Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis.

Background No systematic review and narrative synthesis on personal recovery in mental illness has been undertaken. Aims To synthesise published descriptions and models of personal recovery into an empirically based conceptual framework. Method Systematic review and modified narrative synthesis. Results Out of 5208 papers that were identified and 366 that were reviewed, a total of 97 papers were included in this review. The emergent conceptual framework consists of: (a) 13 characteristics of the recovery journey; (b) five recovery processes comprising: connectedness; hope and optimism about the future; identity; meaning in life; and empowerment (giving the acronym CHIME); and (c) recovery stage descriptions which mapped onto the transtheoretical model of change. Studies that focused on recovery for individuals of Black and minority ethnic (BME) origin showed a greater emphasis on spirituality and stigma and also identified two additional themes: culturally specific facilitating factors and collectivist notions of recovery. Conclusions The conceptual framework is a theoretically defensible and robust synthesis of people's experiences of recovery in mental illness. This provides an empirical basis for future recovery-oriented research and practice.

Conceptual framework for personal recovery in mental health: systematic review and narrative

https://onlinelibrary.wiley.com/doi/pdf/10.1002/wps.20084

Uses and abuses of recovery: implementing recovery‐oriented practices in mental health systems

Background: With online health information becoming increasingly popular among patients, concerns have been raised about the impact of patients’ Internet health information-seeking behavior on their relationship with physicians. Therefore, it is pertinent to understand the influence of online health information on the patient-physician relationship. Objective: Our objective was to systematically review existing research on patients’ Internet health information seeking and its influence on the patient-physician relationship. Methods: We systematically searched PubMed and key medical informatics, information systems, and communication science journals covering the period of 2000 to 2015. Empirical articles that were in English were included. We analyzed the content covering themes in 2 broad categories: factors affecting patients’ discussion of online findings during consultations and implications for the patient-physician relationship. Results: We identified 18 articles that met the inclusion criteria and the quality requirement for the review. The articles revealed barriers, facilitators, and demographic factors that influence patients’ disclosure of online health information during consultations and the different mechanisms patients use to reveal these findings. Our review also showed the mechanisms in which online information could influence patients’ relationship with their physicians. Conclusions: Results of this review contribute to the understanding of the patient-physician relationship of Internet-informed patients. Our main findings show that Internet health information seeking can improve the patient-physician relationship depending on whether the patient discusses the information with the physician and on their prior relationship. As patients have better access to health information through the Internet and expect to be more engaged in health decision making, traditional models of the patient-provider relationship and communication strategies must be revisited to adapt to this changing demographic. [J Med Internet Res 2017;19(1):e9]

https://ink.library.smu.edu.sg/cgi/viewcontent.cgi?article=4892&context=sis_research

Internet health information seeking and the patient-physician relationship: A systematic review

Aims: People with serious mental illness are increasingly turning to popular social media, including Facebook, Twitter or YouTube, to share their illness experiences or seek advice from others with similar health conditions. This emerging form of unsolicited communication among self-forming online communities of patients and individuals with diverse health concerns is referred to as peer-to-peer support. We offer a perspective on how online peer-to-peer connections among people with serious mental illness could advance efforts to promote mental and physical wellbeing in this group. Methods: In this commentary, we take the perspective that when an individual with serious mental illness decides to connect with similar others online it represents a critical point in their illness experience. We propose a conceptual model to illustrate how online peer-to-peer connections may afford opportunities for individuals with serious mental illness to challenge stigma, increase consumer activation and access online interventions for mental and physical wellbeing. Results: People with serious mental illness report benefits from interacting with peers online from greater social connectedness, feelings of group belonging and by sharing personal stories and strategies for coping with day-to-day challenges of living with a mental illness. Within online communities, individuals with serious mental illness could challenge stigma through personal empowerment and providing hope. By learning from peers online, these individuals may gain insight about important health care decisions, which could promote mental health care seeking behaviours. These individuals could also access interventions for mental and physical wellbeing delivered through social media that could incorporate mutual support between peers, help promote treatment engagement and reach a wider demographic. Unforeseen risks may include exposure to misleading information, facing hostile or derogatory comments from others, or feeling more uncertain about one's health condition. However, given the evidence to date, the benefits of online peer-to-peer support appear to outweigh the potential risks. Conclusion: Future research must explore these opportunities to support and empower people with serious mental illness through online peer networks while carefully considering potential risks that may arise from online peer-to-peer interactions. Efforts will also need to address methodological challenges in the form of evaluating interventions delivered through social media and collecting objective mental and physical health outcome measures online. A key challenge will be to determine whether skills learned from peers in online networks translate into tangible and meaningful improvements in recovery, employment, or mental and physical wellbeing in the offline world.

/pdf/the-future-of-mental-health-care-peer-to-peer-support-and-1ru3g16mn8.pdf

The future of mental health care: peer-to-peer support and social media

Objective: Hope has long been considered an important therapeutic factor in medicine, nursing and mental health and recently received attention as a central component of recovery. However, conceptual clarity, applicability and the predictive value of hope remain unclear. This review aims to define hope, review current approaches to assessment, and outline research evidence linking hope with effectiveness.

Method:  We conducted a comprehensive review of publications on the conceptualisation and measurement of hope, and on its use as a predictive variable specifically in mental health patients.

Results:  Forty-nine definitions of hope were identified, which were grouped into seven emergent dimensions. Thirty-two measurement tools were identified, although few have been used in research involving mental health patients. Eleven studies investigated hope as a predictive variable for differing outcomes, with inconclusive results.

Conclusion:  Many conceptual frameworks for hope have been proposed, but empirical evidence on its predictive power in mental health is lacking.

/pdf/hope-in-psychiatry-a-review-of-the-literature-3e0y77v2w5.pdf

Hope in psychiatry: a review of the literature

The impact of the social network, stigma and empowerment on the quality of life in patients with schizophrenia

Recovery from severe mental illness has become an increasingly relevant concept in the mental health field. Today, recovery orientation has already been introduced into mental health service provision in numerous countries. However, there is still confusion about both the theoretical concept as well as its practical implications. In this paper, we present a narrative literature review, illustrating the concept of recovery from different perspectives, outlining the related concept of resilience, and highlighting some practical issues of recovery orientation in mental health service provision.

Recovery in Mental Health: Reshaping scientific and clinical responsibilities

Determinants, self-management strategies and interventions for hope in people with mental disorders: Systematic search and narrative review

Foreword. Preface. About the Editors. About the Authors. Chapter 1 History, Context and Language ( Jan Wallcraft and Mary Nettle ). Chapter 2 Principles and Motives ( Alison Faulkner ). Chapter 3 Levels and Stages ( Angela Sweeney and Louise Morgan ). Chapter 4 Values ( Bill (KWM) Fulford and Jan Wallcraft ). Chapter 5 Roles ( Jasna Russo and Peter Stastny ). Chapter 6 Capacity-building ( Kim Hopper and Alisa Lincoln ). Chapter 7 Purposes and Goals ( Larry Davidson, Priscilla Ridgway, Timothy Schmutte and Maria O'Connell ). Chapter 8 Topics ( Paulo Del vecchio and Crystal R. Blyler ). Chapter 9 Methods ( Jean Campbell ). Chapter 10 Service Users as Paid Researchers ( Jonathan Delman and Alisa Lincoln ). Chapter 11 Consultation ( Virginia Minogue ). Chapter 12 Collaboration ( Diana Rose ). Chapter 13 Control ( Peter Beresford ). Chapter 14 Power ( Paddy McGowan, Liam Mac Gabhann, Chris Stevenson and Jim Walsh ). Chapter 15 Money ( Sarah Hamilton ). Chapter 16 Politics ( Daniel B. Fisher ). Chapter 17 Good Practice Guidance ( Beate Schrank and Jan Wallcraft ). Index.

Beate Schrank

Papers

Hope in psychiatry: a review of the literature

The impact of the social network, stigma and empowerment on the quality of life in patients with schizophrenia

Recovery in Mental Health: Reshaping scientific and clinical responsibilities

Determinants, self-management strategies and interventions for hope in people with mental disorders: Systematic search and narrative review

Handbook of Service User Involvement in Mental Health Research