I Don’t Want to Be the One Saying ‘We Should Just Let Him Die’: Intrapersonal Tensions Experienced by Surrogate Decision Makers in the ICU
Yael Schenker,Megan Crowley-Matoka,Daniel Dohan,Greer A. Tiver,Robert M. Arnold,Douglas B. White +5 more
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TLDR
SSurrogates’ struggle to reconcile personal and family emotional needs with their loved ones’ wishes, and utilize common coping strategies to combat intrapersonal tensions are suggested.Abstract:
BACKGROUND
Although numerous studies have addressed external factors associated with difficulty in surrogate decision making, intrapersonal sources of tension are an important element of decision making that have received little attentionread more
Citations
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An Official ATS/AACN/ACCP/ESICM/SCCM Policy Statement: Responding to Requests for Potentially Inappropriate Treatments in Intensive Care Units.
Gabriel T. Bosslet,Thaddeus Mason Pope,Gordon D. Rubenfeld,Bernard Lo,Robert D. Truog,Cynda Hylton Rushton,J. Randall Curtis,Dee W. Ford,Molly L. Osborne,Cheryl Misak,David H. Au,Elie Azoulay,Baruch A. Brody,Brenda G. Fahy,Jesse B. Hall,Jozef Kesecioglu,Alexander A. Kon,Kathleen O. Lindell,Douglas B. White +18 more
TL;DR: The multisociety statement on responding to requests for potentially inappropriate treatments in intensive care units provides guidance for clinicians to prevent and manage disputes in patients with advanced critical illness.
Journal ArticleDOI
The Changing Role of Palliative Care in the ICU
TL;DR: Palliative care is increasingly accepted as an essential component of comprehensive care for critically ill patients, regardless of diagnosis or prognosis, and resources including technical assistance and tools are available to support improvement efforts.
Journal ArticleDOI
Patient and family involvement in adult critical and intensive care settings : a scoping review
Michelle Olding,Sarah McMillan,Scott Reeves,Madeline H. Schmitt,Kathleen Puntillo,Simon Kitto +5 more
TL;DR: Despite international bodies calling for increased patient and family involvement, these concepts remain poorly defined within literature on critical and intensive care settings.
Journal ArticleDOI
Scope and Outcomes of Surrogate Decision Making Among Hospitalized Older Adults
Alexia M. Torke,Greg A. Sachs,Paul R. Helft,Kianna Montz,Siu L. Hui,James E. Slaven,Christopher M. Callahan,Christopher M. Callahan,Christopher M. Callahan +8 more
TL;DR: Hospital functions should be redesigned to account for the large and growing role of surrogates, supporting them as they make health care decisions, and including both complete decision making by the surrogate and joint decisionMaking by the patient and surrogate.
Journal ArticleDOI
Variation in Decisions to Forgo Life-Sustaining Therapies in US ICUs
TL;DR: Although patient factors explain much of the variability in DFLST practices, significant effects of ICU culture and practice influence end-of-life decision-making, and the observation that an ICU's risk-adjusted propensity to withdraw life support is directly associated with its standardized mortality ratio suggests problems with using the latter as a quality measure.
References
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Book
Constructing grounded theory : a practical guide through qualitative analysis
TL;DR: K Kathy Charmaz's excellent and practical guide to grounded theory in nursing and how to do qualitative research in nursing is welcomed.
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InterViews: An introduction to qualitative research interviewing.
TL;DR: In this paper, the authors introduce the concept of the research interview as a conversation and discuss the social construction of validity of the interview report and the ethical issues in conducting research interviews.
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Constructing grounded theory : A practical guide through qualitative analysis
TL;DR: Charmaz as mentioned in this paper presented a practical guide through qualitative analysis to construct grounded theory, using qualitative analysis, and showed that qualitative analysis can be used to understand grounded theory in a practical way.
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Qualitative Data Analysis: An Introduction
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Journal ArticleDOI
Risk of Post-traumatic Stress Symptoms in Family Members of Intensive Care Unit Patients
Elie Azoulay,Frédéric Pochard,Nancy Kentish-Barnes,Sylvie Chevret,Jerome Aboab,Christophe Adrie,Djilali Annane,Gérard Bleichner,Pierre Edouard Bollaert,Michael Darmon,Thomas Fassier,Richard Galliot,Maité Garrouste-Orgeas,Cyril Goulenok,Dany Goldgran-Toledano,Jan Hayon,Mercé Jourdain,Michel Kaidomar,Christian Laplace,Jérôme Larché,Jerome Liotier,Laurent Papazian,Catherine Poisson,Jean Reignier,Fayçal Saidi,Benoît Schlemmer +25 more
TL;DR: Post-traumatic stress reaction consistent with a high risk of PTSD is common in family members of ICU patients and is the rule among those who share in end-of-life decisions.
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