Showing papers by "Marla L. Clayman published in 2011"
TL;DR: Most of the studies showed that adolescents have a strong desire to participate in decisions related to their cancer treatment and many have concerns regarding their future fertility, although barriers often prevented these discussions.
116 citations
TL;DR: Pediatric intensive care unit clinicians in this study perceive family conferences as having an important role in end-of-life care decisionmaking and to determine the need for improvement to family conferences.
Abstract: Objective:To examine clinicians' and parents' reflections on pediatric intensive care unit family conferences in the context of discussion about end-of-life care decisionmaking.Design:Retrospective qualitative study.Setting:A university-based hospital.Participants:Eighteen parents of children who di
58 citations
TL;DR: The data suggest that limited comfort with numbers and statistics can influence a variety of health-related factors for young adults, and more research is needed to understand how health literacy skills—including numeracy—influence health-information seeking, patient-provider relationships, and health outcomes, forYoung adults.
Abstract: Numeracy, or, "the ability to use and understand numbers in daily life" is a critical component of health literacy. However, little research has focused on numeracy in young adults (ages 18-29). We used a national sample to examine how health-information seeking, trust in sources, and interactions with health care providers differ for young adults with lower and higher numeracy. We included respondents ages 18 to 29 (n = 661) from the latest administration (2008) of the Health Information National Trends Survey (HINTS). There were no significant differences between those with lower and higher numeracy for most sociodemographic variables, nor did numeracy predict trust in health information sources. However, there were several differences for health-information seeking and health-provider interactions. Those with lower numeracy were significantly more likely to say their most recent search took a lot of effort (46% vs. 24%, p = .0008) and was frustrating (45% vs. 22%, p = .0038). Those in the lower numeracy group also reported more negative interactions with health providers, including feeling less able to rely on their provider (62% vs. 86%, p < .0001), and less likely to say their provider made sure they understood information (70% vs. 88%, p = .0001) and helped with any uncertainty (51% vs. 75%, p < .0001), even when adjusting for other variables. Our data suggest that limited comfort with numbers and statistics can influence a variety of health-related factors for young adults. More research is needed to understand how health literacy skills--including numeracy--influence health-information seeking, patient-provider relationships, and health outcomes, for young adults.
34 citations
TL;DR: CCCs are in a position to set the standard for providing exemplary oncofertility care, but most need to better integrate FP information and referral into their cancer treatment and survivorship models.
Abstract: 9123 Background: NCI-designated Comprehensive Cancer Centers (CCCs) have a reputation for providing exemplary patient care. ASCO guidelines suggest quality care includes discussions of and provisio...
8 citations
TL;DR: In this paper, the authors explored the longitudinal history of sun exposure in solid-organ transplant recipients (OTRs) from a few months after transplantation to two-three years later and found that OTRs did not limit outdoor sun exposure or experience fewer sunburns in the 14 months after their transplant.
Abstract: Background: Solid-organ transplant recipients (OTRs) have an increased risk of developing nonmelanoma skin cancer.
Objective: This study explored the longitudinal history of sun exposure in OTRs from a few months after transplantation to two-three years later.
Methods: OTRs, who previously completed a telephone survey in 2007 to 2009 were re-surveyed in summer 2011 about their skin cancer history and habits of sun exposure. The two sets of data were compared to assess change in sun exposure.
Results: OTRs were enrolled (baseline) a mean of 8 months (range of 6 to 17.0 months) after transplantation. The interval between enrollment and the follow-up survey was a mean of 14 months (range of 2 to 21.8 months).
Duration of self-reported weekday and weekend exposure increased from a mean of 2.05 hrs at baseline to a mean of 2.52 hours at follow-up. The mean difference in weekday exposure was 0.31 hrs (range -5.25 to 5.05 hrs) (t-test, p= 0.02, rank sum test, p =0.017) and in weekend exposure was 0.47 hrs (range-5.25 to 0.05) (t-test, p = 0.0007, rank sum test, = =0.004). Kidney transplant recipients increased the duration of weekday and weekend exposure significantly more than liver transplant recipients. (p=0.05) The number of sunburns experienced at baseline and follow-up remained consistent (p=0.58) with about 13% experiencing 1-5 sunburns each year.
Conclusion: OTRs did not limit outdoor sun exposure or experience fewer sunburns in the 14 months after their transplant. Research is needed to ascertain the impact of educational programs on skin protection behaviors.
1 citations
01 Jan 2011
TL;DR: OTRs did not limit outdoor sun exposure or experience fewer sunburns in the 14 months after their transplant, andKidney transplant recipients increased the duration of weekday and weekend exposure significantly more than liver transplant recipients.
Abstract: Background: Solid-organ transplant recipients (OTRs) have an increased risk of developing nonmelanoma skin cancer. Objective: This study explored the longitudinal history of sun exposure in OTRs from a few months after transplantation to two-three years later. Methods: OTRs, who previously completed a telephone survey in 2007 to 2009 were re-surveyed in summer 2011 about their skin cancer history and habits of sun exposure. The two sets of data were compared to assess change in sun exposure. Results: OTRs were enrolled (baseline) a mean of 8 months (range of 6 to 17.0 months) after transplantation. The interval between enrollment and the follow-up survey was a mean of 14 months (range of 2 to 21.8 months). Duration of self-reported weekday and weekend exposure increased from a mean of 2.05 hrs at baseline to a mean of 2.52 hours at follow-up. The mean difference in weekday exposure was 0.31 hrs (range -5.25 to 5.05 hrs) (t-test, p= 0.02, rank sum test, p =0.017) and in weekend exposure was 0.47 hrs (range-5.25 to 0.05) (t-test, p = 0.0007, rank sum test, = =0.004). Kidney transplant recipients increased the duration of weekday and weekend exposure significantly more than liver transplant recipients. (p=0.05) The number of sunburns experienced at baseline and follow-up remained consistent (p=0.58) with about 13% experiencing 1-5 sunburns each year. Conclusion: OTRs did not limit outdoor sun exposure or experience fewer sunburns in the 14 months after their transplant. Research is needed to ascertain the impact of educational programs on skin protection behaviors.