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Journal ArticleDOI

Distress, coping, and social support among rural women recently diagnosed with primary breast cancer.

TLDR
The results suggest that among these rural women with breast cancer, distress with the diagnosis of breast cancer must be carefully assessed, as women who are highly distressed about their breast cancer may not report general mood disturbance.
Abstract
This study examined distress, coping, and group support among a sample of rural women who had been recently diagnosed with breast cancer. We recruited 100 women who had been diagnosed with primary breast cancer at one of two time points in their medical treatment: either within a window up to 3 months after their diagnosis of breast cancer, or within 6 months after completing medical treatment for breast cancer. Their mean age was 58.6 years (SD = 11.6), and 90% were of white/European American ethnicity. Women completed a battery of demographic and psychosocial measures prior to being randomized into a psychoeducational intervention study, and then again 3 months later at a follow-up assessment. The focus of this article is on the women's self-reported psychosocial status at baseline. Many of the women experienced considerable traumatic stress regarding their breast cancer. However, this distress was not reflected in a standard measure of mood disturbance that is frequently used in intervention research (the Profile of Mood States). The average woman considered her diagnosis of breast cancer to be among the four most stressful life events that she had ever experienced. Also, women on average reported a high level of helplessness/hopelessness in coping with their cancer. On average, women felt that they "often" (but not "very often") received instrumental assistance, emotional support, and informational support. Women varied considerably in which kind of social group provided them with the most support, with as many reporting that they found the greatest support in spiritual/church groups or within their family units as with breast or general cancer groups. These results suggest that among these rural women with breast cancer, distress with the diagnosis of breast cancer must be carefully assessed, as women who are highly distressed about their breast cancer may not report general mood disturbance. Furthermore, the kinds of groups that rural women with breast cancer experience as most supportive need to be identified so that psychosocial interventions can be matched to breast cancer patients' individual needs.

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Community-based participatory research: assessing the evidence

TL;DR: The EPC paired trained abstractors with a senior reviewer, who used an analytic framework to guide development of abstraction tables, and used the same framework to rate the quality of both the primary research and primary community-based participation elements.
Journal ArticleDOI

Distress, psychiatric syndromes, and impairment of function in women with newly diagnosed breast cancer

TL;DR: Emotional distress and psychiatric syndromes are prevalent in the breast cancer population at large, but to date there is a paucity of literature specifically concerning presurgical breast cancer patients.
Journal ArticleDOI

Online cancer support groups: a review of the research literature.

TL;DR: Current research on online cancer support groups suffered from a lack of experimental design, small and homogenous samples, and lack of outcome measures, thereby limiting applicability of results.
Journal ArticleDOI

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

TL;DR: In this article, the authors describe what is known about levels of morbidity and the experience and needs of people with cancer, and their informal caregivers, living in rural areas, and the aim of their study was to describe what was known about the levels of mortality and the experiences and needs for people living with cancer and their caregivers.
Journal ArticleDOI

Cancer survivorship research among ethnic minority and medically underserved groups.

TL;DR: Specific variations in risk for, response to, and recovery from cancer that provide direction for changes in nursing practice that may reduce the burden of cancer in these often vulnerable populations are found.
References
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Journal ArticleDOI

Social support as a moderator of life stress

TL;DR: It appears that social support can protect people in crisis from a wide variety of pathological states: from low birth weight to death, from arthritis through tuberculosis to depression, alcoholism, and the social breakdown syndrome.
Journal ArticleDOI

Social networks, host resistance, and mortality: a nine-year follow-up study of Alameda County residents

TL;DR: The findings show that people who lacked social and community ties were more likely to die in the follow-up period than those with more extensive contacts.
Journal ArticleDOI

Psychometric properties of the PTSD Checklist (PCL).

TL;DR: The psychometric properties of the PTSD Checklist, a new, brief, self-report instrument, were determined on a population of 40 motor vehicle accident victims and sexual assault victims using diagnoses and scores from the CAPS as the criteria to support the value of the PCL as a brief screening instrument for PTSD.
Journal ArticleDOI

Effect of psychosocial treatment on survival of patients with metastatic breast cancer

TL;DR: The effect of psychosocial intervention on time of survival of 86 patients with metastatic breast cancer was studied prospectively and survival plots indicated that divergence in survival began at 20 months after entry, or 8 months after intervention ended.
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