Rebecca Gasior Altman

TL;DR: Various elements of social movement theory are employed to offer an approach to understanding embodied health movements, and a capsule example of one such movement is provided, the environmental breast cancer movement.

TL;DR: These are among the first published accounts of participants' responses to learning personal exposure data, research identified as critical to environmental science and public health, that raise the importance of reporting even uncertain science and underscore the value of a community-based reporting strategy.

TL;DR: Public deliberation about communication in personal exposure assessment research suggests that new forms of community-based research ethics and participatory scientific practice are emerging.

TL;DR: In this paper, the authors consider ethical issues involved in the decision to report individual results in exposure studies and what information should be included, based on their experience with 120 women in a study of 89 pollutants in homes.

TL;DR: In this paper, the authors identify three paradigm challenges posed by activists and some scientists: (1) to move debates about causation upstream to address causes; (2) to shift emphasis from individual to modifiable societal-level factors beyond an individual's control; and (3) to allow direct lay involvement in research, which may raise new questions and change how questions are approached, the methods used, and the standards of proof.