Protecting patients in health information exchange: a defense of the HIPAA privacy rule.
TLDR
Regional health information organizations (RHIOs) rapidly integrate and deliver patient information to clinicians from multiple independent care organizations so that they can reduce health care costs and improve safety.Abstract:
Regional health information organizations (RHIOs) rapidly integrate and deliver patient information to clinicians from multiple independent care organizations. By providing such information, they can reduce health care costs and improve safety. Special concerns about privacy arise as these regional systems connect nationally. We should add special barriers beyond the protections of the Health Insurance Portability and Accountability Act (HIPAA) to protect against surprises at the national level. At the local level, we should remain within the HIPAA rules because the application of additional barriers to RHIO access would interfere with efficient and safe care.read more
Citations
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Communication Privacy Management Theory: What Do We Know About Family Privacy Regulation?
TL;DR: In this article, the authors present the evidenced-based theory of communication privacy management (CPM) and corresponding research on family privacy regulation that provides a road map to understand the multifaceted nature of managing private information.
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The Impact of Privacy Regulation and Technology Incentives: The Case of Health Information Exchanges
TL;DR: The results show that the impact of privacy regulation on the success of information technology efforts is heterogeneous: both positive and negative effects can arise from regulation, depending on the specific attributes of privacy laws.
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The Potential of Blockchain Technology for Health Information Exchange: Experimental Study From Patients' Perspectives.
Pouyan Esmaeilzadeh,Tala Mirzaei +1 more
TL;DR: The findings show that there are significant differences in patients’ perceptions of various exchange mechanisms with regard to patient privacy concern, trust in competency and integrity, opt-in intention, and willingness to share information.
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The Differing Privacy Concerns Regarding Exchanging Electronic Medical Records of Internet Users in Taiwan
TL;DR: This study recommends that the Taiwanese government organizes a comprehensive EMR awareness campaign, emphasizing unauthorized access and secondary use of EMRs, to cultivate the public’s understanding of E MRs and facilitate the future implementation of HIE.
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Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations
TL;DR: The PCARE framework allows prior imaging data to be shared among unaffiliated healthcare facilities while protecting patient privacy with minimal burden on patients, providers, and infrastructure.
References
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Privacy As An Enabler, Not An Impediment: Building Trust Into Health Information
Deven McGraw,James X. Dempsey +1 more
TL;DR: The privacy issue can be resolved through a comprehensive framework that implements core privacy principles, adopts trusted network design characteristics, and establishes oversight and accountability mechanisms.
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Privacy as an enabler, not an impediment: building trust into health information exchange.
TL;DR: In this article, the privacy issue, too long seen as a barrier to electronic health information exchange, can be resolved through a comprehensive framework that implements core privacy principles, adopts trusted network design characteristics, and establishes oversight and accountability mechanisms.
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State and community-based efforts to foster interoperability.
TL;DR: The MidSouth eHealth Alliance is developing a comprehensive health information infrastructure supporting providers in three Tennessee counties with success in its first year is the result of sustained leadership, a systematic assessment of regional needs and capabilities, a flexible technical architecture, and a critical review of best practices from four different data exchange models already operating in other states.