsibility for applying research findings in practice, and who need to know how to judge the value of that research.

Research Methods in Health. Investigating health and health services

This Executive Summary of the Global Strategy for the Diagnosis, Management, and Prevention of COPD, Global Initiative for Chronic Obstructive Lung Disease (GOLD) 2017 report focuses primarily on the revised and novel parts of the document. The most significant changes include: (1) the assessment of chronic obstructive pulmonary disease has been refined to separate the spirometric assessment from symptom evaluation. ABCD groups are now proposed to be derived exclusively from patient symptoms and their history of exacerbations; (2) for each of the groups A to D, escalation strategies for pharmacologic treatments are proposed; (3) the concept of deescalation of therapy is introduced in the treatment assessment scheme; (4) nonpharmacologic therapies are comprehensively presented; and (5) the importance of comorbid conditions in managing chronic obstructive pulmonary disease is reviewed.

/pdf/global-strategy-for-the-diagnosis-management-and-prevention-2tve0rxywh.pdf

Global Strategy for the Diagnosis, Management, and Prevention of Chronic Obstructive Lung Disease 2017 Report. GOLD Executive Summary

BACKGROUND: The birth of a preterm infant has a long-term impact on both parents. Mothers report more stress and poor adjustment compared with fathers. Influencing factors, such as family situation ...

From alienation to familiarity: experiences of mothers and fathers of preterm infants.

Discussion about a dignified death has almost exclusively been applied to palliative care and people dying of cancer. As populations are getting older in the western world and living with chronic illnesses affecting their everyday lives, it is relevant to broaden the definition of palliative care to include other groups of people. The aim of the study was to explore the views on dignity at the end of life of 12 elderly people living in two nursing homes in Sweden. A hermeneutic approach was used to interpret the material, which was gathered during semi-structured interviews. A total of 39 interviews were transcribed. The analysis revealed three themes: (1) the unrecognizable body; (2) fragility and dependency; and (3) inner strength and a sense of coherence.

Views on Dignity of Elderly Nursing Home Residents

AIM: This paper is a report of a study to describe the essential structure of the lived experience of living with severe chronic obstructive pulmonary disease (COPD) during the palliative phase of ...

Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study

Struggling to retain the living space: Patients´ stories about their lives as living alone with severe chronic obstructive pulmonary disease

Struggling to retain living space: patients’ stories about living with advanced chronic obstructive pulmonary disease

The aim of this prospective study was to increase existing knowledge about the involvement of relatives in care of the dying and to shed light on the relatives' sense of coherence Six relatives were followed via qualitative interviews during the patients' final period of life and after their deaths The patients died in different forms of care: surgical department, nursing home, inpatient hospice ward, and at home What the relatives had in common was that they had, in different ways, followed the patient from the first symptoms, through different forms of care, up until death Some participated very actively in the care Relatives' involvement in care can be described as involvement in the light or involvement in the dark Involvement in the light is based on a trusting relationship between the family and the staff Involvement in the dark is based on insufficient interplay and collaboration, in which the relatives are not seen or acknowledged by the staff, but instead must grope around in the dark when they try to support the patient Rapid course of illness can be a risk factor for involvement in the dark It seems that the relatives' sense of coherence was an important factor enabling them to be involved in the light Humanistic care can constitute a buffer, thereby increasing the possibilities for relatives to be involved in the light

Britt-Marie Ternestedt

Papers

From alienation to familiarity: experiences of mothers and fathers of preterm infants.

Views on Dignity of Elderly Nursing Home Residents

Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study

Struggling to retain living space: patients’ stories about living with advanced chronic obstructive pulmonary disease

Involvement of relatives in the care of the dying in different care cultures. Involvement in the dark or in the light