Amanda Belkin

TL;DR: A conceptual framework of the IC's journey with a patient with IPF was developed and includes suggestions for interventions that might ease the burdens ICs endure while caring for their patient-loved ones.

TL;DR: Current knowledge of health-related quality of life (HRQL) assessment in idiopathic pulmonary fibrosis (IPF) is summarized, with an emphasis on reviewing available data on HRQL instruments, operationalizing HRQL assessment in IPF research and interventions that show promise for improving HRQL in patients with IPF.

TL;DR: The reliability and validity of the substantially shortened ATAQ-IPF-cA are acceptable and comparable to the original instrument and are recommended for use in IPF studies in which participants are enrolled from the USA and UK.

TL;DR: The first 21 physical activity items from the University of California San Diego Shortness of Breath Questionnaire compose a unidimensional dyspnea-with-activity scale and are both sensibly ordered and distinguished from each other by their METS values.

TL;DR: A longitudinal, pre-/post- study in which patient-reported outcome and activity data will be collected at baseline, immediately before daytime supplemental oxygen is initiated, and then once and again 9–12 months later, to assess the trajectories of outcomes over time.