Journal ArticleDOI
Dementia care in eight European countries: developing a mapping system to explore systems.
Ingalill Rahm Hallberg,Helena Leino-Kilpi,Gabriele Meyer,Katrin Raamat,Maria Soto Martin,Caroline Sutcliffe,Adelaida Zabalegui,Sandra M.G. Zwakhalen,Staffan Karlsson +8 more
TLDR
The mapping system can be useful in clarifying the dementia care system for those concerned, in helping nurse researchers and managers review and initiate evaluation and communicate with policy makers, as well as to ensure that providers use appropriate parts of the system.Abstract:
There is a knowledge gap with regard to the structure of the care and service system available to persons with dementia. This is very much a concern for nurses who are the main providers in the care of dementia. The study, a part of the "RightTimePlaceCare" project, describes the development and content of a mapping system aimed at exploring the content of care and service for persons with dementia and their informal caregiver throughout the disease trajectory. The usefulness of the mapping system is illustrated in describing the availability of care and service at the diagnostic stage, and at the institutional and palliative stages.read more
Citations
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Journal ArticleDOI
Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries.
Patrick Bremer,Esther Cabrera,Helena Leino-Kilpi,Connie Lethin,Kai Saks,Caroline Sutcliffe,Maria Soto,Sandra M.G. Zwakhalen,Ansgar Wübker +8 more
TL;DR: A higher amount of informal care was significantly related to negative health outcomes for informal caregivers and the impact of providing care on caregivers' health and health care utilization has to be taken into account.
Journal ArticleDOI
Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study
Michel H. C. Bleijlevens,Minna Stolt,Astrid Stephan,Adelaida Zabalegui,Kai Saks,Caroline Sutcliffe,Connie Lethin,Maria Soto,Sandra M.G. Zwakhalen +8 more
TL;DR: Cross-country differences in caregiver burden and health-related quality of life of informal caregivers of people with dementia in eight European countries may be related to differences in health and social care systems.
Journal ArticleDOI
Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study
Connie Lethin,Helena Leino-Kilpi,Brenda Roe,Maria Martin Soto,Kai Saks,Astrid Stephan,Sandra M.G. Zwakhalen,Adelaida Zabalegui,Staffan Karlsson +8 more
TL;DR: In this article, a survey of European support systems and professionals involved in the development of a dementia support system for informal caregivers is presented, where the authors investigate the availability and utilization of support in each of the participating countries, and the professional care providers involved through the dementia disease.
Journal ArticleDOI
The association between positive–negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross‐sectional study
M. Carme Alvira,Ester Risco,Esther Cabrera,Marta Farré,Ingalill Rahm Hallberg,Michel H. C. Bleijlevens,Gabriele Meyer,Jaana Koskenniemi,Maria Soto,Adelaida Zabalegui +9 more
TL;DR: Study results support links between the reactions of informal caregivers of people with dementia and health outcomes, and may have implications in terms of how services are addressed.
Journal ArticleDOI
Dementia care in European countries, from the perspective of people with dementia and their caregivers
Staffan Karlsson,Michel H. C. Bleijlevens,Brenda Roe,Kai Saks,Maria Soto Martin,Astrid Stephan,Riita Suhonen,Adelaida Zabalegui,Ingalill Rahm Hallberg +8 more
TL;DR: A dyadic approach seems most suitable for dementia care, as focus of care is on the person with dementia and their informal caregivers, and a trusting relationship and a specific person or organization to contact seem to be indicators of best practice.
References
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Journal ArticleDOI
Global prevalence of dementia: a Delphi consensus study
Cleusa P. Ferri,Martin Prince,Carol Brayne,Henry Brodaty,Laura Fratiglioni,Mary Ganguli,Kathleen S. Hall,Kazuo Hasegawa,Hugh C. Hendrie,Yueqin Huang,Anthony F. Jorm,Colin Mathers,Paulo Rossi Menezes,Elizabeth Rimmer,Marcia Scazufca +14 more
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The worldwide societal costs of dementia: Estimates for 2009
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Journal ArticleDOI
Racial, Ethnic, and Cultural Differences in the Dementia Caregiving Experience Recent Findings
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Journal ArticleDOI
An aging world : 2001
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