Journal•ISSN: 2329-4515
AJOB empirical bioethics
Taylor & Francis
About: AJOB empirical bioethics is an academic journal published by Taylor & Francis. The journal publishes majorly in the area(s): Medicine & Informed consent. It has an ISSN identifier of 2329-4515. Over the lifetime, 271 publications have been published receiving 2692 citations. The journal is also known as: AJOBeb & American journal of bioethics empirical bioethics.
Topics: Medicine, Informed consent, Research ethics, Bioethics, Health care
Papers
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TL;DR: The revised 27-item scale, the Measure of Moral Distress for Healthcare Professionals (MMD-HP), is usable by all HCPs in adult and pediatric critical, acute, or long-term acute care settings and represents the most currently understood causes of moral distress.
Abstract: Background: As ongoing research explores the impact of moral distress on health care professionals (HCPs) and organizations and seeks to develop effective interventions, valid and reliable instrume...
251 citations
TL;DR: This model offers a conceptual basis for the design of tailored interventions that target specific groups to promote trust of individual researchers and research institutions as well as to facilitate broader research participation.
Abstract: Background: To promote justice in research practice and rectify health disparities, greater diversity in research participation is needed. Lack of trust in medical research is one of the most signi...
84 citations
TL;DR: The findings outline the need for increased collaboration across stakeholders in terms of shared and dynamic resources that improve awareness of technologies and decrease potential threats to participant privacy and data confidentiality and development of appropriate and dynamic standards through collaboration with stakeholders in the research ethics community.
Abstract: Vast quantities of personal health information and private identifiable information are being created through mobile apps, wearable sensors, and social networks. While new strategies and tools for obtaining health data have expanded researchers' abilities to design and test personalized and adaptive health interventions, the deployment of pervasive sensing and computational techniques to gather research data is raising ethical challenges for Institutional Review Boards (IRBs) charged with protecting research participants. To explore experiences with, and perceptions about, technology-enabled research, and identify solutions for promoting responsible conduct of this research we conducted focus groups with human research protection program and IRB affiliates. Our findings outline the need for increased collaboration across stakeholders in terms of: (1) shared and dynamic resources that improve awareness of technologies and decrease potential threats to participant privacy and data confidentiality, and (2) development of appropriate and dynamic standards through collaboration with stakeholders in the research ethics community.
66 citations
TL;DR: This study identifies the experiences, preferences, and perceptions of research participants regarding dissemination of research findings at the participant level and community level and documents participants' rationale for why they think it is important and their recommendations for how to share results.
Abstract: Background: The study identifies the experiences, preferences, and perceptions of research participants regarding dissemination of research findings at the participant level and community level. Me...
49 citations
TL;DR: The focus-group findings provide additional insight that technology cannot replace the human connection that is central to the informed consent process, and suggest that the use of interactive technology has the potential to improve the process of informed consent.
Abstract: Purpose: Innovation will be required to improve the informed consent process in research. We aimed to obtain input from key stakeholders—research participants and those responsible for obtaining in...
41 citations