Implementation Science Meets Software Development to Create eHealth Components for an Integrated Care Model for Allogeneic Stem Cell Transplantation Facilitated by eHealth: The SMILe Study as an Example.
Lynn Leppla,Sandra Hobelsberger,Dennis Rockstein,Viktor Werlitz,Stefan Pschenitza,Phillip Heidegger,Sabina De Geest,Sabine Valenta,Alexandra Teynor,SMILe study team +9 more
TLDR
In this paper, the authors describe a process of creating eHealth components for an integrated care model using an agile software development approach, user-centered design and behavior theory-guided content development.Abstract:
Purpose To describe a process of creating eHealth components for an integrated care model using an agile software development approach, user-centered design and, via the Behavior Change Wheel, behavior theory-guided content development. Following the principles of implementation science and using the SMILe project (integrated care model for allogeneic stem cell transplantation facilitated by eHealth) as an example, this study demonstrates how to narrow the research-to-practice gap often encountered in eHealth projects. Methods We followed a four-step process: (a) formation of an interdisciplinary team; (b) a contextual analysis to drive the development process via behavioral theory; (c) transfer of content to software following agile software development principles; and (d) frequent stakeholder and end user involvement following user-centered design principles. Findings Our newly developed comprehensive development approach allowed us to create a running eHealth component and embed it in an integrated care model. An interdisciplinary team's collaboration at specified interaction points supported clear, timely communication and interactions between the specialists. Because behavioral theory drove the content development process, we formulated user stories to define the software features, which were prioritized and iteratively developed using agile software development principles. A prototype intervention module has now been developed and received high ratings on the System Usability Scale after two rounds of usability testing. Conclusions Following an agile software development process, structured collaboration between nursing scientists and software specialists allowed our interdisciplinary team to develop meaningful, theory-based eHealth components adapted to context-specific needs. Clinical relevance The creation of high-quality, accurately fitting eHealth components specifically to be embedded in integrated care models should increase the chances of uptake, adoption, and sustainable implementation in clinical practice.read more
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“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells Transplantation Survivors in Germany
Mira Parisek,Julika Loss,Ernst Holler,Anna Barata,Daniela Weber,Matthias Edinger,Daniel Wolff,Hélène Schoemans,Hélène Schoemans,Anne Herrmann,Anne Herrmann +10 more
TL;DR: In this paper, the authors conducted semi-structured face-to-face and phone interviews with alloHSCT-survivors and their partners referred to a survivorship clinic in Germany.
Journal ArticleDOI
Development of an integrated model of care for allogeneic stem cell transplantation facilitated by eHealth-the SMILe study.
Lynn Leppla,Lynn Leppla,Anja Schmid,Anja Schmid,Sabine Valenta,Sabine Valenta,Juliane Mielke,Sonja Beckmann,Sonja Beckmann,Janette Ribaut,Janette Ribaut,Alexandra Teynor,Fabienne Dobbels,Nathalie Duerinckx,Robert Zeiser,Monika Engelhardt,Sabine Gerull,Sabina De Geest,Sabina De Geest,SMILe study team +19 more
TL;DR: The SMILe intervention is embedded within the eHealth enhanced chronic care model, entailing four self-management intervention modules, targeting monitoring and follow-up of important medical and symptom-related parameters, infection prevention, medication adherence, and physical activity.
Journal ArticleDOI
Medication adherence interventions in transplantation lack information on how to implement findings from randomized controlled trials in real-world settings: A systematic review
TL;DR: In this paper , a systematic review assesses the range of information available in RCTs supporting these interventions' clinical adoption in adult transplant populations, including interventions that targeted any phase of medication adherence in solid organ or allogeneic stem cell transplantation recipients.
Journal ArticleDOI
Medication adherence interventions in transplantation lack information on how to implement findings from randomized controlled trials in real-world settings: A systematic review
Barbora Kostalova,Janette Ribaut,Fabienne Dobbels,Sabine Gerull,Katerina Mala-Ladova,Leah L. Zullig,Sabina De Geest +6 more
TL;DR: In this paper, a systematic review assesses the range of information available in RCTs supporting these interventions' clinical adoption in adult transplant populations and evaluates implementation-relevant information using adapted versions of Peters' ten criteria: 1. healthcare/organizational context; 2. social/economic/policy context; 3. patient involvement; 4. other stakeholder involvement; 5. sample representativeness; 6. trial conducted in a real-world setting; 7. presence of feasibility study; 8. implementation strategy; 9. process evaluation; 10. implementation outcomes, using a stop
Journal ArticleDOI
The SMILe integrated care model in allogeneic SteM cell TransplantatIon faciLitated by eHealth: a protocol for a hybrid effectiveness-implementation randomised controlled trial
Sabina De Geest,Sabine Valenta,Janette Ribaut,Sabine Gerull,Juliane Mielke,Michael Simon,Jana Bartáková,Klaus Kaier,Jens Eckstein,Lynn Leppla,Alexandra Teynor +10 more
TL;DR: The SMILe-ICM has major innovative potential for reengineering allogeneic stem cell transplant follow-up care, particularly regarding short-and medium-term outcomes as mentioned in this paper .
References
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Usability Engineering
TL;DR: This guide to the methods of usability engineering provides cost-effective methods that will help developers improve their user interfaces immediately and shows you how to avoid the four most frequently listed reasons for delay in software projects.
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SUS: A 'Quick and Dirty' Usability Scale
TL;DR: This chapter describes the System Usability Scale (SUS) a reliable, low-cost usability scale that can be used for global assessments of systems usability.
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Welcome to Implementation Science
Martin P Eccles,Brian S. Mittman +1 more
TL;DR: This online journal will provide a unique platform for this type of research and will publish a broad range of articles – study protocols, debate, theoretical and conceptual articles, rigorous evaluations of the process of change, and articles on methodology and rigorously developed tools – that will enhance the development and refinement of implementation research.
Book
User Stories Applied: For Agile Software Development
TL;DR: The best way to build software that meets users' needs is to begin with "user stories": simple, clear, brief descriptions of functionality that will be valuable to real users.