Journal ArticleDOI
Measurement of the quality of life in cancer survivors
TLDR
It is demonstrated that the QOL-CS and its subscales adequately measured QOL in this growing population of cancer survivors.Abstract:
A QOL instrument was developed to measure the specific concerns of long term cancer survivors. The QOL-CS is based on previous versions of the QOL instrument developed by researchers at the City of Hope National Medical Centre (Grant, Padilla, and Ferrell). This instrument was revised over a one year pilot by Hassey-Dow and Ferrell. The revised instrument included 41 items representing the four domains of quality of life incorporating physical, psychological, social, and spiritual well being. The present study was conducted as a mail survey to the membership (n = 1,200) of the National Coalition for Cancer Survivorship with 686 subjects responding to the survey. This survey included a Demographic tool, QOL-CS and the FACT-G tool developed by Cella. Psychometric analysis, performed on 686 respondents, included measures of reliability and validity. Two measures of reliability included test-retest and internal consistency. The overall QOL-CS tool test-retest reliability was 0.89 with subscales of Physical r = 0.88, Psychological r = 0.88, Social r = 0.81, and Spiritual, r = 0.90. The second measure of reliability was computation of internal consistency using Cronbach's alpha coefficient as a measure of agreement between items and subscales. Analysis revealed an overall r = 0.93. Subscale alphas average ranged from r = 0.71 for spiritual well being, r = 0.77 for physical, r = 0.81 for social, and r = 0.89 for psychological. Several measures of validity were used to determine the extent to which the instrument measured the concept of QOL in cancer survivors. The first method of content validity was based on a panel of QOL researchers and nurses with expertise in oncology. The second measure used stepwise multiple regression to determine factors most predictive of overall QOL in cancer survivors. Seventeen variables were found to be statistically significant accounting for 91% of the variance in overall QOL. The fourth measure of validity used Pearson's correlations to estimate the relationships between the subscales of QOL-CS and the subscales of the established FACT-G tool. There was moderate to strong correlation between associated subscales including QOL-CS physical to FACT physical (r = 0.74), QOL-CS Psych to FACT Emotional (r = 0.65), QOL Social to FACT Social (r = 0.44). The overall QOL-CS correlation with the FACT-G was 0.78. Additional measures of validity included correlations of individual items of the QOL-CS tool, factor analysis, and construct validity discriminating known groups of cancer survivors. Findings demonstrated that the QOL-CS and its subscales adequately measured QOL in this growing population of cancer survivors.read more
Citations
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Journal ArticleDOI
The proxy problem: Child report versus parent report in health-related quality of life research
N.C.M. Theunissen,Ton Vogels,Hendrik M. Koopman,Gijsbert H. W. Verrips,Koos H. Zwinderman,S.P. Verloove-Vanhorick,J.M. Wit +6 more
TL;DR: In this paper, the authors evaluated the agreement between child and parent reports on children's health-related quality of life (HRQoL) in a representative sample of 1,105 Dutch children (age 8-11 years old).
Journal ArticleDOI
Current health behaviors and readiness to pursue life-style changes among men and women diagnosed with early stage prostate and breast carcinomas.
Wendy Demark-Wahnefried,Bercedis Peterson,Colleen M. McBride,Isaac M. Lipkus,R.N. Elizabeth Clipp Ph.D. +4 more
TL;DR: Cancer survivors are at increased risk for developing secondary tumors, diabetes, osteoporosis, and cardiovascular disease, thus making them an important target population for health‐related interventions.
Journal ArticleDOI
Dietary Counseling Improves Patient Outcomes: A Prospective, Randomized, Controlled Trial in Colorectal Cancer Patients Undergoing Radiotherapy
TL;DR: During radiotherapy, both interventions positively influenced outcomes; dietary counseling was of similar or higher benefit, whereas even 3 months after RT, it was the only method to sustain a significant impact on patient outcomes.
Journal ArticleDOI
Impact of nutrition on outcome: A prospective randomized controlled trial in patients with head and neck cancer undergoing radiotherapy
TL;DR: This study aimed to determine the effect of dietary counseling or oral supplements on outcome for patients with cancer, specifically, nutritional outcome, morbidity, and quality of life (QOL) during and 3 months after radiotherapy.
Journal ArticleDOI
Models for Delivering Survivorship Care
TL;DR: The aims of this article are to provide a rationale for survivor health care and to articulate a taxonomy of models of survivor care that is applicable to both community practices and academic institutions.
References
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Journal ArticleDOI
A critical appraisal of the quality of quality-of-life measurements
TL;DR: To evaluate how well quality of life is being measured in the medical literature and to offer a new approach to the measurement, original English-language articles having the term "quality of life" in their titles were identified.
Journal Article
Fatigue and the cancer experience: the state of the knowledge.
M. L. Winningham,Lillian Nail,M. B. Burke,L. Brophy,B. Cimprich,L. S. Jones,S. Pickard-Holley,V. Rhodes,B. St Pierre,Susan L. Beck +9 more
Journal ArticleDOI
An evaluation of the quality of life among long-term survivors of breast cancer
TL;DR: Evaluated breast cancer survivors experienced long-term changes after completion of treatment which affected overall quality of life, however, many positive benefits were also gained which helped to balance the worse outcomes.
Journal Article
Quality of life in long-term cancer survivors.
TL;DR: Cancer survivors experienced altered lives and had needs related to fear of recurrence and facing the spiritual aspects of having survived a life-threatening illness.
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