A
Alison Metcalfe
Researcher at Sheffield Hallam University
Publications - 58
Citations - 1709
Alison Metcalfe is an academic researcher from Sheffield Hallam University. The author has contributed to research in topics: Genetic counseling & Genetic testing. The author has an hindex of 23, co-authored 55 publications receiving 1383 citations. Previous affiliations of Alison Metcalfe include King's College London & Florence Nightingale School of Nursing and Midwifery.
Papers
More filters
Journal ArticleDOI
Factors influencing recruitment to research: qualitative study of the experiences and perceptions of research teams
Lisa Newington,Alison Metcalfe +1 more
TL;DR: Suggestions to improve recruitment included reducing participant burden, providing support for individuals who do not speak English, and forming collaborations with primary care to improve the identification of, and access to, potentially eligible participants.
Journal ArticleDOI
Family communication between children and their parents about inherited genetic conditions: A meta-synthesis of the research
TL;DR: A systematic review of all major health and medical research databases was undertaken using current guidelines to identify original relevant research papers from 1980 to 2007, which explore the issues surrounding parents and their children's communication about inherited genetic risk.
Journal ArticleDOI
Randomised controlled trials: an introduction for nurse researchers.
TL;DR: An overview of the main components of randomised controlled trials is presented and the importance of taking account of the Consort guidelines during their design, conduct and reporting is emphasised.
Journal ArticleDOI
Parents’ and children's communication about genetic risk: a qualitative study, learning from families’ experiences
TL;DR: The authors explored how genetic risk information is shared between family members and the factors affecting it, to ascertain the implications for children, young people and their parents to inform future service development and provision.
Journal ArticleDOI
International consensus statement on the diagnosis and management of autosomal dominant polycystic kidney disease in children and young people
Charlotte Gimpel,Carsten Bergmann,Detlef Bockenhauer,Luc Breysem,Melissa A. Cadnapaphornchai,Metin Cetiner,Jan Dudley,Francesco Emma,Martin Konrad,Tess Harris,Peter C. Harris,Jens König,Max C. Liebau,Matko Marlais,Djalila Mekahli,Alison Metcalfe,Jun Oh,Ronald D. Perrone,Manish D. Sinha,Andrea Titieni,Roser Torra,Stefanie Weber,Paul J D Winyard,Franz Schaefer +23 more
TL;DR: This Consensus Statement developed on behalf of the Network for Early Onset Cystic Kidney Disease provides guidance on counselling, diagnosing and monitoring children with autosomal dominant polycystic kidney disease based on current evidence and a multi-stakeholder discussion of ethical issues.