On what grounds can anyone judge that some quality of life would be undesirable for a patient who Cannot make or express such Judgement?
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370 Citations | These findings suggest that heart failure patients express meaningful preferences about quality vs length of life. |
| These findings highlighted the need for treatment decisions to be based on an assessment of quality as well as quantity of life for this patient population. | |
| Quality of life measurements are best done by patients themselves, although, in some situations a proxy such as carer or relative can be substituted. | |
83 Citations | If symptoms and physical dysfunction are components, there’s no need to define and measure a distinct quality of life concept, and any improvement in symptoms or function would improve a patient’s quality of life assuming other components of quality of life, whatever they might be, don’t deteriorate. |
28 Citations | Although 'humanistic' psychologists still maintain that what can be specified and measured is precisely what is not quality of life, time has shown that the major components of quality of life in health and disease can be measured with an acceptable internal as well as external validity. |
| Pointing out that the Jobes decision "barely acknowledges or answers the criticisms" of the substituted judgement standard, Emanuel argues that deciding what a person whose views concerning life-sustaining treatment are unknown or unclear would want if competent is "conceptually impossible." | |
20 Citations | It is important to try to ascertain what the patient thought about quality-of-life values before surrogate decisions can be made on the patient's behalf. |
| Therefore, quality of life may be a better assessment of patient outcomes than survival. | |
17 Citations | It is argued that the unique individual perspective of the patient on his or her own quality of life must be i... |
19 Citations | The findings highlight that specific patient characteristics may be associated with quality of life changes. |
| Accurate assessment of quality of life may be useful for patient management. | |
| Today it is becoming clear that patients and doctors appraise quality of life differently, and it is definitely the patient who should do the assessment.2, 3 Quality of life can be viewed and assessed indirectly or directly, and there are proponents for these views. | |
97 Citations | It is argued that the unique individual perspective of the patient on his or her own quality of life must be incorporated into outcome assessments aimed at improving the quality of health care delivery in progressive diseases. |
17 Citations | It is argued that the unique individual perspective of the patient on his or her own quality of life must be incorporated into outcome assessments aimed at improving the quality of healthcare delivery in chronic diseases and in terminal conditions. |
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What is the quality of life of patients with TB?5 answersThe quality of life (QoL) of patients with tuberculosis (TB) varies across different studies. In Alexandria, Egypt, TB patients had lower QoL scores compared to TB-free individuals. Conversely, in Southwest Nigeria, drug-susceptible TB patients exhibited a good overall QoL, with the environmental domain scoring the highest. A study in Rawalpindi, Pakistan, highlighted that TB negatively impacts mental health, social function, and emotional aspects of QoL. Additionally, a study in Bangladesh found that TB patients had significantly lower QoL scores before treatment compared to healthy controls, with improvements observed after six months of treatment. Factors influencing QoL included age, gender, education, income, and disease duration. These findings emphasize the importance of addressing QoL to enhance patient compliance and overall well-being during TB treatment.
Issues in quality of life of psychiatric patient5 answersQuality of life (QoL) is an important aspect in the treatment of psychiatric patients, especially those with chronic illnesses or long-term impairments. Patients and their family caregivers face numerous psychological and social challenges throughout the disease trajectory, including the need to make complex medical decisions and the presence of psychological distress. General psychiatric disorders can have a significant impact on the quality of life, comparable to severe chronic somatic diseases. However, research on QoL in psychiatric patients is not as comprehensive as in other medical domains. It is crucial to measure QoL from both the patient's perspective and the observer's perspective, taking into account the social, economic, and cultural background of the patient. The latest studies emphasize the importance of meeting patients' needs and satisfaction with services in improving their subjective quality of life. Further research is needed to explore the correlation between patients' needs, satisfaction with services, social functioning, and overall quality of life.
Is quality of life reduced in patients with ss?3 answersQuality of life is reduced in patients with osteoporosis, schizophrenia negative symptoms (SNS), psoriasis, and cervical cancer. In patients with osteoporosis, physical and social function is significantly impaired, with high body mass index (BMI) and an increased risk of fragility fracture being the main determinants of this impairment. For patients with SNS, no specific health-related quality of life (HRQoL) instrument has been validated, and it remains unclear which instruments can be used to assess HRQoL in these patients. Psoriasis patients have significantly diminished quality of life, psychological and social functioning, with severe psoriasis patients perceiving lower overall health satisfaction and psychological domain of quality of life compared to mild psoriasis patients. Cervical cancer can reduce the quality of life of women, affecting their physical health, psychological conditions, social relationships, and involvement with something meaningful in their environment.
What is the impact of CAPD on the quality of life of patients?4 answersContinuous Ambulatory Peritoneal Dialysis (CAPD) has been recommended as the first choice of renal replacement therapy in Indonesia since 2010. However, the impact of CAPD on the quality of life (QoL) of patients has not been evaluated. Acne, a common inflammatory skin disorder, can negatively affect self-perception and social and psychological aspects of life quality. In a study comparing QoL in diabetic patients, CAPD patients scored poorly in the physical domain but showed good mental adaptation. CAPD patients with diabetes exhibited worse QoL in physical functioning, energy, vitality, leisure activity, and eating/drinking limitations. Overall, CAPD patients had a positive perception of QoL, with higher scores in general health, social functioning, mental well-being, and physical well-being compared to maintenance hemodialysis patients. Nurses could arrange specific interventions to improve the physical health of CAPD patients. Assessment of life quality in acne patients is crucial before deciding on the line of treatment.
Do you ever have trouble understanding the patient's wishes?4 answersUnderstanding the patient's wishes can be challenging, especially when they are unable to communicate clearly or when their family members are upset and attempting to terminate the evaluation. Additionally, the stress of the situation and the patient's inability to express their needs can make it difficult to determine what they truly want. Patient preferences extend beyond treatment options and involve a wider range of considerations. Assessing decision-making capacity can be particularly challenging in patients with conditions that affect their ability to communicate effectively. In cases where a patient has unrealistic hopes in the face of a grave prognosis, it is the clinician's responsibility to identify barriers to understanding and evaluate the risks and benefits of more frank discussions.
How should you assist the patient to facilitate maximum health and quality of life?7 answers