Jane Kaye

TL;DR: This research utilizes findings from two web-based surveys, completed in 2015 that targeted public health officials and health care providers in 76 countries with high global maternal and child mortality burden and found that the prevailing legal landscape is characterized by inadequate data security safeguards and weak support for core privacy principles.

TL;DR: Dynamic consent (DC) as mentioned in this paper is both a model and a specific web-based tool that enables clear, granular communication and recording of participant consent choices over time, and it enables individual consent choices to be expressed and recorded over time.

TL;DR: The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.

TL;DR: Despite its focus on consent the new Human Tissue Act 2004 allows for testing without consent where a relative could benefit, and should take measures to limit the potential harm that can be caused.

TL;DR: The way that UK law may respond to three key challenges of genome-wide sequencing is explored and new legal duties in relation to feedback of findings that are unrelated to the presenting condition are established.