Claire L. Large

TL;DR: The top 10 research uncertainties were identified, which included questions about enhanced communication among patients and providers, dialysis modality options, itching, access to kidney transplantation, heart health, dietary restrictions, depression, and vascular access, and can be used to guide researchers in designing future studies and inform health care funders.

TL;DR: There was a wide range of self-management interventions with considerable variability in outcomes for adults with CKD, highlighting the need to involve patients to co-developed and evaluate a self- management intervention based on sound theories and clinical evidence.

TL;DR: There are opportunities to enhance CKD self-management support by addressing knowledge pertinent to living well with CKD and priority areas for sharing information and providing tangible support.

TL;DR: Patients, caregivers and clinicians from across Canada participated in a 1-day consensus workshop using personas (fictional characters) and a cumulative voting technique to identify preferences for content for 8 predetermined topics and features for an e-health tool to support chronic kidney disease self-management.

TL;DR: Although many CKD web sites were of reasonable quality, their readability was poor and will inform content gaps in internet-accessible information on CKD self-management that should be addressed by future eHealth web-based tools.