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Carolyn J. Barg
Researcher at University of Toronto
Publications - 11
Citations - 164
Carolyn J. Barg is an academic researcher from University of Toronto. The author has contributed to research in topics: Psychosocial & Newborn screening. The author has an hindex of 7, co-authored 11 publications receiving 116 citations.
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Journal ArticleDOI
Public views on participating in newborn screening using genome sequencing
Yvonne Bombard,Fiona A. Miller,Robin Z. Hayeems,Carolyn J. Barg,Céline Cressman,June C. Carroll,Brenda Wilson,Julian Little,Denise Avard,Michael Painter-Main,Judith Allanson,Yves Giguère,Pranesh Chakraborty +12 more
TL;DR: The findings suggest that integrating WG/ES into NBS might reduce participation, and challenge the moral authority that NBS programmes rely upon to ensure population benefits, and point to the need for caution in the untargeted use of WG-ES in public health contexts.
Journal ArticleDOI
Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis.
Robin Z. Hayeems,Fiona A. Miller,Carolyn J. Barg,Yvonne Bombard,Elizabeth Kerr,Karen Tam,June C. Carroll,Beth K. Potter,Pranesh Chakraborty,Pranesh Chakraborty,Christine Davies,Jennifer Milburn,Sarah J. Patton,Jessica P. Bytautas,Louise Taylor,April Price,Tanja Gonska,Katherine Keenan,Felix Ratjen,Astrid Guttmann +19 more
TL;DR: Although immediate distress was reported among mothers of FP infants, selected psychometric tools did not detect these concerns and the screening system reflected herein may be a model for NBS programs working to minimize FP-related psychosocial harm.
Journal ArticleDOI
Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis
Robin Z. Hayeems,Fiona A. Miller,Carolyn J. Barg,Yvonne Bombard,Yvonne Bombard,June C. Carroll,Karen Tam,Elizabeth Kerr,Pranesh Chakraborty,Pranesh Chakraborty,Beth K. Potter,Sarah J. Patton,Jessica P. Bytautas,Jessica P. Bytautas,Louise Taylor,Christine Davies,Jennifer Milburn,April Price,Tanja Gonska,Katherine Keenan,Felix Ratjen,Astrid Guttmann +21 more
TL;DR: Inconclusive CF NBS results were not associated with anxiety or vulnerability but led to health‐related uncertainty and qualitative concerns, which should be considered alongside efforts to optimize protocols for CF screening and surveillance.
Journal ArticleDOI
How Procurement Judges The Value of Medical Technologies: A Review of Healthcare Tenders.
Fiona A. Miller,Pascale Lehoux,Stuart Peacock,Valeria E. Rac,Jeff Neukomm,Carolyn J. Barg,Jessica P. Bytautas,Murray Krahn +7 more
TL;DR: While aiming to go beyond price in the acquisition of most medical technologies, procurement adopts a narrow approach to assessing quality and costs, but also attends to factors little considered by HTA, suggesting opportunities for mutual lesson learning.
Journal ArticleDOI
Public Perceptions of the Benefits and Risks of Newborn Screening.
Fiona A. Miller,Robin Z. Hayeems,Yvonne Bombard,Yvonne Bombard,Céline Cressman,Carolyn J. Barg,June C. Carroll,Brenda Wilson,Julian Little,Judith Allanson,Judith Allanson,Pranesh Chakraborty,Pranesh Chakraborty,Yves Giguère,Dean A. Regier,Dean A. Regier +15 more
TL;DR: Support for newborn screening policies prioritizing clinical benefits over solely informational benefits is suggested, coupled with concerted efforts to avoid or minimize harms.