Journal ArticleDOI
Psychological aspects of the care of children with cystic fibrosis.
TLDR
With early recognition of the disease the patient and his family often become involved in a program of intensive treatment that continues for the remainder of his life, with death usually intervening in early adult life.Abstract:
Recent advances in detection and management of cystic fibrosis have significantly improved the affected individual’s chances of survival beyond childhood years. With early recognition of the disease the patient and his family often become involved in a program of intensive treatment that continues for the remainder of his life.1’3 The daily care at home necessitates large expenditures of time and effort for the patient and his parents. The financial burden can be considerable, resulting often in the depletion of savings and the forgoing of luxuries and vacations. Siblings frequently must defer their needs and desires as the patient becomes the focus of attention. In the more severe cases, recurrent hospitalization of the sick child for complications disrupts family routine and creates emotional crises. Finally, despite the most adequate care, the course of the disease may be inexorable, with death usually intervening in early adult life4.read more
Citations
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Book ChapterDOI
Coping and Adjustment of Children with Neurological Disorder
TL;DR: In this paper, the authors pointed out that the study of developmental brain-behavior relationships can be so intrinsically fascinating, so alluring, that many of us cannot imagine being satisfied in another domain of study.
Journal ArticleDOI
Chronic Illness and Preterm Infants: Family Stress and Support Issues
TL;DR: The Chronically Ill Infant Intervention (CIII) Project and its broad based interdisciplinary intervention is used to illustrate the changing needs of this population and the need for longitudinal studies of chronically ill infants from the point of diagnosis.
Book ChapterDOI
Psychosocial Assessment in Chronic and Fatal Illness
TL;DR: Children with chronic diseases comprise a sizable population who may at some time require the intervention of a mental health professional and many more receive care in special centers or hospital-based clinics.
Journal ArticleDOI
Identifying children at high somatic risk: possible long-term effects on the parents' relationship to the child.
TL;DR: The evidence did not support the hypothesis of a negative effect on the parents’ relationship to the child by comparing selected aspects of the parent‐child relationship in the families of 61 clinically healthy 5–7‐year‐old children with ATD versus the Families of 61 control children without ATD.
Journal ArticleDOI
Emotional health in children and adolescents with cystic fibrosis.
TL;DR: The unexpected good psychological results obtained from psychometric instruments could be explained by the fact that CF children accept the real situation and express vivacity, however, their deep feelings of fear impose on them high level of self-control and resistance.
References
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Book
The Ego and the Mechanisms of Defence
TL;DR: In this paper, the ego wards off unpleasure and anxiety, and exercises control over impulsive behavior, affects, and instinctive urges, in psychoanalytic psychology.
Book
American handbook of psychiatry
TL;DR: The American Handbook of Psychiatry is an attempt to catalogue and explain the development of psychiatry in the United States in the period of 175 years.
Journal ArticleDOI
Impact of cystic fibrosis on family functioning.
TL;DR: The need for the total family to have an understanding and awareness of CF and to share such knowledge with one another is pointed up; that all problems of the family have to be considered and not just those of the CF child; and that help from other professional people should be utilized along with sources of the community.