Francis Kombe

TL;DR: The Kilifi Health and Demographic Surveillance System (KHDSS), located on the Indian Ocean coast of Kenya, was established in 2000 as a record of births, pregnancies, migration events and deaths and is maintained by 4-monthly household visits.

TL;DR: This paper describes a network of community members linked to a large multi-disciplinary research programme on the Kenyan Coast and concludes that this evolving network is a potentially valuable way of strengthening interactions between a research institution and a local geographic community.

TL;DR: Institutional trust-building processes seen as central to perceptions of fairness in sharing research data in this setting are discussed, including forms of community involvement, individual prior awareness and agreement to data sharing, independence and accountability of governance mechanisms, and operating under a national framework.

TL;DR: This discussion discusses how informed consent processes are modified by taking into account local social, cultural, and economic contexts in the design and administration of consent forms.

TL;DR: Concerns about undue inducement in low-income communities may often be misplaced; it is argued that greater attention should be placed on avoiding unfairness, particularly for the most-poor.