Children with medical complexity in Canada.
Tammie Dewan,Eyal Cohen +1 more
TLDR
The paediatric community should engage in health care reform discussions focused on chronic disease to ensure that the complex needs of these children are met.About:
This article is published in Paediatrics and Child Health.The article was published on 2013-12-01 and is currently open access. It has received 89 citations till now. The article focuses on the topics: Health care & Collaborative Care.read more
Citations
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Children with medical complexity: a scoping review of interventions to support caregiver stress
TL;DR: Positive findings of reductions in caregiver stress were noted within an emerging body of evidence on effective interventions for families of children with medical complexity, and promising findings demonstrate that stress reduction is possible with the right support and that multiple interventions may be effective in reducing burdens of care experienced by families ofChildren withmedical complexity.
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Characteristics of Rural Children Admitted to Pediatric Hospitals
Alon Peltz,Alon Peltz,Chang L. Wu,Marjorie Lee White,Karen M. Wilson,Scott A. Lorch,Cary Thurm,Matthew Hall,Jay G. Berry +8 more
TL;DR: Rural children hospitalized at children’s hospitals have high rates of medical complexity and often reside in low-income and medically underserved areas.
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Children’s complex care needs: a systematic concept analysis of multidisciplinary language
Maria Brenner,Claire Kidston,Carol Hilliard,Imelda Coyne,Jessica Eustace-Cook,Carmel Doyle,Thelma Begley,Michael Barrett +7 more
TL;DR: It is found that children’s CCNs refer to multidimensional health and social care needs, in the presence of a recognized medical condition or where there is no unifying diagnosis.
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Strategies to support transitions from hospital to home for children with medical complexity: A scoping review
TL;DR: There is a need for consensus around the definition for children with medical complexity and the limited number of these studies and lack of high quality of evidence signals the need for further research to improve the transition from hospital to home and ultimately, improve patient and family outcomes.
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Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
Shabnaz Siddiq,Brenda Wilson,Ian D. Graham,Ian D. Graham,Monica Lamoureux,Sara D. Khangura,Kylie Tingley,Laure Tessier,Pranesh Chakraborty,Doug Coyle,Sarah Dyack,Jane Gillis,Cheryl R. Greenberg,Robin Z. Hayeems,Shailly Jain-Ghai,Jonathan B. Kronick,Anne-Marie Laberge,Julian Little,John J. Mitchell,Chitra Prasad,Komudi Siriwardena,Rebecca Sparkes,Kathy N. Speechley,Sylvia Stockler,Yannis Trakadis,Sarah Wafa,Jagdeep S. Walia,Kumanan Wilson,Kumanan Wilson,Nataliya Yuskiv,Beth K. Potter +30 more
TL;DR: Parents’ social concerns for their children were important stressors that warrant consideration by health care providers positioned to support families and point to a need for better coordination of the care that takes place outside the disease-specific management of IMD.
References
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Interprofessional education: effects on professional practice and healthcare outcomes (update)
TL;DR: This updated review includes 15 studies that measured the effectiveness of IPE interventions compared to no educational intervention and found that seven studies indicated that IPE produced positive outcomes in the following areas: diabetes care, emergency department culture and patient satisfaction.
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Evidence On The Chronic Care Model In The New Millennium
TL;DR: Accumulated evidence appears to support the Chronic Care Model as an integrated framework to guide practice redesign, and studies suggest that redesigning care using the CCM leads to improved patient care and better health outcomes.
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Children With Medical Complexity: An Emerging Population for Clinical and Research Initiatives
Eyal Cohen,Dennis Z. Kuo,Rishi Agrawal,Jay G. Berry,Santi K. M. Bhagat,Tamara D. Simon,Rajendu Srivastava +6 more
TL;DR: This article presents a definitional framework of CMC that consists of substantial family-identified service needs, characteristic chronic and severe conditions, functional limitations, and high health care use and suggests a research agenda that uses a uniform definition.
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Identifying children with special health care needs: development and evaluation of a short screening instrument.
Christina Bethell,Debra Read,Ruth E.K. Stein,Stephen J. Blumberg,Nora Wells,Paul W. Newacheck +5 more
TL;DR: Results of this study indicate that the CSHCN Screener requires minimal time to administer, is acceptable for use as both an interview-based and self-administered survey, and that rates of children positively identified vary according to child demographic, health, and health care-need characteristics.