Showing papers by "Tamar Heller published in 2009"
TL;DR: Siblings who were most involved in future planning were older, more involved in disability activities, and provided more support to their sibling with disabilities.
Abstract: This study examined factors influencing involvement of siblings of individuals with developmental disabilities in future planning and their expectation of future caregiving. The sample con...
156 citations
TL;DR: The role that those with disabilities can play is addressed and includes program planning, implementation and evaluation, physical and programmatic accessibility of programs, and importance of evidence-based practices.
Abstract: Health promotion programs for people with disabilities are in the early stages of development. This critical review utilizes a credentialed expert panel to develop a set of guidelines for community-based health promotion programs for individuals with disabilities. The procedures include a review of background material, systematic literature review with drafted guidelines consisting of operational, participation and accessibility recommendations. The role that those with disabilities can play is addressed and includes program planning, implementation and evaluation, physical and programmatic accessibility of programs, and importance of evidence-based practices.
76 citations
TL;DR: This paper reviewed the literature on family support interventions for families caring for adults with Intellectual and developmental disabilities (I/DD) and drew attention to various interventions currently available for these families, including systemic federal and state family support public policies, as well as group level psychosocial interventions (such as support groups, future planning interventions, and support coordination).
Abstract: Though families are considered the primary provider of support to people with intellectual and developmental disabilities (I/DD), only a small amount of I/DD funding in the United States goes toward offering assistance to these families. In addition, formal interventions typically target families of children with I/DD, which are no longer available when the individual enters adulthood. This chapter reviews the literature on family support interventions for families caring for adults with I/DD. It first examines the impact of lifelong caregiving and the support needs of these families. It then draws attention to various interventions currently available for these families, including systemic federal and state family support public policies (such as cash subsidies, and consumer-directed supports), as well as group level psychosocial interventions (such as support groups, future planning interventions, and support coordination). The review calls attention to the need for more intervention research that is methodologically sound and that addresses not only the perspective of parents but also that of other family members (such as siblings) and the person with disabilities.
15 citations
TL;DR: The results indicated, beyond age, adaptive behavior, and health, that size of residences, residential characteristics, and social factors are related to mortality.
Abstract: The present study examined the degree to which residential characteristics and social factors are associated with mortality, after controlling for personal characteristics, among adults wi...
5 citations