Showing papers by "Carlo Schuengel published in 2023"
1 citations
TL;DR: The unresolved state of mind construct has been influential for three decades of research in developmental psychology as mentioned in this paper , and not much is known about how this measure of unresolved trauma was developed, and how it relates to other conceptualisations of trauma.
Abstract: This article examines how ‘trauma’ has been conceptualised in the unresolved state of mind classification in the Adult Attachment Interview, introduced by Main and Hesse in 1990. The unresolved state of mind construct has been influential for three decades of research in developmental psychology. However, not much is known about how this measure of unresolved trauma was developed, and how it relates to other conceptualisations of trauma. We draw on previously unavailable manuscripts from Main and Hesse's personal archive, including various editions of unpublished coding manuals, and on Main–Bowlby correspondence from the John Bowlby Archive at the Wellcome Trust in London. This article traces the emergence of the unresolved state of mind classification, and examines the assumptions about trauma embedded in the construct. These assumptions are situated both in the immediate context of the work of Main and Hesse and in terms of wider discourses about trauma in the period. Our analysis considers how a particular form of trauma discourse entered into attachment research, and in doing so partly lost contact with wider disciplinary study of trauma.
1 citations
TL;DR: In this article , a randomized controlled trial evaluated the Attune & Stimulate-checklist, a tool for detecting subtle and idiosyncratic communicative behaviours and responding adequately, in adults with severe to profound intellectual disabilities.
Abstract: BACKGROUND
Sensitive responsiveness is an important aspect in affect-regulation of people with severe to profound intellectual disabilities.
AIM
This randomized controlled trial evaluated the Attune & Stimulate-checklist, a tool for detecting subtle and idiosyncratic communicative behaviours and responding adequately.
METHODS
Effects on the sensitive responsiveness of professional caregivers and the arousal and valence of adults with severe to profound intellectual disabilities were investigated. Video recordings of 102 interactions were analysed with several observation instruments.
RESULTS
Although no significant effect was found on the checklist-suggestions of responsive behaviours (d = 0.33, p = .052), the intervention increased caregivers' sensitive responsive and affective behaviour (d = 0.94 - 1.10, p < .001) and clients' optimal arousal (d = 0.48, p = .019) and interactive engagement (d = 0.40 - 0.48, p = .018 - .050).
CONCLUSION
This low-intensity intervention had a medium to large immediate effect on the interaction. Future research should investigate medium- and long-term effects.
TL;DR: In this article , a consensus statement was developed in three consecutive rounds of questionnaires (rapid online modified Delphi design) aimed mainly at care professionals, families of people with intellectual disabilities and managers of sheltered care facility homes.
Abstract: Introduction Digital social contact is increasingly being used, which accelerated during the COVID-19 pandemic. This study aimed to determine the consensus among stakeholders regarding recommendations for the use and facilitation of digital social contact for people with intellectual disabilities living in sheltered care facility homes.Methods This consensus statement was developed in three consecutive rounds of questionnaires (rapid online modified Delphi design). The expert-groups included people with disabilities (N = 6) and their families (N = 10), support professionals (N = 9), behavioural consultants (N = 7), managers of sheltered care facility homes (N = 10), scientists and industry experts (N = 15).Findings Four main themes were identified: 1. Reasons for and types of digital social contact; 2. Support and training needs; 3. Materials and other requirements needed to enable digital social contact; and 4. Best practices and future developments. For each theme, several recommendations were formulated.Discussion and conclusion This study resulted in a consensus statement aimed mainly at care professionals, families of people with intellectual disabilities and managers of sheltered care facility homes. Findings show that digital social contact can contribute to societal participation of people with disabilities. Additionally, tailored exploration of digital contact is recommended, as well as aiming for inclusive-by-design technology developments with developers and stakeholders working together.
TL;DR: In this paper , the authors explored heterogeneity in social participation among young people with vision impairment and found that participants in the two largest clusters had the highest social participation scores, while participants in cluster 8 had the lowest social participation score.
Abstract: Young people may adapt to vision impairment (VI) in a variety of ways. To explore heterogeneity in social participation, data were mined for distinct patterns. Existing data from 258 young people with VI, aged between 26 and 44 years ( M = 35.3 years; SD = 5.07), were clustered. Social participation was measured by four closed-ended questions and the Social Network Map. Loneliness was measured by the De Jong Gierveld Loneliness scale. K-medoids clustering with the Partitioning Around Medoids (PAM) algorithm was used to cluster social participation variables and age.Eight clusters were identified, with participants in the two largest clusters, clusters 1 ( n = 84) and 2 ( n = 50), scoring high on almost all social participation outcomes. Participants in cluster 8 ( n = 14) had the lowest social participation scores. However, also over half of the participants in clusters 4, 5, 6, and 7 experienced feelings of loneliness. Findings demonstrate considerable heterogeneity in social participation among young people with VI, which however does not link to loneliness. These variations in social participation underline the need for a differentiated approach to address needs of young people with VI.
TL;DR: In this paper , a systematic review describes existing interventions aimed to support self-determination or components thereof and synthesises evidence on the interventions' effects, including increased assistance, engagement in meaningful activities and relationships, community participation, community and societal participation, and supporting the basic psychological needs autonomy, competence and relatedness.
Abstract: People with severe or profound intellectual disabilities (IDs) are believed to experience low levels of self-determination, which negatively affects their quality of life. This systematic review describes existing interventions aimed to support self-determination or components thereof and synthesises evidence on the interventions' effects. Eight databases were searched, turning in 76 articles for the final inclusion. The studies included 631 people with severe or profound IDs of whom 81% had multiple disabilities. The studies had quantitative (k = 63), qualitative (k = 7) and mixed study designs (k = 6). Sample sizes ranged from 1 to 95 and a study quality index ranged from 40% to 100%. While many studies included several self-determination components and intervention elements, overall, 53 studies focused on the self-determination components choice making, independence and problem solving. Other studies included increased assistance (k = 14); engagement in meaningful activities and relationships (k = 10); community and societal participation (k = 5); supporting the basic psychological needs autonomy, competence and relatedness (k = 4); individuality and dignity (k = 3); supportive decision-making (k = 2); self-advocacy (k = 2); and motivation (k = 1). Intervention elements included technology (k = 33); multiple-component training packages, goal setting, empowerment tactics and applied behaviour principles (k = 17); training of caretakers (k = 17); changes in policies and living arrangements (k = 9); supporter responsiveness (k = 1); drama therapy and storytelling (k = 1); electrical wheelchair training (k = 1); joint painting procedure (k = 1); youth advocacy project (k = 1); and multiliteracies training (k = 1). Reflecting the heterogeneity of the field, only four studies tested a similar intervention for this population and were eligible for the meta-analysis, which combined showed a small effect size of 2.69. Further research is needed to explore relationships between individuals with severe or profound IDs and their relatives and health care professionals and create supportive environments that meet their basic psychological needs.