A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system
C. D'Arcy J. Holman,A. John Bass,Diana L. Rosman,Merran Smith,James B. Semmens,Emma J. Glasson,Emma L. Brook,Brooke Trutwein,Ian L. Rouse,Charles Watson,Nicholas de Klerk,Fiona J. Stanley +11 more
TLDR
The WADLS has supported over 400 studies with over 250 journal publications and 35 graduate research degrees, and there have been unbiased contributions to medical knowledge and identifiable advances in population health arising from the research.Abstract:
Objectives: The report describes the strategic design, steps to full implementation and outcomes achieved by the Western Australian Data Linkage System (WADLS), instigated in 1995 to link up to 40 years of data from over 30 collections for an historical population of 3.7 million. Staged development has seen its expansion, initially from a linkage key to local health data sets, to encompass links to national and local health and welfare data sets, genealogical links and spatial references for mapping applications. Applications: The WADLS has supported over 400 studies with over 250 journal publications and 35 graduate research degrees. Applications have occurred in health services utilisation and outcomes, aetiologic research, disease surveillance and needs analysis, and in methodologic research. Benefits: Longitudinal studies have become cheaper and more complete; deletion of duplicate records and correction of data artifacts have enhanced the quality of information assets; data linkage has conserved patient privacy; community machinery necessary for organised responses to health and social problems has been exercised; and the commercial return on research infrastructure investment has exceeded 1000%. Most importantly, there have been unbiased contributions to medical knowledge and identifiable advances in population health arising from theread more
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Lifetime risk of undergoing surgery for pelvic organ prolapse.
TL;DR: There is a relatively high likelihood that a woman in Western Australia will undergo surgery for POP during her lifetime, and there is justification for a stronger evidence base for prevention, early detection and intervention to reduce the personal and societal costs of these gynecological conditions.
Journal ArticleDOI
Child maltreatment : variation in trends and policies in six developed countries
Ruth Gilbert,John D. Fluke,Melissa O'Donnell,Arturo Gonzalez-Izquierdo,Marni Brownell,Pauline J. Gulliver,Staffan Janson,Staffan Janson,Peter Sidebotham +8 more
TL;DR: The need for robust research is drawn to establish whether the high and rising rates of agency contacts and out-of-home care in some settings are effectively reducing child maltreatment, apart from high rates of violent child death in the USA.
Journal ArticleDOI
Administrative Record Linkage as a Tool for Public Health Research
TL;DR: Linked administrative databases offer a powerful resource for studying important public health issues, including the capacity to study low-prevalence exposure-disease associations, multiple outcome domains within the same cohort of individuals, service utilization and chronic disease patterns, and life course and transgenerational transmission of health.
Journal ArticleDOI
The role of administrative data in the big data revolution in social science research
TL;DR: It is concluded that administrative datasets have the potential to contribute to the development of high-quality and impactful social science research, and should not be overlooked in the emerging field of big data.
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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
TL;DR: This paper reports a systematic review and thematic synthesis of qualitative studies examining public attitudes towards the sharing or linkage of health data for research purposes, identifying a growing body of evidence pointing towards widespread general—though conditional—support for data linkage and data sharing forResearch purposes.
References
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Population-based linkage of health records in Western Australia: development of a health services research linked database.
TL;DR: The Western Australian Health Services Research Linked Database is introduced as infrastructure to support aetlologic, utilisation and outcomes research and to compare the study population, data resources, technical systems and organisational supports with international best practice.
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The risk of major birth defects after intracytoplasmic sperm injection and in vitro fertilization.
TL;DR: Infants conceived with use of intracytoplasmic sperm injection or in vitro fertilization have twice as high a risk of a major birth defect as naturally conceived infants.
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Complications of cholecystectomy: risks of the laparoscopic approach and protective effects of operative cholangiography: a population-based study.
David R. Fletcher,Michael Hobbs,Patrick Tan,Liora J. Valinsky,Richard Hockey,Terri Pikora,Matthew Knuiman,Harry J. Sheiner,Anthony Edis +8 more
TL;DR: Operative cholangiography has a protective effect for complications of cholecystectomy, compared with OC, which carries a nearly twofold higher risk of major bile, vascular, and bowel complications.
Book
Cerebral Palsies: Epidemiology and Causal Pathways
TL;DR: This work has shown that postneonatally acquired cerebral palsy is a more complex condition than previously thought, and the role of social and medical factors in the development of the disease and its management is still to be investigated.