Open Access
Breast cancer information needs and seeking: towards an intelligent, user sensitive portal to breast cancer knowledge online
Kirsty Williamson,Rosetta Manaszewicz +1 more
- Vol. 3, pp 203-219
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TLDR
A critical review of research on the information needs and informationseeking behavior of women with breast cancer is presented and the importance of user-centered, contextual studies as a means of understanding the continually changing information requirements of a diverse target audience is affirm.Abstract:
Breast cancer features prominently in the medical expenditures of all western societies and remains the greatest cancer killer amongst women. Information regarding the medical, societal and psycho-social aspects of the disease are vital for informed decision making, patient ‘empowerment’, compliance and improved outcomes. Yet the literature consistently reports dissatisfaction with both the content and delivery mechanisms of breast cancer information. This paper presents a critical review of research on the information needs and informationseeking behavior of women with breast cancer. Results from the Australian Breast Cancer Information Needs and Seeking (BCINS) study are reported and affirm the importance of user-centered, contextual studies as a means of understanding the continually changing information requirements of a diverse target audience. The end-product of the BCINS study, an online ‘intelligent portal’, is described. Through the provision of quality, ‘tailored’ breast cancer resources, the portal is intended to meet the differentiated information needs of the breast cancer community.read more
Citations
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Journal ArticleDOI
Understanding the information behaviours of carers of people with dementia: a critical review of models from information science.
Juliet Harland,Peter A. Bath +1 more
TL;DR: Existing models of information behaviour derived from information science, particularly Dervin's sense-making theory and Wilson's Information Seeking Behaviour Models, could be useful in developing a better understanding of the information behaviours of carers of people with dementia.
Journal Article
Information use and secondary school students: a model for understanding plagiarism
TL;DR: An interim model for understanding the influences on information use in relation to plagiarism, with a focus on secondary school students, is described, giving the researchers new insights at a crucial stage when they were about to embark on a major study.
Journal ArticleDOI
“A lot of people didn't have a chance to support us because we never told them” Stigma management, information poverty and HIV/AIDS information/help networks
TL;DR: Findings suggest that information behaviour theory may need to evolve in order to account for the complexity of self-protective behaviour.
Proceedings ArticleDOI
User Centred Quality Health Information Provision: Benefits and Challenges
TL;DR: The research outcomes discussed in this paper describe the approach taken to building the metadata-driven portal, the outcome of usability testing of the portal, and the limitations of such an ambitious project.
Journal IssueDOI
Consumer empowerment through metadata-based information quality reporting: The Breast Cancer Knowledge Online Portal
TL;DR: The Breast Cancer Knowledge Online Portal project (BCKOnline) as mentioned in this paper explored individual and changing information and decision support needs of women with breast cancer and the issues they face when searching for relevant and reliable health information on the Internet.
References
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