Journal ArticleDOI
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study.
Nicole R. Smith,Nicole R. Smith,Jill Bally,Jill Bally,Lorraine Holtslander,Lorraine Holtslander,Lorraine Holtslander,Shelley Peacock,Shelley Peacock,Shelley Spurr,Shelley Spurr,Heather Hodgson-Viden,Heather Hodgson-Viden,Chris Mpofu,Marcelline Zimmer +14 more
TLDR
This study gathered expert opinions from parents and formal care providers about the four subproceses essential to parental hope to increase understanding of parental caregivers current support needs and offered direction in the development of a theory-based hope intervention.Abstract:
BACKGROUND The impact of a child s life-limiting or life-threatening illness is significant on parents who experience a great deal of emotional, physical, and spiritual upheaval. Hope has been identified as an important inner resource for parental caregivers. Specifically, parental hope has been described as having four subproceses including Accepting Reality, Establishing Control, Restructuring Hope, and Purposive Positive Thinking. PURPOSE The purpose of this Delphi study was to gather expert opinions from parents and formal care providers about the four subproceses essential to parental hope, to increase understanding of parental caregivers current support needs. As Phase one of a three-phase study, the findings provided direction in the development of a theory-based hope intervention. DESIGN AND METHODS A Delphi study consisting of three rounds of survey questions and controlled feedback to experts was employed. Experts suggested strategies for each subprocess and ranked them in order of highest to lowest according to feasibility and effectiveness. RESULTS Sixty-eight experts consisting of parental caregivers of children diagnosed with life-limiting or life-threatening illnesses and those who care for them (community members, nurses, social workers, and physicians) were recruited to participate. Through three rounds of survey questions, response rates ranged from 92-97%. A consensus revealed eight major themes that support parental hope: Organize Basic Needs; Connect with Others; Prioritize Self-care; Obtain Meaningful Information; Take Things Day by Day; Advocate for Parental Participation; Manifest Positivity; and Celebrate Milestones. PRACTICE IMPLICATIONS This study identified a wide variety of psychosocial needs for parental caregivers. Results also offered direction for a theory-based hope intervention while highlighting the need for additional research in this area. These results will provide the foundation for a booklet parents can work through in their journey of caring for a child with a life-limiting or life-threatening illness.read more
Citations
More filters
Parental experience of childhood cancer using Interpretative Phenomenological Analysis
TL;DR: Findings indicate that parents express both negative and positive experiences as they re-evaluate the meaning and purpose of life, seek to redefine themselves, often in terms of priorities, relationships, sense of community and achieve degrees of optimism and altruism.
Journal ArticleDOI
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review:
TL;DR: A systematic and regular assessment of individual parent caregiver support needs is required by using instruments appropriate to use in clinical practice to move the focus to palliative care interventions and improved services for parents.
Journal ArticleDOI
Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review.
TL;DR: Gaining a greater understanding of how closeness and professionalism are successfully managed by children's palliative care nurses could positively influence pre- and post-registration nurse education.
Journal ArticleDOI
Severity of allergic rhinitis assessed by using urine metabolomic profiling: Proof of concept.
Darryl J. Adamko,Darryl J. Adamko,Mona M. Khamis,Lisa M. Steacy,Shana Regush,Rhonda Bryce,Anne K. Ellis +6 more
TL;DR: It is suggested that a metabolomic approach could become a diagnostic/monitoring solution in clinical trials or in a typical doctor's office.
References
More filters
ERIC/ECTJ Annual Review Paper Criteria for Assessing the Trustworthiness of Naturalistic Inquiries
TL;DR: The ERIC/ECTJ Annual Review Paper as mentioned in this paper was published by the National Institute of Education (NIE), U.S. Department of Education, and was supported by the ERIC (Educational Resources Information Center) Clearinghouse on Information Resources.
Book
Measurement in Nursing and Health Research
TL;DR: Part I: Basic Principles of Measurement An Introduction to Measurement Operationalizing Nursing Concepts Measurement Theories and Frameworks
Journal ArticleDOI
The Delphi technique: a worthwhile research approach for nursing?
TL;DR: An overview of what the Delphi technique is, the criteria for selecting it as a research approach, the studies where it has been used and its advantages and disadvantages are given.
Journal ArticleDOI
Research guidelines for the Delphi survey technique: Delphi survey technique
Book
Interpretive Description: Qualitative Research for Applied Practice
TL;DR: The second edition of Interpretive Description as discussed by the authors includes additional material on knowledge synthesis and integration, evidence-based practice, and data analysis, taking the reader through the qualitative research process, from research design through fieldwork, analysis, interpretation, and application of the results.