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Yvonne Zurynski

Researcher at Macquarie University

Publications -  148
Citations -  2688

Yvonne Zurynski is an academic researcher from Macquarie University. The author has contributed to research in topics: Medicine & Health care. The author has an hindex of 25, co-authored 116 publications receiving 2127 citations. Previous affiliations of Yvonne Zurynski include Boston Children's Hospital & National Health and Medical Research Council.

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Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

TL;DR: Australian families caring for children with genetic metabolic disorders are adversely impacted by delays in diagnosis, lack of easy access to peer support groups and lack of psychological support.
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Burden of eating disorders in 5–13-year-old children in Australia

TL;DR: To collect nationally representative epidemiological data on early‐onset eating disorders (EOEDs) in children, a large number of children diagnosed with EOEDs in the United States have had a history of abuse or neglect.
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Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays

TL;DR: Parents of children living with rare chronic and complex diseases have called for better education, resourcing of health professionals to prevent avoidable diagnostic delays, and to facilitate access to early interventions and treatments.
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Rare childhood diseases: how should we respond?

TL;DR: A national approach is recommended, similar to that adopted in the USA and Europe, to support research and promote advocacy and equitable access to services for children with rare diseases.