Objectives Although patient education is recommended to facilitate the transition from pediatric to adult care, a consensus has not been reached for a particular model. The specific skills needed for the transition to help in facilitating the life plans and health of young people are still poorly understood. This study explored the educational needs of young people with diverse chronic conditions during their transition from pediatric to adult care. Methods Qualitative semi-structured interviews were conducted with 17 young people with chronic conditions. A thematic analysis was conducted to examine the data. Results Five themes emerged from the data, identified through the following core topics: learning how to have a new role, learning how to adopt a new lifestyle, learning how to use a new health care service, maintaining a dual relationship with pediatric and adult care, and having experience sharing with peers. Conclusion A shift in perspective takes place when the transition is examined through the words of young people themselves. To them, moving from pediatric to adult care is not viewed as the heart of the process. It is instead a change among other changes. In order to encourage a transition in which the needs of young people are met, educational measures could focus on the acquisition of broad skills, while also being person-centered.

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A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care.

Growth hormone (GH) promotes growth in children, but is also essential for bone strength, body composition, metabolic factors, such as lipid profile, and maintenance of quality of life. The Merck KGaA (Germany) funded "360° GH in Europe" meeting, held in Lisbon, Portugal, in June 2016, comprised three sessions entitled "Short Stature Diagnosis and Referral," "Optimizing Patient Management and Adherence," and "Managing Transition." The scientific program covered all stages of pediatric GH treatment, and reported here are the outcomes of the third session of the meeting, which considered transition from pediatric GH treatment to teenage and young adult GH therapy. A large number of patients with chronic diseases, including GH deficiency, drop out of therapy during the transition period. Multiple factors are associated with this, such as lack of understanding of the disease process, insufficient knowledge of treatment options, the patient becoming more independent, and requirement for interaction with a new set of health-care workers. Education regarding disease management and treatment options should be provided from an early age and right through the transition period. However, endocrine specialists will view the transition period differently, depending on whether they are pediatric endocrinologists who mainly deal with congenital diseases, in which auxology is important, or adult endocrinologists who are more concerned with body composition and metabolic factors. View points of both a pediatric and an adult endocrine specialist are presented, together with a case study outlining practical aspects of transition. It was noted in the meeting discussion that having one person to guide a patient through transition from an early age is important, but may be constrained by various factors such as finances, and options will differ by country.

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Managing Transition in Patients Treated with Growth Hormone.

Avant-propos: Regards croisés sur la transition de l’adolescent en diabétologie

Comment les psychologues pédiatriques se représentent la transition au milieu adulte ? Une étude qualitative sur les facilitateurs et les obstacles perçus

Resume Introduction L’objet de cet article est de contribuer a mieux definir la transition des patients, porteurs de pathologies endocriniennes chroniques des services de pediatrie vers les services d’adultes. Il s’agit de preciser les moyens et les competences qu’elle requiert chez l’adolescent et les equipes soignantes, afin de proposer quelques modalites pouvant contribuer a garantir une meilleure qualite de la prise en charge de ces jeunes patients. Methodes Ce programme s’appuie sur les mouvements psychiques propres a l’adolescence. Des seances de groupe sont proposees lors d’une premiere journee puis a distance des entretiens individuels. Une analyse thematique des seances et les reponses a des questionnaires ont permis l’elaboration de diagnostic educatif individuel et d’evaluer l’autonomie des jeunes adolescents. Resultats Cinquante jeunes patients ayant des pathologies rares sur 214 adresses par les services pediatriques ont participe au programme d’education therapeutique (ETP) – transition entre le 1er janvier 2011 et le 30 septembre 2014. Un an apres cette journee ETP, 48 patients sont venus aux consultations et on observe chez eux une evolution dans leur autonomie. Conclusion Il reste des progres a realiser quant a l’organisation de ce programme d’ETP et en particulier sur les modalites d’inclusion des jeunes patients dans ce programme transition.

Un programme d’éducation thérapeutique centré sur la transition des patients, avec endocrinopathie chronique, entre les services d’endocrinologie pédiatrique et adulte

Zeina Chakhtoura

Papers

Un programme d’éducation thérapeutique centré sur la transition des patients, avec endocrinopathie chronique, entre les services d’endocrinologie pédiatrique et adulte