Teresa Beynon

TL;DR: The novel, integrated data presented here provide three recommendations for improving care in line with policy directives: sensitive provision of information and discussion of end-of-life issues with patients and families; mutual education of cardiology and palliative care staff; and mutually agreed palliatives care referral criteria and care pathways for patients with CHF.

TL;DR: This is the first study to integrate cardiology, palliative care, and patient and family views to develop feasible recommendations on meeting information needs and identify four types of barriers to the discussion of disease progression.

TL;DR: Considering the time pressures and restricted caregiver time, the intervention should be brief and should aim to enhance their visibility as service recipients, patient-specific information giving, preparation for their role, and emotional support.

TL;DR: All aspects of QOL are affected in CTCL, and a more advanced disease stage and more severe pruritus symptoms were associated with poorer QOL in this study.

TL;DR: The findings suggest that the education programme led to improvements in self-reported district nursing confidence in palliative care competencies and knowledge; it is likely that the baseline level of palliatives care confidence in competency and knowledge has as a result been raised nationally.