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Cultural Attitudes and Caregiver Service Use: Lessons from Focus Groups with Racially and Ethnically Diverse Family Caregivers

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TLDR
Analysis of focus group transcripts revealed three cross-cutting constructs: familism, group identity, and attitudinal and structural barriers to service use that have implications for existing knowledge regarding family responsibility, resource utilization, and program development for racially and ethnically diverse family caregivers.
Abstract
Focus groups were conducted with caregivers from eight racial-specific or ethnic-specific populations (African Americans, Chinese, Filipinos, Hispanics, Koreans, Native Americans, Russians, and Vietnamese), to examine cultural variations in caregiving experiences, care-related values and beliefs, care practices, and factors contributing to decisions about the use of caregiver support services. Analysis of focus group transcripts revealed three cross-cutting constructs: familism, group identity, and attitudinal and structural barriers to service use. We discuss these findings in terms of their implications for existing knowledge regarding family responsibility, resource utilization, and program development for racially and ethnically diverse family caregivers.

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The impact of familism on physical and mental health among Hispanics in the United States

TL;DR: This review will provide a summary of the literature exploring familism within the structure of the Hispanic family and its potential impact on health by noting some of the clinical and ethical implications of this research, and offering suggestions for future work in this area.
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Political violence, psychosocial trauma, and the context of mental health services use among immigrant Latinos in the United States.

TL;DR: Perceived need for mental health services use is the strongest correlate of any lifetime and last-12-months service use and a need for systematic screening for trauma and related psychiatric disorders is suggested.
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Reviews: Developing Culturally Sensitive Dementia Caregiver Interventions: Are We There Yet?

TL;DR: A systematic review of literature published from 1980 to 2009 identified differences in caregiving experiences of African American, Latino, and Chinese American caregivers; psychosocial support interventions in these groups; and cultural tailoring of interventions.
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Adapting research methodology during COVID-19: lessons for transformative service research

TL;DR: In this paper, the authors evaluated and gained important new insights of a group interviewing method with vulnerable people and their support group, adapted and transferred online during Coronavirus disease 2019 (COVID-19) and found that the benefits include being comfortable, non-intrusive and safe; engaging and convenient; online communication ease and easy set-up.
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Psychosocial factors and caregivers' distress: effects of familism and dysfunctional thoughts.

TL;DR: This study provides support for the importance of conceptualizing familism as a multidimensional construct with both positive and negative effects on caregivers’ emotional distress and suggests thatfamilism affects emotional distress through dysfunctional thoughts rather than through burden appraisals.
References
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Journal ArticleDOI

Caregiving as a risk factor for mortality: the Caregiver Health Effects Study.

TL;DR: This study suggests that being a caregiver who is experiencing mental or emotional strain is an independent risk factor for mortality among elderly spousal caregivers.
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Getting the Focus and the Group: Enhancing Analytical Rigor in Focus Group Research:

TL;DR: Analytical challenges inherent in the interpretation of focus group data are described and approaches for enhancing the rigor of analysis and the reliability and validity of focus groups findings are suggested.
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Issues of Race, Ethnicity, and Culture in Caregiving Research A 20-Year Review (1980–2000)

TL;DR: Caregiving experiences and outcomes varied across racial and ethnic groups, and the use of nontheoretical approaches, nonprobability samples, and inconsistent measures among studies has limited understanding of caregiving among diverse populations.
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The Influence of Ethnicity and Culture on the Caregiver Stress and Coping Process: A Sociocultural Review and Analysis

TL;DR: It is suggested that ethnicity and culture play a significant role in the stress and coping process for Latino caregivers and Socioeconomic class and minority group status are discussed as additional sources of variation in the caregiver stress and cope model.
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Racial, Ethnic, and Cultural Differences in Dementia Caregiving: Review and Analysis

TL;DR: Compared to White caregivers, non-White caregivers were less likely to be a spouse and morelikely to be an adult child, friend, or other family member, and were more likely to use prayer, faith, or religion as coping mechanisms.
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