Judy Thibadeau

TL;DR: The findings suggest that adolescent girls in the United States with a physical disability or long-term health problem may be at increased risk for sexual violence.

TL;DR: The Centers for Disease Control and Prevention Urologic and Renal Protocol for the Newborn and Young Child with Spina Bifida began accruing patients in 2015 and assessment in the first 5 years will focus on urinary tract infections, renal function, renal scarring and clinical process improvements.

TL;DR: Sociodemographic attributes are associated with spina bifida outcomes, in particular, males, non-Hispanic blacks, and patients without private insurance have less favorable outcomes, and age has an impact as well.

TL;DR: The creation of a National Spina Bifida Patient Registry partnership between the CDC and SB clinics has been feasible and the data generated by the registry will become more robust and representative of the population of patients attending SB clinics in the United States and will allow for the investigation of patient outcomes.

TL;DR: Bowel continence was reported by over half of spina bifida adults and was associated with socio-economic factors and differed between adults and younger patients with SB.